Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Super Sensitive Infant

MommaBecker

By MommaBecker
in Super Sensitive People

Recommended Posts

MommaBecker Newbie
MommaBecker
Posted

My son is 11 months old and is super sensitive  His celiac was noticed before he even tried gluten in person. He can detect miniscule amounts in my breast milk which has been a struggle. He also has DH which is a great indicator when he has had a bad food reaction. My question to the super sensitive people is do you have any problems with other grains? My son can't do any corn or soy derivatives without having DH flare ups. He also can't have millet, sorghum, rice, amaranth, coffee or legumes.

 

Any suggestions? Is this something he will get better about? I know that we can clear his skin totally when he is gluten, corn, soy, and grain free completely. He has no allergies and has been tested for every kind.    

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dilettantesteph Collaborator
dilettantesteph
Posted

As a super sensitive, I am sure to buy grains in the whole form so that I can sort through them and remove gluten grains.  After sorting, I wash with soap.  I am sure to rinse very well.  Even at that I tend to react, so right now I am eating rice from Thailand where they don't have much in the way of gluten grains.  I still react to that unwashed, but washed I can handle it.  

 

 

Gluten free grains can be contaminated.   Open Original Shared Link

 

I do the same thing with coffee.  Coffee can be adulterated with barley. Open Original Shared Link

 

Do you have a gluten free household?  Have you checked toiletries for gluten?

Gemini Experienced
Gemini
Posted

My son is 11 months old and is super sensitive  His celiac was noticed before he even tried gluten in person. He can detect miniscule amounts in my breast milk which has been a struggle. He also has DH which is a great indicator when he has had a bad food reaction. My question to the super sensitive people is do you have any problems with other grains? My son can't do any corn or soy derivatives without having DH flare ups. He also can't have millet, sorghum, rice, amaranth, coffee or legumes.

 

Any suggestions? Is this something he will get better about? I know that we can clear his skin totally when he is gluten, corn, soy, and grain free completely. He has no allergies and has been tested for every kind.    

From what I have extensively read about Celiac Disease, you cannot trigger for it unless gluten has been introduced into your diet and you are eating it. Has your son been tested for Celiac?  11 months old is young to render a positive diagnosis.  Most doctors won't even test for it at that age.  How do you know he can't have all the other grains mentioned?  

 

Allergy testing is notoriously unreliable in a child so young.  He may be allergic and not Celiac yet still test negative on allergy testing.  Was he officially diagnosed with DH?

kareng Grand Master
kareng
Posted

I'm just re- reading this and this struck me - corn and soy do not cause DH. DH is a manifestation of Celiac Disease. I'm guessing you haven't had this " DH" biopsied to see if it is DH?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,025
    • Most Online (within 30 mins)
      7,748
    Amari Love
    Newest Member
    Amari Love
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.