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Help With Test Results

BSVD

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BSVD Rookie
BSVD
Posted

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?

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Ksee Rookie
Ksee
Posted

My test results were: GLIADIN (DEAMIDATED) AB (IGA)      49         range<20

                                       TISSUE TRANSGLUTAMINASE AB, IGA    10     range<4

Biopsy results were: Villous tip blunting and intraepithelial lymphocytosis and lymphoplasmacytic infiltrate suspicious with celiac sprue. Under clinical info it says: A. R/O sprue   B.  N/G

Doc said to go on gluten free diet, but I'm the type that needs to know for sure.

Can anyone help me? Maybe further testing will be more conclusive?

That is a for sure. You need to stop gluten,

BSVD Rookie
BSVD
Posted
  • Author

That is a for sure. You need to stop gluten,

Thank you so much for your reply:) I am feeling alone in all this. I have stopped gluten, but was wondering if it was really necessary.

nvsmom Community Regular
nvsmom
Posted

Yes. You are positive on 3 out of 3 tests. It doesn't get much more positive than that.  :( Welcome to the board.

 

There is a lot of info around here so look through the threads. Ask questions or just vent. the people around here are very helpful and encouraging. And hang in there... the first few weeks are often the hardest, mentally and physically.

notme Experienced
notme
Posted

you're not alone - this is a good place to learn how to keep yourself eating safe and healing well.  soooo....

 

welcome to the best club you never wanted to join   :blink:

Ksee Rookie
Ksee
Posted

I started feeling better very quickly, within a few days, but I have read it is different for everyone. I already knew a lot about nutrition, and healthy eating. My diet has always been simple, whole foods with simple processing if any so it was easy for me to get the gluten out of my cabinets and fridge. That could of been a reason for my rapid improvement. 

I hate eating out, for so many years it was all I could do because of my work. That is all to say, I have not had a hard time changing this one thing. I don't know yet how sensitive I will be to accidentally contacting unrecognized gluten. 

I can say the benefit of only one thing, decreased pain and digestive problems, is by itself reward enough to make any effort worth the gain. That isn't the only benefit though. I think I'm like the blindfolded person asked to describe the nature of an elephant by holding it's tail. I have a sense of something large but as yet can only hold to a thin rope.

Hang on tight, ride that elephant  :D it's gonna be great!

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    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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    • SamAlvi
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      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
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