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Problems With Dairy?


ashesmom

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ashesmom Rookie

My daughter was diagnosed with Celiac a year and a half ago...She is 6. Lately she has been having tummy aches again, but I know she's not sick....It is just like it was when we first found out, but not as bad....Anyhow, I racked my brain thinking about what she could have possibly been consuming that has gluten in it, but can not come up with anything.....But she does eat a lot of dairy. She has never had problems with dairy before, even right after her endoscopy. Is there a way she can be tested for lactose intolerance, and is that common with Celiacs?

 

-Katie


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Lisa Mentor

Initially gluten and dairy are offen suggested to eliminate.  And when the villi are healed, dairy can be introduced successfully. And many here have recognized additional intollerances over time.

 

I am sure you have already reviewed her possible gluten intake (perhaps school or a friends house) and then, go very dairy light for a couple of weeks.  Take one step at a time, so if there is a resolve, you can pin point the problem.

 

Too much dairy for me will make me very uncomfortable, but does not cause me pain. But I know that I cannot eat what I used to eat.  I'm dairly light. Maybe, I have a mild intolerance.

 

And yes, there are allergy tests, but I am not familiar with tests  for children.  Others will post.

 

I have often admired parents with children that have Celiac, or any other "issue".  It is truely a devotion above most others.

Deaminated Marcus Apprentice

Dairy products like ice cream and cottage cheese and yogurt have alot of other ingredients mixed in them.

There could be gluten in that list or she's reacting to some other ingredient.

Once when I switched yogurt brands to one that had a lot more ingredients, my pain returned.

 

She could have Lactose intolerance or a Casein intolerance or whey protein intolerance.

 

Search:  "Bovine Beta Casein Enteropathy" 

  • 2 weeks later...
GwenO Apprentice

My daughter was diagnosed with Celiac a year and a half ago...She is 6. Lately she has been having tummy aches again, but I know she's not sick....It is just like it was when we first found out, but not as bad....Anyhow, I racked my brain thinking about what she could have possibly been consuming that has gluten in it, but can not come up with anything.....But she does eat a lot of dairy. She has never had problems with dairy before, even right after her endoscopy. Is there a way she can be tested for lactose intolerance, and is that common with Celiacs?

 

-Katie

My 12 year old daughter had to go off milk - she can still eat yogurt etc.  She also gets tummy aches from eggs.  She ate both of these things before.  So not sure why, but we've switched to almond milk and things have improved dramatically.

Ollie's Mom Apprentice

Personally, I think most of the world's population has issues with dairy products (ie - breastmilk of cows that is not designed to be eaten by anything other than calves). I have read that mammals of all species tend to stop making lactase (or, at least, adequate amounts of it to digest milk) during childhood as adult mammals do not require breastmilk beyond infancy / early childhood.

My eldest is dairy free, and made great improvements once it was removed from his diet. Now, my whole house is dairy free, and my youngest (now 8 months) will never drink cow's milk.

Almond milk is a real hit around here. I also love coconut milk.

And don't worry about calcium - green leafy veggies, soy, almond milk, etc etc are all great sources of calcium. And they're easier to absorb than the calcium in cow's milk (which is designed to be absorbed by baby cows, not humans).

Ok, anti-dairy rant over. ;-)

nvsmom Community Regular

Good dairy rant.  :D  And I agree with all of it. There really is no biological need to drink a cow's breast milk. Eliminating it is worth a shot.

 

There could be another food intolerance. Corn, rice, soy and nightshades are often culprits as well as artificial colouring or sweeteners. Perhaps keeping a food and symptom  journal will help you sort out what is at fault in her diet... because I'm sure that you are not busy enough, right?  ;)

 

Best wishes. I hope you figure it out soon.

mamaupupup Contributor

Hi!  You are not alone...I have a 6.5 year old little girl who developed tummy aches over 8 months ago.  We have eliminated a TON of things and haven't found an answer yet.  Here are some things that we did discover were triggers for "big" tummy aches (she has pain all day, every day though...).  She did have a "KUB" xray which showed she was constipated and we have followed "protocol" very well on that front and still she has no relief from her pain.

 

- Ruled out gluten cross contamination (we have a dedicated gluten-free house because 3/4 of us have Celiac and we homeschool, so I know what she'd exposed to...).  We confirmed this by doing another round of bloodwork

- Ruled out parasites (like Giardia) via bloodwork

- Ruled out fructose malabsorption by doing a lengthy (2 month) low fructose diet

- Ruled out SIBO (small intestine bacterial overgrowth) by doing a breath test

- Ruled out various things through an abdominal ultrasound

- Ruled out ovarian cysts through a lower abdominal ultrasound

 

Dietary changes we've adopted:

- No cows milk.  Only goat milk products in moderation.  We rely more on coconut milk these days when a recipe calls for something of the sort.

- No grains of any kind. 

- No polyols (look up FODMAP) so no sorbitol and other "ol" ending sweeteners

- No avocado (a trigger food for her, interestingly high naturally in polyols)

- No nightshades (tomato is a BIG trigger for her).  Between going gluten-free and nightshade free the good news is she has no muscle/joint pain.

- No legumes of any kind.

 

We have pretty much adopted a paleo - type diet.

 

Things I'm still sorting out:

- Does she have an egg sensitivity?  (I did two weeks off with maybe light improvement...still deciding what to do next)

- Could she have a histamine intolerance?

- Is her gut flora ok?  (We have added in sauerkraut and tons of probiotics...)

- Does she have an anatomical abnormality?

 

xoxo to you and your little girl...hope we both find answers soon!!!


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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
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    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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