Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Normal For Doctors To Discourage Celiac Testing?


MIgrainePosterChild

Recommended Posts

frieze Community Regular

can you just oats?? McCains oats are from Ireland and are considered not CCd.

Cookinpapa, the only reason oatmeal is important to me is because it seems to dramatically reduce my itching from my psoriasis (dh?). It's a horrible deep seated impossible to satisfy itch that I get all the time. The Aveeno killed the itch!! So yeah, I hope to be able to find something that has oatmeal in it that is gluten-free.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



learning2cope Apprentice

can you just oats?? McCains oats are from Ireland and are considered not CCd.

What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

pricklypear1971 Community Regular

What does "can you just oats??" mean? Lol I'm talking about hand lotion or cream to help with my severely intensely itchy psoriasis or whatever it is. :) The colloidal oatmeal really helps with the severe itching.

Oatmeal never helped mine, but that doesn't mean it doesn't help you. I used generic Aveeno packets as a body scrub - I'd pour it on my hand and scrub all over. For years. Go figure. I've never heard of a certified gluten-free oat cosmetic product.

Anyway, to stop the itching the best thing for me was ice packs. I use Vanicream and it works miracles as far as staying on the skin and moisturizing, which leads to decreased itching. I'd also add a layer of Vaseline at the worst times to stop the sores from cracking. Coconut oil is probably a good alternative. I used jojoba oil for a long time; however, it seemed to burn the sores a bit at times. I had to repeat applications of whatever i used several times a day, especially when the blisters swelled and popped. Others have luck with topical numbing creams (never tried it but would if I had another flare). Lots of hints on the DH board.

learning2cope Apprentice

Hmm those sound like good ideas! Thanks!! Right now I'm having severe itching in certain spots on my right hand. I've already torn the skin open (GRR) so now it's going to burn with whatever I put on it. Then it'll scab over, blah blah you know how that goes. So I think I might look into numbing creams. Do you have any specific recommendations for those? I'm not even sure I know where to look for such products. I know there is anbesol and orajel for the mouth but I'm not sure I've heard of actual creams for skin.

pricklypear1971 Community Regular

Look on the DH board. I think it's generic walgreen's brand - whatever it is.

I would use ice packs when it was at the worst. Helped reduce swelling and pain and itch. Vaseline would stick to the skin when it was cracking and weeping. I hated that stage. Hurt to move.

learning2cope Apprentice

Ok, thanks! I'll look it up.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    2. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      1

      New issue

    4. - knitty kitty replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Blood Test for Celiac wheat type matters?

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      40

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,085
    • Most Online (within 30 mins)
      7,748

    kk007
    Newest Member
    kk007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      I agree.  If someone has Barrett's Esophagus, at least here in the UK, as I understand it under normal circumstances a PPI needs to be taken long term (or similar medication).  I have two friends with this.  The PPI it does have side effects but they still have to take it.  
    • knitty kitty
      Do talk to your doctor about making changes to your medication.    I'm not a medical doctor.   I'm a microbiologist.  I studied nutrition before switching to microbiology because I was curious what vitamins were doing inside the body. I would hate to give advice that jeopardizes your health, so do discuss things with your doctor.   
    • knitty kitty
      @Jmartes71, Sorry you've been feeling so poorly.   Are you taking any medication to treat the SIBO?   Are you taking any Benfotiamine?  Benfotiamine will help get control of the SIBO.  Thiamine deficiency has symptoms in common with MS. Have you had your gas appliances checked for gas leaks and exhaust fume leaks?  Carbon Monoxide poisoning can cause the same symptoms as the flu and glutening.  Doctors have to check venous blood (not arterial) for carbon monoxide.  Are other inhabitants sick, or just you?  Do they leave the house and get fresh air which relieves their symptoms?  
    • knitty kitty
      European wheat is often a "soft wheat" variety which contains less gluten than "hard wheat" varieties found in the States.   In European countries, different cooking methods and longer  fermentation (rising or proofing) times allow for further breakdown of gluten peptides. Wheat in the States is a blend of hard and soft wheat.  Gluten content can vary according to where the wheat was grown, growing conditions, when harvested, and local preference, so a blend of both hard and soft wheat is used to make a uniform product.   I moved around quite a bit as a child in a military family.  I had different reactions to gluten in different areas of the country every time we moved.  I believe some wheat breeds and blends are able to provoke a worse immune response than others.   Since European soft wheat doesn't contain as much gluten as American wheat, you may try increasing your intake of your soft wheat products.  A minimum of ten grams of gluten is required to get a sufficient immunological response so that the anti-gluten antibodies leave the intestines and enter the bloodstream where they can be measured by the tTg IgA test.  Your whole wheat bread may only have a gram of gluten per slice, so be prepared...  
    • trents
      From my own experience and that of others who have tried to discontinue PPI use, I think your taper down plan is much too aggressive. It took me months of very incremental tapering to get to the point where I felt I was succeeding and even then I had to rely some days on TUMS to squelch flareups. After about a year I felt I had finally won the battle. Rebound is real. If I were you I would aim at cutting back in weekly increments for two weeks at a time rather than daily increments. So, for instance, if you have been taking 2x20mg per day, the first week cut that down to 2x20mg for six days and 1x20 mg for the other day. Do that for two weeks and then cut down to 2x20mg for five days and 1x20 for two days. On the third week, go 20x2 for four days and 20x1 for 3 days. Give yourself a week to adjust for the reduced dosage rather than reducing it more each week. I hope this makes sense. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.