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Do I Have Celiac Disease...or Is It Just Gluten Sensitivity


ArianG

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ArianG Newbie

I am currently 19 years old. I live a pretty normal life but my stomach has been distended for quite some time. My stomach sticks out as if I was a pregnant female and its been like this since an early age. It has caused me some anxiety problems and has even gotten me on medication which I am now tapering off. I work out 4-5 times a week at a local gym nearby my house and i am in complete good shape everything is fit and fine.. everything except my stomach. I have gotten an endoscopy and a colonoscopy and the results were that i had chronic gastritis. I was given a list of foods to eat and not to eat but that didnt really seem to work.. or maybe i didnt follow it right? But i am still concerned and would like to ask if they could find out if i have celiac disease or gluten sensitivity through these two tests? my stomach extends out alot I dont have much pains and no diarrhea or any of the many symptoms im just gassy and my stomach is really out there. I appreciate any responses and would love to receive some help. Thank you.

  • 1 month later...

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beeluxi Newbie

Maybe try removing gluten from your diet and see how you react? If you find any relief it would be worth it. Plus I think you should mention your concern to your doctor. It couldn't hurt. Hope you feel better soon! :)

GFinDC Veteran

Hi Arian,

 

If you can get the blood antibodie tests done you should do that before trying the gluten-free diet.  The blood test are a simple procedure but you may have to wait a few weeks for the results.

Deaminated Marcus Apprentice

Hi Arian,

Maybe you should ask your doctor to send you for an abdominal ultrasound.

I hope you find the cause. 

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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