Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Daughters Dr. Appt.


Lisa

Recommended Posts

Lisa Mentor

Hey Guys:

Went to the Osteopathic New Dr....love him. with my daughter.

She has had major Constipation, doubled over in pain after eating at times, headaches every morning, nausia, no sleeping and typical symptions of IBS. I do think that at this point in her life, it is IBS although she is genetically disposed for Celiac as I have been dig.

He has taken her off the Donnatal that was previously prescribed by our GP and started Zelnorm. If this does not help her symptoms, we will do the endoscopy exam and keep her on gluten. She is 21 and it would be a sad time for her to give the pizza up.

We will keep an eye out for her symptoms to "morf" into Celiac symptoms, but for now we are trying to settle the IBS. She is getting married in June and future stress is a "duh". AS WELL FOR THE MOTHER OF THE BRIDE

I would appreciate any imput from those who have been there. I was IBS for 27 years, me is one thing, my daughter is another.....ya know what I mean?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



skoki-mom Explorer

I would appreciate any imput from those who have been there. I was IBS for 27 years, me is one thing, my daughter is another.....ya know what I mean?

<{POST_SNAPBACK}>

Lisa Mentor

We will take it a day at a time. And, we will be watchfull for celiac disease to show its ugly head. We'll be watching closely.......

Thanks for your reply.

heatherh Rookie

what a nice mom to go to the doctors with your adult daughter. I think the last time my mom went with me to the doctor i was 16. Its just nice to have another person beside you when the doc gives you the news good or bad. It makes sure that everything is interpreteted right and is a god send when things are less than healthy. My husband is deployed (and when home he works long hours and is gone often) so I end up alone for all my appointments, well thats no totaly true I normally have my kids in tow (3 and2) but they are more trouble than help.Tell your daughter she is a lucky girl and congrats on her upcoming nuptuals.

Matilda Enthusiast

..

Rachel--24 Collaborator
what a nice mom to go to the doctors with your adult daughter. I think the last time my mom went with me to the doctor i was 16.

<{POST_SNAPBACK}>

My Mom went with me to a few of my doctor appointments and she was there last week for my biopsy. I guess we will always be our mother's babies cuz I'm 34 now! She's really helped me through this whole ordeal. She reads the posts on here daily and she's all "caught up" on how to not contaminate me when I'm at her house. Guess I'm pretty lucky to have such a great mom. :D

Guest nini

just a couple of comments.

first, IBS is not a diagnosis, it is a bunch of symptoms

second, she wouldn't have to give up pizza, there are some great alternatives for a gluten-free pizza, my fave being Chebe bread mix without the cheese added to the mix and add a tbs. of baking powder.

third, there are caterers that will make a delicious gluten-free wedding cake and meal that no one else would be able to tell... you just have to ask. The caterers don't usual advertise that, but most trained chefs are used to being able to accommodate special diets and come up with great menus...

I wouldn't want her to suffer from "IBS" one more day or take a bunch of medications that cause other side effects when there is the possibility that just changing her diet could solve her problems.

I was on a good 20 prescriptions prior to dx and now 2 1/2 years later I am off all but 2 of them... Wouldn't that be preferable?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi Lisa,

Have you noticed how many people posting here are about to get married or recently have? It's all very stressful, for the mother as well, I'm sure! I wonder whether it's stressful enough to trigger celiac disease in those genetically disposed.

I hope you won't mind me asking. How are you distinguishing IBS symptoms from celiac disease?

Best wishes,

Matilda

<{POST_SNAPBACK}>

Our Doctor reviewed her history, requested records from past tests, took her off the Donnatol and she is trying Zelnorm for a while to see if she gets any relief from that. He suspects that the Donnatol is giving her the morning headaches. To my knowledge there is not much difference in the symptoms between IBS and celiac disease. He has suggested that we try this first, allow him time to review her records and give this some time. If this is unsuccessful, then we will do an endoscopy to check for celiac disease. My gut feeling is that being 21, she often misses breakfast due to sleeping until lunch and does not always eat healthy for dinner... her schedule is crazy with college and working.........so at this point in time I do suspect IBS although she is genetically disposed for celiac disease as well. We will watch that closely.

Thanks all, for all the mom compliments....we don't always get that from those around us. It's nice to hear.

Lisa B.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.