Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Recently Diagnosed, Completely New To This :(


kellyc143

Recommended Posts

kellyc143 Newbie

Hi everyone, I'm a 19 year old female and I've recently been diagnosed with celiac. It's a scary experience for me and I haven't fully adapted to the lifestyle changes I'm required to make, I just don't know where to start.. :(

 

I'm not looking for anyone to hold my hand but a little advice and some tips to point me in the right direction would be more than appreciated. All the foods I used to love all seem to be foods which are now completely forbidden..

 

I'm struggling with what I should be eating and where to get it from.

 

I would be very grateful if anybody could take a couple of minutes just to give me an first hand introduction to Celiac and what foods I should be eating etc.

 

Thanks for reading.

- Kelly


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishHeart Veteran

Welcome to the family!  :)

 

May I direct you to: 

 

(1) this thread for newbies--please read it--lots of good info there (some lady I know wrote it ;) )

 

http://www.celiac.co...ewbie-info-101/

 

 

 

and  

(2)   I recommend:

 

"Find Me Gluten Free"  for dining out

 

and

 

(3) I also HIGHLY recommend this must-read book:

 

Real Life with Celiac Disease

by Melinda Dennis and Daniel Leffler

 

Best wishes to you! we're here for you!

 

I promise you, soon you will see that all your favorite foods are not gone forever--they are just made with different flours.  We all eat plenty!!

 

I love this website too

 

Open Original Shared Link

 

GFinDC Veteran

Hi Kelly,

 

Concentrate on eating meats, veggies, fruit and nuts.  Those foods are mostly gluten-free naturally.  Some nuts may have gluten added so do check labels.  II suggest you try Mission brand or other corn tortillas instead of gluten-free bread.  They are cheaper and usually gluten-free.  There are also rice wraps made by Rudi's and Trader Joes and a few others.  They are usually pretty stiff and need to be wet a little and warmed up so they fold without breaking.

 

Stay away from eating out for a few months.  Some restraunts are safe but many are not.  It is important to learn how to cook your own food so you know what is safe and what is not.  There are gluten-free beers like Redbridge and several others available. But young people like you shouldn't drink that evil alcohol and just leave it to us older celiacs who can handle it.  :D  OR you could drink wine or rum or tequila. There are threads on the forum about safe alcohol.

 

You will probably find a section in your grocery store for gluten-free foods.  Sometimes baked goods are kept in the freezer.  Often the gluten-free foods have a special label, sometimes green is used for them.

 

Think about eating simple foods like the pioneers did 100 or more years ago.  Avoid things (supposedly foods) that come in boxes and cans.  Frozen veggies are usually fine and are better for you.  But always check labels for wheat, rye and barley.

 

It all gets much easier after you have done it a awhile.  Just like riding a bike isn't easy the first time but you learn after a few scrapes and faceplants in the tree.  And eating whole foods is much better for your body than all that processed crap with chemicals in it anyway.

 

Welcome to the forum! :)

 

 

Deaminated Marcus Apprentice

Use 5 minute rice for breakfeast and add onions, garlic powder and chicken or mackeral to it.

That's an easy breakfeast that will give you energy for the morning.

Potatoes are a cheap source of carbs.

I eat raisins, dates and sesame snaps as snacks.

eers03 Explorer

Welcome to the board!  Don't worry, you're going to get the hang of this.  Give your body plenty of time to heal and give yourself plenty of time to get the hang of things.  GFinDC gave you some great counsel.  If you're an iPhone user check out the ShopWell app.  You can set your profile up for a gluten allergy and most items in the store that contain gluten will be red flagged when you scan the barcode.

 

As for the foods that you miss.  With some time you will find ways to replicate them on your own.  You're about to be a true gourmand. There will be some trial and error involved.  If you try a gluten free item that you don't like, don't be discouraged, you'll figure out quickly the products you like.

 

A great quick fix around the house for me is to pull out a gluten free crust, spread some tomato paste on it, some diced tomato, a layer of shaved ham and some cheese...  Throw it in the oven and presto!!!  Quick gluten free pizza served.  

 

Lastly, anytime you're feeling overwhelmed, check in with the board and someone is always able to shed some light on what you have going on.  Always helps me.  I was diagnosed last November so its all pretty new on my end as well but things are looking up.

 

Good luck!

nvsmom Community Regular

Welcome to the board. :)

 

The first few months are by far the most difficult. I had a printout of ingredients that I couldn't eat that I would carry with me shopping. Labeling laws (In Canada) have become better over the past year so it is getting much easier - it's just label reading that you need to get used to.

 

Hang in there the first few weeks. Some people experience a withdrawal that can last two or so weeks. If you aren't past that, just hang in there.

 

Make sure you have portable snacks like Lara bars or nuts that you can carry in your bag in case of snack emergency. It helps not to get too hungry.

 

Surf the board. There is a LOT of good info, and there are some great veterans who can offer sound advice, a good laugh, or a shoulder to cry on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    2. - Tazfromoz replied to Ginger38's topic in Related Issues & Disorders
      15

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - hjayne19 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Celiac Screening

    4. - yellowstone posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Cold/flu or gluten poisoning?

    5. - Churro replied to Churro's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Celiac disease symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,076
    • Most Online (within 30 mins)
      7,748

    Monica L
    Newest Member
    Monica L
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • cristiana
      Thank you for your thoughtful contribution, @Tazfromoz. I live in the UK and the National Health Service funds free vaccines for people deemed to be at heightened risk.  I was pleasantly surprised to discover that as a coeliac in my 50s I was eligible for this vaccine, and didn't think twice when it was offered to me.  Soon after diagnosis I suffered mystery symptoms of burning nerve pain, following two separate dermatomes, and one GP said he felt that I had contracted shingles without the rash aka zoster sine herpete.  Of course, without the rash, it's a difficult diagnosis to prove, but looking back I think he was completely spot on.  It was miserable and lasted about a year, which I gather is quite typical. For UK coeliacs reading this, it is worth having a conversation with your GP if you haven't been vaccinated against shingles yet, if you are immunosuppressed or over 50. I have just googled this quickly - it is a helpful summary which I unashamedly took from AI, short for time as I am this morning!   My apologies. In the UK, coeliac patients aren't automatically eligible for the shingles jab unless they're severely immunosuppressed or over the general age for vaccination (currently 50+) but Coeliac UK recommends discussing the vaccine with a GP due to potential splenic dysfunction, which can increase risk, even if not routine for all coeliacs. Eligibility hinges on specific criteria like weakened immunity (chemo, certain meds) or age, with the non-live Shingrix vaccine offered in two doses to those deemed high-risk, often starting from age 18 for the immunocompromised.
    • Tazfromoz
      My understanding, and ex I erience is that we coeliacs are likely to suffer more extreme reactions from viruses. Eg we are more likely to be hospitalised with influenza. So, sadly, your shingles may be worse because you are coeliac. So sorry you had to go through this. My mother endured shingles multiple times. She was undiagnosed with coeliac disease until she was 65. Me at 45. I've had the new long lasting vaccine. It knocked me around badly, but worth it to avoid shingles.
    • hjayne19
      Hi all,  Looking for some advice. I started having some symptoms this past summer like night sweats and waking at 4 am and felt quite achy in my joints. I was training heavily for cycling for a few weeks prior to the onset of these symptoms starting. I have had low Ferratin for about 4 years (started at 6) and usually sits around 24 give or take. I was doing some research and questioned either or not I might have celiac disease (since I didn’t have any gastric symptoms really). My family doctor ran blood screening for celiac. And my results came back: Tissue Transglutaminase Ab IgA HI 66.6 U/mL Immunoglobulin IgA 1.73 g/ My doctor then diagnosed me with celiac and I have now been gluten free for 3 months. In this time I no longer get night sweats my joint pain is gone and I’m still having trouble sleeping but could very much be from anxiety. I was since referred to an endoscopy clinic to get a colonoscopy and they said I should be getting a biopsy done to confirm celiac. In this case I have to return to eating gluten for 4-6 weeks before the procedure. Just wanted some advice on this. I seem to be getting different answers from my family physician and from the GI doctor for a diagnosis.    Thanks,  
    • yellowstone
      Cold/flu or gluten poisoning? Hello. I've had another similar episode. I find it very difficult to differentiate between the symptoms of a cold or flu and those caused by gluten poisoning. In fact, I don't know if my current worsening is due to having eaten something that disagreed with me or if the cold I have has caused my body, which is hypersensitive, to produce symptoms similar to those of gluten poisoning.        
    • Churro
      I'm no longer dealing with constipation. I got my liver test last month and it was in normal range. Two years ago I did have a vitamin D deficiency but I'm know taking vitamin D3 pills. Last month I got my vitamin D checked and it was in normal range. I don't believe I've had my choline checked. However, I do drink almond milk eat Greek yogurt on a daily basis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.