Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Questions To Ask Doc Doing Endoscopy?

taynichaf

Recommended Posts

taynichaf Contributor
taynichaf
Posted

Hi, I am getting and endo/colonoscopy done.. this friday! Yay! Im actually more excited for this then I am for my high school graduation in like a week, lol. Anyways, I will call the office tomorrow to ask if I will be able to talk to the doc before surgery, but what were your expiriences??

 

I'm just so afraid that he wont take enough biopsies or just SOMETHING, and he'll miss something... I plan on going gluten free no matter what after this, but I just want to POSITIVELY rule out celiacs...

 

So what questions should I ask??? And any advice for preparation?

 

THANKS!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

If the damage is patchy, it is very possible to miss it, regardless of how many biopsies are taken.

taynichaf Contributor
taynichaf
Posted
  • Author

If the damage is patchy, it is very possible to miss it, regardless of how many biopsies are taken.

:(

NotMollyRingwald Apprentice
NotMollyRingwald
Posted

Just remember, you already know gluten is an issue for you, so I would go prepared with a list of the symptoms you've experienced since adding gluten back in. Even if Celiac is ruled out, the GI should consider NCGI, and push for that diagnosis so you can have it documented for college. Hugs honey, good luck!

NotMollyRingwald Apprentice
NotMollyRingwald
Posted

Oh and to answer your original question (lol), the questions I have on my list (my EGD is Thurs):

- how many biopsy samples will be taken (I plan to push for at least 4, if not 6)

- what other samples (mucosal or otherwise) are planned in order to rule out infection/parasite, etc

- what are the possible complications of the procedure?

- expected recovery duration from the sedation?

taynichaf Contributor
taynichaf
Posted
  • Author

He could actually diagnose me with NCGI?!?! I'd be happy with that, ha. I just really want some kind of diagnoses! But okay, those are great questions, I'll ask them as well. Your appointment is one day before mine! Hope all goes well for you!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.