Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Neck Pain Related To Celiac?

home22

Recommended Posts

home22 Newbie
home22
Posted

Hey all,

 

Just months ago I've been diagnosed with hiatus hernia, because I had very bad heartburn, I managed this symptom with new diet. Whole life I've been very fit, I'm 19 years old now male. Since 7 years old I played basketball up until 17, had to stop because of neck pain. I went to plenty of docs, had xrays, and other scans and all showed NOTHING, I had massage therapies which haven't helped at all. And doctors up until now don't know what is it.

 

I also have bowel movement problems since 18 years old. I have diarrhea 1-2 a month, but mostly I'm constipated and need to strain to have bowel movement.

 

Is it possible that all those symptoms are related to celiac disease ? by the way my grandmother was diagnosed with Celiac disease about 20 years ago. 

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Tiredsean Explorer
Tiredsean
Posted

It can be related to celiac or other food intolerences.I myself am fighting to discover why I have muscle aches and pains neck included.Neck pain can definately be a symptom of celiac or other intolerences as well.When your stomach is at its worse is your neck worse at the sametime?

home22 Newbie
home22
Posted
  • Author

It can be related to celiac or other food intolerences.I myself am fighting to discover why I have muscle aches and pains neck included.Neck pain can definately be a symptom of celiac or other intolerences as well.When your stomach is at its worse is your neck worse at the sametime?

 

Well I don't have stomach problems for the past good month now, but bowel problems and neck pain are killing me ( but no cramping, abdominal pain ) and neck pain come and goes, sometimes it starts in the morning, sometimes when I walking in the town. 

 

By the way I just tried Biocard celiac test kit and it showed positive results for Celiac. Not sure if its reliable. 

Smylinacha Apprentice
Smylinacha
Posted

I used to have neck pain and tightness in my right shoulder, traveling up my neck which would then turn into a headache. Been going on for years. I went to osteopaths, had exrays that came out fine, neurologists found nothing, finally ended up in pain management for it. At the same time I had other symptoms...stomach problems, lots of constipation, some D, weight loss (although I could eat like a pig), hair loss, hypothyroid. Never equated those symptoms with the neck pain and headaches until I joined this forum and talked to my gastro. Since going gluten free, neck pain and headaches are gone. Just the other day my husband said that I do not complain about my neck anymore. Only problems I am still having is not sleeping well and trying to put more weight on. So I think pain plays a part with celiac and gluten intolerant people.

home22 Newbie
home22
Posted
  • Author

I used to have neck pain and tightness in my right shoulder, traveling up my neck which would then turn into a headache. Been going on for years. I went to osteopaths, had exrays that came out fine, neurologists found nothing, finally ended up in pain management for it. At the same time I had other symptoms...stomach problems, lots of constipation, some D, weight loss (although I could eat like a pig), hair loss, hypothyroid. Never equated those symptoms with the neck pain and headaches until I joined this forum and talked to my gastro. Since going gluten free, neck pain and headaches are gone. Just the other day my husband said that I do not complain about my neck anymore. Only problems I am still having is not sleeping well and trying to put more weight on. So I think pain plays a part with celiac and gluten intolerant people.

 

Same like me, well, looks like I'll need get another endoscopy apppointment...

GFinDC Veteran
GFinDC
Posted

Hi Home22,

 

Your symptoms could be related to celiac disease.  There are many celiac disease symptoms, and many of them are not in the gut.  Some people have no gut symptoms at all in fact.  They call that "silent celiac".

 

You can get an endoscopy with 6 or so biopsy samples to test for villi blunting in the small intestine.  You can also get blood antibodie tests done.  Don't go gluten-free until the testing is complete though or the results will be affected.

 

Helpful threads:

FAQ Celiac com
https://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101
https://www.celiac.com/forums/topic/91878-newbie-info-101/

What's For Breakfast Today?
https://www.celiac.com/forums/topic/81858-whats-for-breakfast-today/

home22 Newbie
home22
Posted
  • Author

Blood test done (EMA) in hospital today and it's back positive. Having endoscopy in a couple weeks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.