Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Liver Functions Linked To Gluten?


SasaMinks

Recommended Posts

SasaMinks Rookie

Hello!

 

I had my blood tests back today and they are fine BUT doc says liver function is abnormal at 74 - given that I have lots of other symptoms could this mean I could have celiac still? or is it more likely just NCGI? I've been gluten-free for a week now and have noticed more energy/less bloating and less brain fog.  If I stop eating gluten and my liver level goes back to normal when they re-test (in two weeks) would that mean it was just a glitch in the blood tests? or proof of a gluten problem?

 

Please advise!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sugardale Newbie

I am in the same boat.

 

I don't have insurance so I've been going to health clinics. Having diarrhea for about a month and losing weight finally prompted a visit. The clinic tested my blood, and that showed that my liver levels were off too. The nurse thought it could be celiac and that I should start gluten free. I did for 5 days. There really was no change, except that I started to have blood in my stool. Went back to the clinic, saw a different nurse who thought it probably wasn't celiac, she did a load of new tests including a stool sample that required eating a lot of fiber, so I started eating whole wheat breads and other high fiber, full of gluten foods. Did not feel any better. I was also tested for Hepatitis A, B, and C (all negative). After I finished the stool sample, I decided to try gluten free again. I've been gluten free for 17 days now, and I am feeling so much better! I only have about 2-3 bowel movements a day, and they are looking healthier. I am happier, and way more energetic. I haven't gained back any of the 10 pounds I've lost yet, but I haven't lost any more, which is a good sign.

 

Now, I am thinking do I have celiac disease? My body is responding to a gluten free diet, but is it a fluke?  I am hoping to qualify for free health insurance so I can see a specialist and get a confirmation, but until then I'm going to stay gluten free.

 

I hope that you get a confimation as well.

ravenwoodglass Mentor

Yes celiac seems to be able to effect liver function. Many  of us see those levels go back to normal after being gluten free for a while.

Sugardale, if you are planning on testing for celiac do get back on gluten pronto. You need to be on a regular gluten diet or the tests will come back a false negative. Even on gluten the tests can be false negative so in the long run it is how you react to the gluten free diet, and to gluten when it is added back in that counts the most.

jerseyangel Proficient

Celiac can most definitely affect liver function/numbers. 8 years after diagnosis, mine still fluctuate between well within normal and very slightly high.

I've had the full compliment of testing and nothing shows up.

SasaMinks Rookie

Sugerdale - that's interesting... It sounds like maybe you didn't gibe it enough tine the first time? I read that withdrawel from gluten can make too feel even worse at first and for me I certainly felt worse foe a day or two. 8days in and I feel like a new person - less bloating/more energy/reduced migraine attacks.

I wonder if anyone has a view on whether the liver function issues would mean it is celiac rather then ncgi? Ravenglass - after all those negative blood results how did you get the celiac diagnosis?

Deaminated Marcus Apprentice

I was diagnosed with a fatty liver in 2010.

Then I went gluten free for 2 years 

The subsequent ultrasounds no longer detected fatty liver.

I can't prove going gluten free cured my fatty liver but here are some articles that say it does.

 

Open Original Shared Link

ravenwoodglass Mentor

Sugerdale - that's interesting... It sounds like maybe you didn't gibe it enough tine the first time? I read that withdrawel from gluten can make too feel even worse at first and for me I certainly felt worse foe a day or two. 8days in and I feel like a new person - less bloating/more energy/reduced migraine attacks.

I wonder if anyone has a view on whether the liver function issues would mean it is celiac rather then ncgi? Ravenglass - after all those negative blood results how did you get the celiac diagnosis?

I was seeing a physical therapist who kept insisting that I see an allergist who would deal with intolerances as well as true allergies. After she nagged me for a couple months saying she was sure something autoimmune was going on I finally made the effort to find one. Not easy. He tested me for true allergies. I was positive for 98 out of 99 things tested for. He later said that was his first clue I was celiac. He then put me on a strict elimination diet starting with 5 foods I hated and almost never ate. I had to eat just those until my daily and nightly D resolve. That took a couple weeks. Then I was allowed to add in one food at a time consuming it 3 times a day for a week. Wheat was the second thing I added in  3 days later my reaction was severe. He ordered me to stop the wheat and never eat it again and refered me to a GI doctor who of course put me on a gluten challenge. The reaction to that was even more severe and resulted in a nasty GI bleed. I then got my official diagnosis of celiac. One thing I found interesting was after I had been gluten-free for 6 months I was able to convince my family to get tested. Both of my kids were positive on blood tests and one had the endo which was also positive. I don't know if I would show positive with the newer blood tests they do now. I am not about to do a challenge to find out as my reactions are severe and I have permanent damage to some organs due to the length of time it took for them to diagnose me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The reason I read for possible liver issues is toxins released into the body by dying cells in the intestine.  Dying cells sounds like celiac disease to me.

SasaMinks Rookie

See I very much agree with this - my doctor is rubbish though and keeps on saying its ibs- although he has put me in for a liver scan and re test of bloods. Should I push for an endoscopy though? Or, if my next lot of bloods show improved liver function, just stick gluten-free rather than having to back on it for an endescopy that might show nothing up and just self diagnose as celiac??

GFinDC Veteran

See I very much agree with this - my doctor is rubbish though and keeps on saying its ibs- although he has put me in for a liver scan and re test of bloods. Should I push for an endoscopy though? Or, if my next lot of bloods show improved liver function, just stick gluten-free rather than having to back on it for an endescopy that might show nothing up and just self diagnose as celiac??

 

Personally,I had more than enough of being sick and trying to work a full time job.  So I got off gluten and stayed off it.  Except for a few slip-ups during the learning phase and some accidental glutenings or cc..  I think it is probably easier for people with obvious gluten related symptoms to stay off gluten without a diagnosis.  At least it seems to me it would be.  If I was still eating gluten at the time of my doctor appointment, I probably would have done the endoscopy. But I had to wait 3 months to see the doctor, and went off gluten during the wait.  I think it's better to know for sure, If it is possible.  In my case, I had significant symptom changes after going gluten-free so it was obvious to me that gluten was a real problem.

 

If you can stick with the gluten-free diet, then you can stick with the diet.  A doctor's permission is not needed.

bartfull Rising Star

I just saw this on the news. You haven't had any of this stuff, have you? Open Original Shared Link

SasaMinks Rookie

No - but thanks for the info! I was screened for Hep A B and C when pregnant so not related to that. Pretty sure it's the gluten :-/

eers03 Explorer

My liver enzymes were about the same and dropped significantly over the course of six months on my gluten free diet.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.