Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Please!

bayba792

Recommended Posts

bayba792 Rookie
bayba792
Posted

My son is 8 years old and has been having a hard time with gaining weight. His dr first said that he is a picky eater and then a form of control. after many efforts of trying to help him gain weight he continued to decline. He went from 85% on the growth chart to 4%. He was admitted to the hospital in Feb. of this year due to failure to thrive. He complained about abdominal pain and was using the bathroom 45 times a day. He was in the hospital for a week only to be released saying all test came back negative. They referred him to a local children's hospital but we didn't get a visit until 2 months later. one month before his appointment I put him on gluten free diet to see if that helped and it did. His abdominal pain went away completely but he still had bathroom problems. They did the endoscope and said everything came back normal. When they did the colonoscopy he had what looked like seeds throughout his colon. They were black and white. The Dr told me that the "seeds" were stuck to his colon and she had tried to flush them out but they were stuck and she would have to scrap them off which she wouldn't do because he is a child and she didn't want to damage his colon. Needless to say she called me and said that all the biopsies came back negative and she diagnosed him with functional abdominal pain IBS!!!! WTH I know that this cannot be IBS. He has not grown in height in over 2 years, he is severally underweight 47 pounds, he is extremely weak has no energy and goes to the bathroom 20+ times a day!!! Please if anyone has any suggestions as to what I should do please help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Deaminated Marcus Apprentice
Deaminated Marcus
Posted

Welcome bayba792

 

Did the doctors do these blood tests for Celiac?

 

Total Iga
tTG-IgA
DGP-IgA
DGP-IgG

 

Good luck and keep us posted.

bayba792 Rookie
bayba792
Posted
  • Author

Welcome bayba792

 

Did the doctors do these blood tests for Celiac?

 

Total Iga

tTG-IgA

DGP-IgA

DGP-IgG

 

Good luck and keep us posted.

they said that they tested him for Celiac while he was in the hospital and it came back negative. He has gone from a healthy active boy to barely having and strength to do anything. So far his diagnosis is: Growth retardation, Weight loss, Functional Abdominal Pain IBS. They just gave me pain medication for him that he can take 4x a day and said to give him a probiotic. He is currently on Homebound medical school program because he has to have access at all times to the bathroom. His weight is exactly the same as it was in 2010. He also gets a fever every month of 102 that lasts for 3 days and then goes away. I don't know what else to do. I am going to go and get all his medical records on monday that way I can go through them. Could being gluten free for a month have affected his endo?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,540
    • Most Online (within 30 mins)
      7,748
    Barrie S
    Newest Member
    Barrie S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      That sounds so very likely in my case! I will absolutely ask my doctor on my next bone check coming up in March... Thanks a lot! 
    • trents
      Unusual bright yellow but odourless discharge

      By trents · Posted

      Calcium levels as measured in the blood can be quite deceiving as the body will rob calcium from the bones to meet demands for it by other bodily functions. Also, supplementing with calcium can be counterproductive as it tends to raise gut pH and decrease absorption. More often than not, the problem is poor absorption to begin with rather than deficiency of intake amounts in the diet. Calcium needs an acidic environment to be absorbed. This is why so many people on PPIs develop osteoporosis. The PPIs raise gut pH. And some people have high gut PH for other reasons. Low pH equates to a more acidic environment whereas high pH equates to a more basic (less acidic) environment.
    • Celiac50
      Unusual bright yellow but odourless discharge

      By Celiac50 · Posted

      Kind thanks for all this valuable information! Since my Folate was/is low and also my Calcium, there IS a chance I am low in B vitamins... My doctor only measured the first two, oh and Zinc as I has twisted her arm and guess what, that was mega low too. So who knows, until I get myself tested properly, what else I am deficient in... I did a hair mineral test recently and it said to avoid All sources of Calcium. But this is confusing for me as my Ca is so low and I have osteoporosis because of this. It is my Adjusted Ca that is on the higher side and shouldn't be. So am not sure why the mineral test showed high Ca (well, it was medium in the test but relative to my lowish Magnesium, also via hair sample, it was high I was told). But anyway, thanks again for the VitB download, I will look into this most certainly!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.