Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free 4Wks Feel Like I Am A Bottomless Pit Now.


1stcrzyday

Recommended Posts

1stcrzyday Newbie

Hello, Just wondering if anyone is experiencing constant insatiable appetite.  I have been diagnosed with Celiac's been gluten-free for 4 wks now.  All I want to do is eat.  Even after eating big meals, still want to eat especially something sweet.  ugghhh.  Before Celiacs I ate pretty healthy didn't eat a lot of bread, cakes etc.  but now I feel like I need to eat every 1hr or so.   Definitely putting weight on, even though still active and have actually upped my work out intensity.  Seems like food is constantly on my mind.  I was wondering if anyone else has dealt with this or is this just a mind game, now I know I can't have certain things so my brain is focused on food period..  Thanks for any comments. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ndw3363 Contributor

When I finally went gluten-free, I was extremely underweight (which is what brought me to the diagnosis in the first place).  After I went gluten-free, I felt the same as you are describing.  My body was FINALLY absorbing what I was putting it in and it couldn't seem to get enough.  I rewarded it with a treat or two, but be aware that you are healing...a lot of us now have more intolerances than we did initially.  Keep the snacks and meals healthy and with whole foods (avoiding processed stuff whenever possible) - you will level off after a bit.  I gained weight initially as well, but I desperately needed to.  Now that I'm at a weight I like, I don't have a problem keeping it steady.  I eat a mostly protein/veggie diet with very little carbs/sugar - workout 3-4 times per week.  I do a lot of weight training now which has kept my metabolism humming along. 

 

I also found that when I first went gluten-free, my body was craving everything it couldn't have - and I mean CRAVING!!  But I fought back and didn't give in - in time that will stop.  Beware though that when (not if unfortunately) you get your first heavy accidental glutening, you will crave all of that bad stuff again (a lot of us have even had extremely vivid dreams about it).  That's actually one of the ways I know I've ingested a tiny bit of accidental gluten - I only have dreams of eating pizza or the like when that happens...so weird!  Welcome to the club and happy healing!!

nvsmom Community Regular

I was hungrier the first few months too and I let myself indulge. Unlike ndw3363, I was a bit above my ideal weight and I ended up losing weight (about 15lbs) in the first few months, which I can only attribute to the inflammation and swelling going away.

 

After about 3 or months my appetite fell right off.  I eat a LOT less now than I did before. I usually only eat off a salad plate... and I appear to be gaining weight.  LOL :rolleyes:

 

My advice would to be aware of your cravings and try not to satify them with junk food everytime. A sweet fruit smoothy might do it for you one time, or an apple with peanut butter.... I know, I know, easier said than done, right?  LOL

 

Best wishes.

june27 Apprentice

I have been gluten-free for just over a year.  I have been slightly over my ideal weight for the past 5 years or so, and that has not change since my diagnosis/diet change.  During the first few months of gluten-free, I was ravenous!!  I would eat a big dinner, and then an hour or two later, would eat a large "snack".  As I was eating this much, I was not gaining any weight, so I just assumed that my body needed more nutrients.  After I began to heal, my appetite leveled out.  I am still happy to graze most of the day, but I don't feel like I am starving myself if I don't :)

Takala Enthusiast

Try eating a bit more "good" fats and proteins, less "white" carbs and starches, and adding a calcium/magnesium/D mineral supplement and a gluten free vitamin supplement with the B complex.   Fats can be used to satiate hunger, and they provide a slow burning fuel, and when combined with the proteins will not spike your blood sugars, so you don't get into the dreaded spike/crash/burn blood sugar loop. 

 

It's not imaginary, some of us are more carb- intolerant than others. 

JNBunnie1 Community Regular

Try eating a bit more "good" fats and proteins, less "white" carbs and starches, and adding a calcium/magnesium/D mineral supplement and a gluten free vitamin supplement with the B complex.   Fats can be used to satiate hunger, and they provide a slow burning fuel, and when combined with the proteins will not spike your blood sugars, so you don't get into the dreaded spike/crash/burn blood sugar loop. 

 

It's not imaginary, some of us are more carb- intolerant than others. 

What she said. :rolleyes:

 

Also, certain foods are more filling than others. Chicken thighs with sweet potato and broccoli

will keep you full longer than chicken breast with white rice and a salad, for example. Can you

say pot roast? :D

Adalaide Mentor

I was constantly hungry after I went gluten free. This eventually leveled off. I also find that if I get glutened I will be constantly hungry for about 2 or 3 weeks after. I get the most unbearable stomach pains unless I am pretty much always munching away on something. If that happens I try to keep healthy(ish) snacks available so I have something to eat that won't make me look like I ate a blimp. I super crave the sweets though, and will do something like pull out a cookie a day from my freezer or something which I made myself and I figure won't break the calorie bank.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



1stcrzyday Newbie

Thanks everyone, really glad I am not totally losing my mind.  Hopefully my appetite will level out here soon,  just really frustrating for now.  Will try more of the good fats and lots of healthy snacks to munch in the meantime.   Thanks again...

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.