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Do I Have Celiac Disease...or Is It Just Gluten Sensitivity


ArianG

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ArianG Newbie

I am currently 19 years old. I live a pretty normal life but my stomach has been distended for quite some time. My stomach sticks out as if I was a pregnant female and its been like this since an early age. It has caused me some anxiety problems and has even gotten me on medication which I am now tapering off. I work out 4-5 times a week at a local gym nearby my house and i am in complete good shape everything is fit and fine.. everything except my stomach. I have gotten an endoscopy and a colonoscopy and the results were that i had chronic gastritis. I was given a list of foods to eat and not to eat but that didnt really seem to work.. or maybe i didnt follow it right? But i am still concerned and would like to ask if they could find out if i have celiac disease or gluten sensitivity through these two tests? my stomach extends out alot I dont have much pains and no diarrhea or any of the many symptoms im just gassy and my stomach is really out there. I appreciate any responses and would love to receive some help. Thank you.

  • 1 month later...

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beeluxi Newbie

Maybe try removing gluten from your diet and see how you react? If you find any relief it would be worth it. Plus I think you should mention your concern to your doctor. It couldn't hurt. Hope you feel better soon! :)

GFinDC Veteran

Hi Arian,

 

If you can get the blood antibodie tests done you should do that before trying the gluten-free diet.  The blood test are a simple procedure but you may have to wait a few weeks for the results.

Deaminated Marcus Apprentice

Hi Arian,

Maybe you should ask your doctor to send you for an abdominal ultrasound.

I hope you find the cause. 

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    • Scott Adams
      Based on those results alone, it’s not possible to say you have celiac disease. The test that is usually most specific for celiac, tTG-IgA, is negative in your results, and the endomysial antibody (EMA) is also negative, which generally argues against active celiac disease. However, your deamidated gliadin IgA is elevated, and your total IgA level is also high, which can sometimes affect how the other antibody tests behave. Another important factor is that you were reducing gluten before the test, which can lower antibody levels and make the results less reliable. Because of that, many doctors recommend a gluten challenge (eating gluten regularly for several weeks) before repeating blood tests or considering an endoscopy if symptoms and labs raise concern. It would be best to review these results with a gastroenterologist, who can interpret them in context and decide whether further testing is needed.
    • trents
      Since you compromised the validity of the antibody testing by experimenting with gluten withdrawal ahead of the testing, you are faced with two options: 1. Reintroduce significant amounts of gluten into your diet for a period of weeks, i.e., undertake a "gluten challenge". The most recent guidelines are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat-based bread) for at least two weeks leading up to the day of testing. Note: I would certainly give it more than two weeks to be sure. 2. Be willing to live with the ambiguity of not knowing whether gluten causes you problems because you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). There is no test for NCGS. Celiac disease must first be ruled out and we have tests for it. Celiac disease has an autoimmune base. NCGS does not. GI symptoms overlap. In the early stages of celiac disease, other body systems may not be showing stress or damage so, symptomatically, it would be difficult to distinguish between celiac disease and NCGS. Both conditions require elimination of gluten from the diet for symptom relief. Some experts feel that NCGS can be a precursor to celiac disease.
    • suek54
      Hi Kayla Huge sympathies. I was diagnosed in December, after 8 months of the most awful rash, literally top to toe. Mine is a work in progress. Im on just 50mg dapsone at the moment but probably need an increased dose to properly put the lid on it. As you have been now glutened, I wondered whether it might be worth asking for a skin biopsy to finally get a proper diagnosis? Sue  
    • MicG
      I had been eating reduced gluten until about 3 days before the test. I did realize that wasn’t ideal, but it was experimental to see if gluten was actually bothering me. One slip up with soy sauce and it was quite clear to me that it was, lol. 
    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
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