Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Saying It's Gluten Free When It's Not! Is This Legal?


Jade Pray

Recommended Posts

Jade Pray Rookie

I live in Great Falls, Montana. This is Montana so there isn’t


a Lot of option when going to a restaurant  but there are still several advertising gluten free options
including 2 restaurants that do have fantastic gluten free options (Boston’s
and Jaker’s) but both of those options are rather pricey and more sit down.
When I heard a local pizza place (The Pizza Baron) advertising gluten free
pasta and pizza I was excited. I mean they deliver. Its been years since I had
food delivered. So I called them up to check…. They cook their noodles in the
same pot. Same water. Same strainer…


These people are advertising gluten free food but have no
clue what that even means and are poisoning any celiac and gluten sensitive’s
that take their claim at face value and trust them enough to eat it. I know
they are doing this to jump on the gluten free band wagon (hello Dominoes all
over again) but the pressure put on Dominoes led them to add warnings that the
food was not safe for celiacs.


Now after that long rant here’s my question: Is this legal? Is
it legal to advertise something as gluten free when it is not. Is there really
no system for this, no mandatory anything? People can just call whatever they
want gluten free? I don’t know very much about laws but it just doesn’t seem
right. Isn’t this at the very least false advertising?  I can’t be alone on this sentiment. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

That's not gluten free if they are cooking the pasta in the same pot as the regular stuff.  A lot of restaurants are clueless. As for being legal, it probably is because I don't think they have to declare gluten in foods.  But it sure isn't a very nice thing to do.  I was watching one of those restaurant shows where they secretly film the employees to see if they are doing right.  They set up a situation where a woman brought in gluten-free pasta and asked them to cook it for her.  They did but...  They didn't show how it was done.  I have had far too many mishaps in restaurants by clueless but well meaning people.

 

I now even wonder about Garlic Jim's pizza!  I never actually watched closely as they made ours.  They do advertise that the flour they use for slapping the dough is gluten-free.  But...  Are they slapping that gluten-free dough on a surface where wheat dough was just slapped?  I don't know.  Are they taking it out of the oven on a piel that held wheat dough?  Dunno. 

tarnalberry Community Regular

I sort of wonder if this would fall under false advertising.  I highly doubt you'd get anywhere without paying an awful lot of money.

Darissa Contributor

I've always wondered the same thing. We were out of town, and had checked on the internet before going about places who offered gluten free food. I checked one of them out, and they stated on their menu something about that their food was not for Celiacs due to the chance of cross contact due to prep and cooking, but that it was only for those who wish to avoid eating gluten free - not because of a medical issue. I was very thankful they were upfront and honest. So many people don't eat gluten for so many reason that have nothing to do with Celiac, or intolerances or allergies.  I wish more restaurants would be up front about it so those of us who truly need gluten-free could make informed decisions. 

luvs2eat Collaborator

I had a meal in a pretty fancy restaurant (can't remember the name) and many of the offerings were listed as gluten free. I asked them specifically, as they had several fried things, if their french fries... which were listed as gluten-free... were fried in the same oil as the other fried things they offered and they told me they were. I told them that they needed to take the listing that their fries were gluten-free OFF the menu as they were NOT gluten-free. As far as I know, they never did.

 

I did go to a local online review site and tell my story so that maybe other celiacs would see it!

kristenloeh Community Regular

Always assume that there aren't designated prep areas and designated friers unless they actually specify otherwise. Better safe than sorry, and the truth of the matter is, most places either don't care or they just aren't actually taught how to make things safe. Unfortunately, most places only say it's gluten free to get those who are doing it as a fad diet to eat at their place.

Jade Pray Rookie

I posted on their facebook and even posted this link Open Original Shared Link which has some good information. I wanted to give them the benefit of the doubt, maybe they really don't know, they are a pretty small pizza place after all. so far no response but they haven't deleted my post either, maybe they haven't seen it yet who knows. but it's just so frustrating to never know if a restaurant is being honest when they say gluten free.  I try to not be a jerk about my disease but sometimes it just gets upsetting how few options there are. I almost wish I lived somewhere a bit more gluten free friendly.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliebove Rising Star

I had a meal in a pretty fancy restaurant (can't remember the name) and many of the offerings were listed as gluten free. I asked them specifically, as they had several fried things, if their french fries... which were listed as gluten-free... were fried in the same oil as the other fried things they offered and they told me they were. I told them that they needed to take the listing that their fries were gluten-free OFF the menu as they were NOT gluten-free. As far as I know, they never did.

 

I did go to a local online review site and tell my story so that maybe other celiacs would see it!

We ate at a steak house once.  I didn't ask about the steak because I can't digest steak.  I did ask about a hamburger patty and asked what all else we could have.  Just a salad with no dressing and a plain baked potato.  Woo hoo!

kittty Contributor

A lot of restaurants are labeling themselves "gluten-free friendly" on sites like Urbanspoon to cash in on the gluten-free craze and get more customers in the door. I went through the list of gluten-free friendly restaurants on that site (it's a separate category if you've never looked at it), and was shocked by the number of restaurants that I know aren't gluten-free friendly at all. There were a couple of Italian restaurants on the list that I wasn't familiar with, but I went through their menu and there wasn't a single gluten-free option offered, nor was there a note on their websites about how to order something without gluten. Just a scam.

mommida Enthusiast

We have a piazza place by us, and they totally understand and do the gluten free right!  So a HUGE shout out for Momma Maria's in Brandon/Ortonville, Michigan. :wub:

 

I have even heard the owner talk to his employee about NEVER putting a boxed gluten free pizza in the same warming/wait station with the normal pizzas. :D

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,859
    • Most Online (within 30 mins)
      7,748

    Lesley-Anne
    Newest Member
    Lesley-Anne
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.