Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Vomitting For Over 24-Hours


crick3t

Recommended Posts

crick3t Newbie

I have not yet been officially diagnosed with Celiac, but am currently researching due to several doctors' recommendations.  About a month ago I started feeling extremely nauseas and sometimes vomiting directly after a meal.  I visited my primary care physician, and she suggested I try an exclusionary diet.  Silly me, two days ago I went out for McDonald's and had a beer.  About an hour after the beer I started feeling sick.  I vomited between seven and ten times that night, then woke up and immediately began vomiting again, nonstop, for hours.  I had to go to the ER.  Several people are now very convinced this indicates Celiac and that I need to switch to Gluen-free.  I am completely fine with this if it stops me from ever having to live though yesterday again!

 

I don't know anyone with Celiac, but do know one person with a gluten intolerance who said he feels lethargic and just "wrong" after ingesting gluten products.  That sounds much to mild to be what I experienced over the last 24+ hours.

 

Here is my question.  Has anyone else experienced severe symptoms like this before?  Or heard of someone who did?  I am at a loss here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brandiwine Contributor

I had what was like the stomach bug on steroids before I went gluten free, it was horrible! Have you had any tests done? How where you feeling before all the vomiting? What other symptoms do you have?

kareng Grand Master

Sounds like it could be food poisoning. Extreme vomiting isn't a common symptom of Celiac. I assume, since you went to the ER, they did a pregnancy test?

shadowicewolf Proficient

Yes, one of my symptoms was vomiting before i was diagnosed, but mine wasn't as bad as yours is. It was regardless of what i ate and it would happen at least once a day, not long after i ate.

crick3t Newbie

It started as vomiting after meals, for over a month, and then suddenly this happened.  I was feeling just fine before I started getting sick, just like all the other times.  It shouldn't be food poisoning, or else it's the most extreme case ever, since I've been having these symptoms for a month.  I'm not pregnant because I've had three pregnancy tests done since the symptoms started.  A stomach bug on steroids certainly sounds right.  I know it's not a common symptom, but is it a symptom at all?  

 

As I said before, I too was getting nauseated after ever meal (unless the meal was gluten-free, like veggies and hummus).  The vomiting was after eating things like pasta, tacos, drinking beer, or eating fast food.

 

This bout of vomiting was also accompanied by severe stomach pain, to the point where the ER had to give me an anti-nausea and then a painkiller.  What kind of symptoms did you all get?  Really, has anyone at all ever experienced symptoms like this?  Usually it was just a few hours of nausea and vomiting and then I was fine.

psawyer Proficient

Nausea and vomiting were among my symptoms prior to dx, but never like what you describe. I am thinking along the same line as Karen--this sounds more like food poisoning than a gluten reaction.

Brandiwine Contributor

Everybody does react differently and if you don't get sick while eating gluten-free sound like a the best reason to stay on a GFD. No two Celiacs are the same, we all have different reactions and different diets and food sensitivities and allergies. I had chronic D before, I kept myself from vomiting as much as possible, your case sounds extreme but I don't feel like you could mark it off the list of possible symptom at all.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ollie's Mom Apprentice

I used to have what I called my days from hell where I'd have a terrible migraine, and I'd vomit almost continually all day long. It was not food poisoning, but it was always coupled with a migraine and a weird kind if diarrhea. The first few times I had that reaction, it was after I had had a beer or two the night before. Then it started happening more frequently, and seemingly rabdomly (although I now know the culprit was gluten).

I've also had food poisoning in my time, and the town are totally different feeling, although on the surface the symptoms sound similar (headache, vomiting, diarrhea). With food poisoning, I just prayed for it to be over quickly. With the gluten induced days from hell, I remember thinking to myself a few times that dying probably wouldn't be so bad, I actually felt that bad.

Brandiwine Contributor

I too can remember getting so sick that I felt like dying might not be so bad compared, that's just how bad it gets plus the mental and emotional effects gluten has. Thank God we know better know!!! There is a light at the end of the tunnel just hang in there!

  • 5 months later...
crick3t Newbie

I know this is an old post now, but I wanted to share this in case someone else comes to this forum for help with similar symptoms.  It turns out that you folks were both right, and wrong.  My case was too severe to be Celiac, because it wasn't.  It also wasn't food poisoning.  I had a benign tumor called Focal Nodular Hyperplasia.  It's a tumor on the liver, and usually causes no symptoms.  However, since mine was large (6-7 cm) and in the exact right spot, it pressed on my stomach and caused "false satiety," meaning that I'd eat once slice of pizza and feel so full it was disgusting and painful.  That would be followed by nausea and eventually vomiting.  Shortly after I posted this question, I was admitted to the hospital for a week because I literally could not stop vomiting.  They figured out what was wrong, thank God, and I have since had surgery to remove the tumor.  I am fully recovered and feeling better than ever.  Thank you everyone for your help, and thank you for continuing to insist that my symptoms were too severe to be Celiac, because you were right!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,665
    • Most Online (within 30 mins)
      7,748

    Christa Cook
    Newest Member
    Christa Cook
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Inkie
      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.