Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Results

SeekingSarah

Recommended Posts

SeekingSarah Apprentice
SeekingSarah
Posted
Deamidated gliadin peptide antibody IgG ELISA: <4.9 EU/mL Mine: 0.6
Deamidated gliadin peptide antibody IgA ELISA: <6.1 EU/mL  Mine: 1.3
Anti-human tTG IgA ELISA: <10.3 U/mL Mine : 1.0
Anti-endomysial IgA IFA: Negative Negative
Total serum IgA: < 3 years: 8-220 mg/dL; 3-13 years: 41-395 mg/dL; >13 years: 44-441 mg/dL Mine: 470 (or 410 ugh can't make it out clear enough to be confident) I realize either number indicates there was enough serum in my blood to make the other results accurate.
 
My SED Rate was 65 range was 0-20.
 
He didn't redo my B-12 and Vit D as I know I was already very deficient in both and have been on B12 shots and 15,000 weekly D, I am to rest with NP on those in a week after my last Vit D dose.
 
Next appt with GI is the 29th.
 
Appointment with dermatologist to get skin rash checked out is May 16th.
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sisterlynr Explorer
sisterlynr
Posted

You know the SED indicates inflammation and mine was high like that.  Just be sure the dermatologist takes a biopsy peri the lesion for DH.  I had 2 dermatologists take biopsies of the lesions and of course, did not have the dx of DH.

nvsmom Community Regular
nvsmom
Posted

It looks like you have non-celiac gluten intolerance (NCGI) since you have problems with gluten abut negative tests.  As I understand it, and I'm not a medical professional, NCGI can cause inflammation too.... could be something to talk about to the doctor.  Best wishes.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,883
    • Most Online (within 30 mins)
      7,748
    Trevor smith 2
    Newest Member
    Trevor smith 2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      @trents I do like the idea of the shake!  yes. I was expecting to have all my blood tests that were celiac related to be positive. I guess I’m confused about why they wouldn’t be. Nothing else in my blood work even gave a clue as to helping me either. All my vitamins were good other than D and that’s everyone in my state.    @RMJ how impressive to be able to make all those baked goods! I’ve been tasting some gluten free items. There is one thing I found that’s good and it’s Siete Cinnamon churro chips put over ice cream with chocolate syrup . Tastes like fried ice cream!  I’ve also noticed so many more things have a “gluten free” symbol on them. Restaurants mostly but also a lot of packaging. Maybe it’s always been there but obviously since my blood tests I’ve noticed.  I really hoped I would find someone who like me was sick a few weeks prior to getting their  TTG test and it was raised for a viral reason, or it’s a “fluke” or something else.      
    • RMJ
      Virus, celiac disease or both?

      By RMJ · Posted

      I can’t imagine eating 4-6 slices of bread per day, either.  You just need wheat, it doesn’t have to be bread and it doesn’t have to whole wheat. If a piece of cake or a doughnut is about the same size as a slice of bread it’s probably roughly equivalent. Or you could do what Trents suggests and just buy powdered gluten. Gliadin X can help by “digesting” small amounts of gluten contamination.  You would NOT want to take it while eating bread/cake/doughnuts in preparation for an endoscopy because it could make your body react less. I have finally figured out how to make a number of gluten free baked goods. Cakes, cream puffs . . . My neighbors know they are gluten free but say they would never guess otherwise.
    • trents
      Virus, celiac disease or both?

      By trents · Posted

      @Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test results. If the idea of eating 4-6 slices of wheat bread daily to get 10g of gluten is repulsive to you then go the health food store and buy powdered gluten, weigh it out on a food scale, and make shakes with it. Many report that Gliadin X helps them in a significant way to ward off unpleasant reactions to minor gluten exposure, such as you would get in a cross contamination situation. It will not work to prevent reactions when used with large exposures to gluten.
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      Hi @RMJ,   Thank you for you input. I really appreciate all view points on this, more than you know.  Maybe I’ve done too much research. One thing I read would point to yes and then along comes all these variables that convinces me that my levels were high because of having a virus.  I don’t like bread or pasta that much but seriously love baked goods.  I’m scared to give those up “for no reason”  I’m also scared to be doing damage to my body.    I’m stuck in a situation where I’m scared and confused either way.    It’s hard for people with silent celiac because you don’t “feel” like you are doing the right thing.    I did see some advertisements on here about Giliad X? Is that a supplement for gluten and is insulin for diabetes? 
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      Thank you @trents!    I have been going back and forth on some gluten free some days and some days not trying to see if there is any reaction to how I feel.    As much as I don’t want to I think given the blood test not being 100%. It’s fair to say an EGD is necessary.  I do think before I go through with that I would run another TTG IGA if my doctor would approve that. If levels are the same, I have no choice. 😔    In the mean time I’m going to enjoy gluten. The biggest problem I have is the thought of eating 4-6 slices of bread per day. That’s crazy! There has to be something comparable. Possibly an “average” of about that per day? Is there any lists of foods out there that are trade offs? (4 slices is = 1 donut) 
×
×
  • Create New...