Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Been For Allergy Tests


jhol

Recommended Posts

jhol Enthusiast

so spent the day at the hospital, they did some allergy tests there and then and every one was negative.

 

im getting so fed up with all these negatives, im starting to think im making it all up!!!

 

ive got to go back and have some more done, some blood tests and then the results.but im not holding out much hope. i dont understand that i can have symptoms- they,re all written down in a book and i even retested some of them last week just to be sure. the results were the same.

 

i asked the doctor what happens if they all come back negative and she just shrugged her shoulders and said " your not allergic to them"

 

so am i going in the wrong direction with this? could there be another reason im having problems with food rather than having an allergic reaction to them?

thanks..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

so spent the day at the hospital, they did some allergy tests there and then and every one was negative.

 

im getting so fed up with all these negatives, im starting to think im making it all up!!!

 

ive got to go back and have some more done, some blood tests and then the results.but im not holding out much hope. i dont understand that i can have symptoms- they,re all written down in a book and i even retested some of them last week just to be sure. the results were the same.

 

i asked the doctor what happens if they all come back negative and she just shrugged her shoulders and said " your not allergic to them"

 

so am i going in the wrong direction with this? could there be another reason im having problems with food rather than having an allergic reaction to them?

thanks..

You could just be intolerant to them.

jhol Enthusiast

You could just be intolerant to them.

hi,

could you just explain the difference between allergy and intolerant, if you can. does that mean intolerant cant be tested at all. is there a chance they could find something in the blood tests rather than the pinprick tests?

soz if i sound really dumb, having a bit of a stress out at the moment..  

bartfull Rising Star

Yeah, the allergy tests will only test for allergies (the kind that give you anaphalaxis). They aren't even all that accurate. There are not currently any tests available for intolerances. The only way to find out what you're intolerant to is an elimination diet. Takes a long time to figure it all out, but if you already have an idea of the foods that bother you, cut them out completely for several weeks. Once you're feeling better, add back one at a time and see if you react.

 

Some foods can be grouped together. Nightshades (potatoes, tomatoes, peppers, and eggplant) - if you're intolerant to one, odds are you are intolerant to them all. BUT - it MIGHT be that you can eat some but not all. I can't eat things high in salicylates for example. Some nightshades are high in sals, so I might be able to eat some but not all.

 

What I did was drop down to 11 foods I knew I could eat, then started adding things. And for a while, I was able to add some things without a problem. Then I got glutened and it set me back to square one. I am holding out hope that eventually I will get over some of these additional intolerances. I hope the same for you. :) The longer you are gluten-free, the more likely it is that these other foods will stop bothering you. (They never said this would be easy) :lol:

Juliebove Rising Star

There are many reasons why certain foods could cause you problems.  If the foods are raw fruits or vegetables or nuts, and your throat or tongue gets itchy, it could be OAS (oral allergy syndome).  With this your body mistakes the food for a pollen.  If you do have this, you may be able to eat the foods when it is not allergy season or you may be able to cook them. 

 

GERD can cause you to not be able to eat some foods.  You might get the typical heartburn, you may find yourself clearing your throat a lot, you may have stomach pain.

 

Arthrits can cause you to have trouble with wheat and nightshades.  You could have joint pain when you eat these.

 

You could have food intolorances aka IgG alleriges.  Although there are tests for these, the tests are controversial.  My first two were done via a blood test by two different Naturopaths.  The tests are not covered by insurance and are very expensive.  My last one was a hair test.  I found it on the Internet.  Although people have poked fun at me for having the test done for my daughter and me, I do believe in it.  That test uncovered oats and rye for me when previous tests had not.  Also mint and some herbs.  So for me it was really worth the money.  Also uncovered flax for my daughter.

 

The thing about food intolorances is that they often give you a delayed reaction and a variety of symptoms.  For my daughter and me, those symptoms might be:  Itchy skin, hives, rashes.  Upset stomach.  Could be pains, the big D or chronic big D.  Could be an itchy, watery, stuffy nose.  We used to go through Kleenex like mad!  Not any more.  And some things cause us to get a weird, weepy/seepy nosebleed.  It's like a runny nose with blood mixed in.

 

If you can't find someone to test you, you could try keeping a food journal but...  This really only works if you have only one or maybe two foods that are a problem.  If you have mulitple foods, it can be super hard to ferret them out.

GFinDC Veteran

Hi Jhol,

 

Allergies are a result of an IgE antibody reaction.  The tests for them are only related to those IgE reactions.  there are also other types of antibodies that can cause reactions, such as IgG and IgA etc.  The immune system is pretty complex and works really well.  Or we'd all be dead.  There is also a separation by what they call the adaptive immune system and the innate immune system.  People with NCGI may have an innate immune reaction vs an adaptive immune reaction (IgA, IgG, IgE).

 

If you are NCGI there are no tests for that.  They (doctors) didn't believe it existed until last year.  Now some of them do at least.  But there is not much really known about it yet.

 

Non-celiac wheat sensitivity article
https://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

Innate immune response in AI diseases
https://www.celiac.com/articles/23149/1/Gliadin-Triggers-Innate-Immune-Reaction-in-Celiac-and-Non-celiac-Individuals/Page1.html

 

SonjaRebecca Newbie

Hey, Food sensitivities CAN be tested for. I was tested last summer when I was seeing a holistic doctor for my stomach issues because I was sick of the regular doctors not doing anything! (I have a long history with doctors not listening to me). Anywho, the name of the test was Alletess...they have a website, Open Original Shared Link That's how I found out about a longggggg list of food sensitivities I have. (To go along with me having celiac disease and being a vegan) Now I've had to get some allergy tests done because I'm still having issues with my stomach...Come to find out, I'm allergic to a lot of things too... But yeah, so there is still hope - DON'T give up! You know your own body better than the doctors...Keep pushing them! I pushed for 6 years before they finally found celiac disease! (Got lots of other diagnosis that were not right - they didn't want to listen to me...kept telling me I was stressed)...I'll stop rambling, Good luck! I hope you can figure it out!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    2. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

    3. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    4. - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.