Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Potato?


jhol

Recommended Posts

jhol Enthusiast

so last week i had the second lot of my allergy tests- all negative !!

 

i was really pissed off when the nurse suggested seeing a cognitive behavioral therapist - to help me add back the foods i,d taken out of my diet. she asked why id removed potato (coz it makes my joint pain worse) and basically said that potato wouldnt do that.

 

so just to prove a point ive eaten potato every day since - some potato waffles, micro chips , bags of crisps and not noticed much of a change really- until day six- when this depression feeling just came over me,im walking like an old lady again, the pain in my neck and left shoulder has reappeared, my "ladybits"( tmi i know) -feel really irritated,my chest feels heavy,  my buttocks are really sore- im only sat on them!- i cannot get comfy at all, and my rash on my face is a lot redder and angrier!!! 

 

so i dont know quite what im saying, i just know that i wont be eating potato,s again. and i dont think theres a two finger smiley face for the nurse so this will have to do :angry:

 

and no i dont want to see a cognitive behavioral therapist ( or whatever they,re called ) :mellow:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

there are no official tests for interferences outside of removing them from your diet. :(

 

At any rate, the entire nightshade family can do that if a person is intolerant to them.

Pegleg84 Collaborator

if it makes you feel like crud, don't eat it. Simple.

You definitely do not need to see a therapist.

 

Hope the potato-challenge effects wear off quick.

bartfull Rising Star

I've been gluten-free for two years and I kept trying potatoes periodically with no luck - until last week. The store here in the middle of nowhere stopped carrying the only brand of rice I could tolerate so I tried potatoes again. SUCCESS!!

 

So yeah, stay away from them for a while, but keep trying maybe once every six months or so. You might get them back too.

 

And tell the nurse she doesn't know what she's talking about. (Do it nicely.) Maybe print out some info on nightshades and joint pain. That way the next person who mentions it to her won't get blown off and insulted the way you did.

jhol Enthusiast

im plucking up the courage to go back to the docs again,

 

to see what can be done next, im gonna mention low stomach acid, histamines and salicylates. im gonna get someone to listen to me!!

janpell Apprentice

Nightshades are super tricky for me. As far as potatoes go, it's almost like I can handle a certain strain. Luckily, as soon as I taste a certain strain of potato, I can usually tell. I get a rancid feeling in the back of my throat. Granted, this doesn't always stop me from consuming at least a serving size.  Eh, I'm doing the best I can and what's a little neck pain for two days, I know it goes away now. It would be nice to have some help from the medical community, wouldn't it?

It sure helps to have this forum. I love that someone else gets neck and shoulder pain from nightshades! It helps me from going to a "behavioural therapist". Good luck.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      24

      Headaches / Migraines and Hypoglycaemia

    2. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    3. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

    4. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      2

      Heat intolerant... Yikes

    5. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      Related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,150
    • Most Online (within 30 mins)
      7,748

    TheaBr
    Newest Member
    TheaBr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      I am so sorry you are going through this; it sounds incredibly overwhelming and disheartening to be dismissed by the very medical professionals you're turning to for help. It is completely understandable that you feel lost and exhausted, not just from the relentless physical symptoms like the leg pain, stomach issues, and profound fatigue, but from the psychological toll of being told it's "just IBS" or that you need a therapist when you know your body is signaling that something is wrong. While it's true that a normal tTG test can indicate that celiac disease itself is being managed from a dietary perspective, it is a major oversight for your doctors to ignore your other diagnoses like SIBO, a hernia, and Barrett's esophagus, all of which can contribute significantly to the symptoms you describe. You are absolutely right to be seeking a new Primary Care Physician who will listen to your full history, take your Barrett's diagnosis seriously, and help you coordinate a care plan that looks at the whole picture, because your experience is not just in your head—it's in your entire body, and you deserve a medical team that acknowledges that. I had hernia surgery (laparoscopic), and it's not a big deal, so hopefully you can have your new doctor give you some guidance on that.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.