Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Possibly Dermatitis Herpetiformis?


djs89

Recommended Posts

djs89 Rookie

I have no official diagnosis of celiac disease, but I experience symptoms similar to it. However, I'm not brave enough to have an intestinal biopsy. I haven't been adhering to a strict gluten free diet due to a lack of confirmation. I have a family history of Crohn's disease, which seems to be linked to Celiac disease. I had a celiac blood test, which came back negative. Even if I do not have celiac disease, it seems like I do have an intestinal problem of some kind. I also have typical symptoms of an autoimmune disorder, and I know that consuming wheat/gluten products makes me ill.

 

Recently I've had rashes on the back of my legs. For about two months it comes and goes, in the same area. I took pictures when it was the worst I've seen. I've never experienced this degree of a rash before, but I've always had red bumps form randomly on my chest, back and arms.

 

I recently read about Dermatitis Herpetiformis and it's connection to celiac disease. I would like to know opinions of anybody experienced with this, if this rash could possibly be that. I don't experience much itchiness however, which I read is a symptom of DH. Sorry, the images are ugly. :unsure:

 

http://imageshack.us/a/img593/3175/skin1od.webp

 

http://imageshack.us/a/img195/6315/skin2w.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



squirmingitch Veteran

There are many rashes & skin conditions associated with celiac disease & probably with non celiac gluten intolerance. But the dh rash itches like the very devil!!!! Non-stop, 24/7 & 365. If your rash does not itch then it's not dh.

djs89 Rookie

Could it be that the rash itches because people try to touch it or pick at it? I haven't touched the rash since I noticed it, and it is only mildly bothersome. I avoid scratching it because that would make it worse. I also put clay on it, perhaps that helped prevent itchiness?

tinpins Rookie

I've just been diagnosed with dermatitis herpetiformis and the condition from my personal experience  is indescribably itchy

 

This link would be good to read for clarification:

 

Open Original Shared Link

 

Here's an excerpt from the article:

 

 “All regions are liable to invasion … the face and scalp, elbows and knees, and palms and soles. The most striking symptom is the itching … in all cases violent or even intense …disproportionate in excess of the amount of eruption … a persistent itching, causing the sufferer to scratch constantly … generally present for several days before any sign of efflorescence … when the eruption is profuse, (itching, burning or pricking sensations) are intense, and cause the greatest suffering.

djs89 Rookie

Ahh, ok. Does the itchiness correlate to gluten consumption? For example is it more itchy if you eaten gluten, less itchy if you avoid it?

squirmingitch Veteran

No, it is not more or less itchy. It just itches like NUTS always. It doesn't matter if you scratch or not. It doesn't matter if you put clay on it. It's just plain HELL. It is called the suicidal itch & that moniker is in medical texts as well as the brains of we who suffer with it. Does that answer your question?

bartfull Rising Star

Look up gutate psoriasis. As a matter of fact, if you google "gutate lesions" you will see images that look very much like the pics you posted. That's not to say that's what it is, but it might be. Gutate psoriasis itches too, but not as badly as DH.

 

It sounds like you do have a problem with gluten. You may or may not have celiac, but there is a thing called non-celiac gluten intolerance that gives the same symptoms. And psoriasis is definitely associated with gluten. Stress is another factor.

 

I have psoriasis. Mine is palmoplantar pustular. It doesn't itch, it just hurts. I only get it on my hands and feet. The feet take forever to heal. At one point my hands were completely healed and my feet were finally ALMOST completely healed. Then I got glutened. My hands flared for a while, but my feet flared badly and are still a mess. As a matter of fact, my feet have started itching - not all the time, but in waves. They'll be OK for a while, then I get to itching so much I HAVE to scratch. Half an hour later it'll calm down. This happens several times a day.

 

At first I thought I might be developing DH too, especially because the rash looks different than it used to. But I now believe I have develpoed gutate psoriasis on my feet.

 

And the other day I had a REALLY bad day. Lots of things went wrong and I was totally stressed out for a while. I woke up the following morning with new pustules on my hands - lots of them. I know for certain it wasn't food that did it because my house and shop are completely free of all of my "poisons". Everything I ate was not only what I always eat, but there were no new packages involved. (It's good to read the label EVERY TIME you buy something because they change ingredients often depending on price and availability.)

 

So try to think back. What did you eat when your rash flared, and did anything happen to stress you out during those times?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



djs89 Rookie

I also thought it could be psoriasis. It can be difficult to tell, based on pictures online. It doesn't look like most of the pictures of psoriasis I've seen, but it could be that. I haven't done a gluten free diet, yet, but I have never had this kind of rash before.

cahill Collaborator

No, it is not more or less itchy. It just itches like NUTS always. It doesn't matter if you scratch or not. It doesn't matter if you put clay on it. It's just plain HELL. It is called the suicidal itch & that moniker is in medical texts as well as the brains of we who suffer with it.

 Yep , that pretty much sums it up

bartfull Rising Star

types_guttate.webp

This is a picture of gutate psoriasis.

djs89 Rookie

Yes, it could be that. Someone else in my family has psoriasis. I have small bumps under the skin of my palms also, which looks like it could be mild psoriasis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,226
    • Most Online (within 30 mins)
      7,748

    Liz mirias
    Newest Member
    Liz mirias
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.