Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Liver Functions Linked To Gluten?


SasaMinks

Recommended Posts

SasaMinks Rookie

Hello!

 

I had my blood tests back today and they are fine BUT doc says liver function is abnormal at 74 - given that I have lots of other symptoms could this mean I could have celiac still? or is it more likely just NCGI? I've been gluten-free for a week now and have noticed more energy/less bloating and less brain fog.  If I stop eating gluten and my liver level goes back to normal when they re-test (in two weeks) would that mean it was just a glitch in the blood tests? or proof of a gluten problem?

 

Please advise!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Sugardale Newbie

I am in the same boat.

 

I don't have insurance so I've been going to health clinics. Having diarrhea for about a month and losing weight finally prompted a visit. The clinic tested my blood, and that showed that my liver levels were off too. The nurse thought it could be celiac and that I should start gluten free. I did for 5 days. There really was no change, except that I started to have blood in my stool. Went back to the clinic, saw a different nurse who thought it probably wasn't celiac, she did a load of new tests including a stool sample that required eating a lot of fiber, so I started eating whole wheat breads and other high fiber, full of gluten foods. Did not feel any better. I was also tested for Hepatitis A, B, and C (all negative). After I finished the stool sample, I decided to try gluten free again. I've been gluten free for 17 days now, and I am feeling so much better! I only have about 2-3 bowel movements a day, and they are looking healthier. I am happier, and way more energetic. I haven't gained back any of the 10 pounds I've lost yet, but I haven't lost any more, which is a good sign.

 

Now, I am thinking do I have celiac disease? My body is responding to a gluten free diet, but is it a fluke?  I am hoping to qualify for free health insurance so I can see a specialist and get a confirmation, but until then I'm going to stay gluten free.

 

I hope that you get a confimation as well.

ravenwoodglass Mentor

Yes celiac seems to be able to effect liver function. Many  of us see those levels go back to normal after being gluten free for a while.

Sugardale, if you are planning on testing for celiac do get back on gluten pronto. You need to be on a regular gluten diet or the tests will come back a false negative. Even on gluten the tests can be false negative so in the long run it is how you react to the gluten free diet, and to gluten when it is added back in that counts the most.

jerseyangel Proficient

Celiac can most definitely affect liver function/numbers. 8 years after diagnosis, mine still fluctuate between well within normal and very slightly high.

I've had the full compliment of testing and nothing shows up.

SasaMinks Rookie

Sugerdale - that's interesting... It sounds like maybe you didn't gibe it enough tine the first time? I read that withdrawel from gluten can make too feel even worse at first and for me I certainly felt worse foe a day or two. 8days in and I feel like a new person - less bloating/more energy/reduced migraine attacks.

I wonder if anyone has a view on whether the liver function issues would mean it is celiac rather then ncgi? Ravenglass - after all those negative blood results how did you get the celiac diagnosis?

Deaminated Marcus Apprentice

I was diagnosed with a fatty liver in 2010.

Then I went gluten free for 2 years 

The subsequent ultrasounds no longer detected fatty liver.

I can't prove going gluten free cured my fatty liver but here are some articles that say it does.

 

Open Original Shared Link

ravenwoodglass Mentor

Sugerdale - that's interesting... It sounds like maybe you didn't gibe it enough tine the first time? I read that withdrawel from gluten can make too feel even worse at first and for me I certainly felt worse foe a day or two. 8days in and I feel like a new person - less bloating/more energy/reduced migraine attacks.

I wonder if anyone has a view on whether the liver function issues would mean it is celiac rather then ncgi? Ravenglass - after all those negative blood results how did you get the celiac diagnosis?

I was seeing a physical therapist who kept insisting that I see an allergist who would deal with intolerances as well as true allergies. After she nagged me for a couple months saying she was sure something autoimmune was going on I finally made the effort to find one. Not easy. He tested me for true allergies. I was positive for 98 out of 99 things tested for. He later said that was his first clue I was celiac. He then put me on a strict elimination diet starting with 5 foods I hated and almost never ate. I had to eat just those until my daily and nightly D resolve. That took a couple weeks. Then I was allowed to add in one food at a time consuming it 3 times a day for a week. Wheat was the second thing I added in  3 days later my reaction was severe. He ordered me to stop the wheat and never eat it again and refered me to a GI doctor who of course put me on a gluten challenge. The reaction to that was even more severe and resulted in a nasty GI bleed. I then got my official diagnosis of celiac. One thing I found interesting was after I had been gluten-free for 6 months I was able to convince my family to get tested. Both of my kids were positive on blood tests and one had the endo which was also positive. I don't know if I would show positive with the newer blood tests they do now. I am not about to do a challenge to find out as my reactions are severe and I have permanent damage to some organs due to the length of time it took for them to diagnose me.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The reason I read for possible liver issues is toxins released into the body by dying cells in the intestine.  Dying cells sounds like celiac disease to me.

SasaMinks Rookie

See I very much agree with this - my doctor is rubbish though and keeps on saying its ibs- although he has put me in for a liver scan and re test of bloods. Should I push for an endoscopy though? Or, if my next lot of bloods show improved liver function, just stick gluten-free rather than having to back on it for an endescopy that might show nothing up and just self diagnose as celiac??

GFinDC Veteran

See I very much agree with this - my doctor is rubbish though and keeps on saying its ibs- although he has put me in for a liver scan and re test of bloods. Should I push for an endoscopy though? Or, if my next lot of bloods show improved liver function, just stick gluten-free rather than having to back on it for an endescopy that might show nothing up and just self diagnose as celiac??

 

Personally,I had more than enough of being sick and trying to work a full time job.  So I got off gluten and stayed off it.  Except for a few slip-ups during the learning phase and some accidental glutenings or cc..  I think it is probably easier for people with obvious gluten related symptoms to stay off gluten without a diagnosis.  At least it seems to me it would be.  If I was still eating gluten at the time of my doctor appointment, I probably would have done the endoscopy. But I had to wait 3 months to see the doctor, and went off gluten during the wait.  I think it's better to know for sure, If it is possible.  In my case, I had significant symptom changes after going gluten-free so it was obvious to me that gluten was a real problem.

 

If you can stick with the gluten-free diet, then you can stick with the diet.  A doctor's permission is not needed.

bartfull Rising Star

I just saw this on the news. You haven't had any of this stuff, have you? Open Original Shared Link

SasaMinks Rookie

No - but thanks for the info! I was screened for Hep A B and C when pregnant so not related to that. Pretty sure it's the gluten :-/

eers03 Explorer

My liver enzymes were about the same and dropped significantly over the course of six months on my gluten free diet.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748

    Patty6133
    Newest Member
    Patty6133
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.