Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question On Symptoms


HumanDecency

Recommended Posts

HumanDecency Contributor

So, I have been diagnosed but have been experiencing some strange side effects. And I wanted to see if anyone could relate and maybe offer suggestions on how to alleviate such symptoms.

 

I have been gluten free for 3 weeks now. (At least trying to be. I'm a little more keen on CC now.) I had a pretty bad reaction to what I think was corn pasta the other night but otherwise the symptoms have just been fatigue and nausea.

 

But I have been getting pressure/pulsating feeling on the left side of my head. It's more notable when I lift something heavy or lay on it. It doesn't happen all the time.  Of course it worried me, but urgent care didn't seem to be up in arms about it. I can't get into my doctor and my specialist date is on the 23rd. It's quite worrisome to be so uncertain.  Anyway, so this feeling is funny. Almost like that feeling you get when you turn your head and your neck pops. Occasionally this will lead to intense fatigue and nausea. My arms feel week. My stomach hurts. I am just really wiped out. I feel like I could eat for days but I'm not really hungry (unsure how to really articulate this feeling). 

 

Is this normal for recovery? Or is it more likely that I am being CC or something completely different? If this is normal how do you alleviate such symptoms? Just ride the storm out? 

 

Thanks for your advice.

 

Jesse

 

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Maybe your sugar is dropping on you.  Check to see if eating some fruit when this happens, even if not hungry, resolves the issue. My hunch is that this is what is happening.  When you adjust your diet, your body needs to adjust to the change.  

 

Good luck with this.

 

Colleen 

HumanDecency Contributor

Maybe your sugar is dropping on you.  Check to see if eating some fruit when this happens, even if not hungry, resolves the issue. My hunch is that this is what is happening.  When you adjust your diet, your body needs to adjust to the change.  

 

Good luck with this.

 

Colleen 

Thanks, I will check that out. I've been trying to be vigilant about sugar intake. Most of the gluten free products I have been finding have a lot of sugar. Maybe I'll go get a blood sugar tester this evening. I have been meaning to do that anyway.

 

Thanks for taking the time out to respond to me. It's vastly appreciated. 

GF Lover Rising Star

Gluten free products usually have a lot more sugar than there gluten equivalents.   You may have inadvertently been eating more sugar then you think, then dropping.  You should try and eat more whole foods rather than just substituting.   This will also help you heal quicker.  

 

Hope this works out for you, we are always here for help.

 

Colleen 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748

    Mary Pack
    Newest Member
    Mary Pack
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.