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Celiac And Align Probiotic Does Anyone Take It? Side Effects?

Leapoffaith

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Leapoffaith Newbie
Leapoffaith
Posted

Does anyone use the product Align Probiotic?  Does it help?  Any side effects?

 

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Kate79 Apprentice
Kate79
Posted

I've used it and have not noticed any side effects.  I don't take it regularly becuase it's so expensive, but if I'm having stomach issues due to gluten contamination (or anything else) I've found it can be helpful to take for a week or two afterward.

peeptoad Apprentice
peeptoad
Posted

I've taken Align 2 or 3 times in the past and, for me, it is like an expensive placebo. It did absolutely nothing at all to help, but I also experienced no side effects.

Leapoffaith Newbie
Leapoffaith
Posted
  • Author

Thank you!  I appreciate the advice.

Smylinacha Apprentice
Smylinacha
Posted

In took it but didn't like how expensive it was and not sure if it even helped. Went through one box and it cost $40. I am on Culturelle now for 2 weeks and it is a little cheaper and my bowel movements are regular ... No D or C anymore.

dilettantesteph Collaborator
dilettantesteph
Posted

The admin posted this a little while ago: https://www.celiac.com/articles/23214/1/Can-Bifidobacterium-infantis-Natren-Life-Start-Strain-Help-Active-Celiac-Disease/Page1.html

 

It talks about a study of celiacs who took the organism that is in Align, but in the probiotic Natren LifeStart 2.  There were only 22 in the study, and 10 took the placebo.  There is a link to the study at the bottom of the post.  They took the equivalent of 4 capsules of Align with each meal.  They were also eating 12 g. gluten a day.  

 

I have been having minor symptoms from what I think is trace gluten contamination.  I am very sensitive and pretty well have problems with most things that I don't grow myself, and I basically ran out of my own food this winter.  I decided to give it a try.

 

After one day of one capsule a day I was no better, after two days I seemed significantly better, and now after three days, I think that I have improved further.  This is so far the only thing that has ever helped besides ridding my diet of trace gluten.  I also take probiotics in the form of yogurt with live cultures, but those are made with different organisms.  I have also taken BioK, which also has different organisms, but the same as the yogurt culture I use.  Mind you, I have only tried it for 3 days, and it could easily be due to something else, but I haven't changed my diet at all.

 

Natren LifeStart seems to be a less expensive source of the same microorganism, but my local Vitamin Shoppe is so far out of stock.  The smallest bottle of that runs around $15 and seems worth a try.

 

If you decide to try it, I hope it works for you.

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
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      Son's legs shaking

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      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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