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Pediactric Gi Doctor In Dallas?

LisaP

By LisaP
in Doctors

Recommended Posts

ashlee's mom Rookie
ashlee's mom
Posted

Well, that is a relief, I was afraid she was hallucinating! I don't know, I would think it is probably Celiac and for some reason she is a hard case to diagnose. If you know it is autoimune, and the symptoms match, it really seems to point to it! Someone on this board was mentioning autoimune disorders running in the family somehow. We don't know of any in our family, so Ashlee really took us by surprise. She seemed pretty healthy, but now looking back, I can see signs that have been around for awhile. Our first clue was her growth slowing down, then last year the diarrhea kicked in and wouldn't go away. Everyone kept saying it was viral, but I always get whatever she gets, and I was fine. I used to do daycare, and no one else had it. I don't know, I just knew something was up. She was so sick by the time she was diagnosed that she is now terrified of gluten!

I hope the weekend goes easily and that you can finally get some answers on Monday!

Michelle

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mscriber Newbie
mscriber
Posted

Yep, I hope the weekend goes well too. Chelsea's had such a bad day that she went to bed and said she'd had it! Sad to see a 15 yr old going to bad at 9PM. I need them to be doing a little better as I have to go take a 4 hour class in the AM tomorrow. If they are still bad I may have to postpone again and that would keep me from getting my Personal Trainer's Certification.

Thanks for your support. Hoping the Dr. is helpful on Monday too...but they were talking to her directly and she seemed willing to help. I am wondering if my daughter's neurologist may have greased a few wheels there. They called me and had already talked to this Dr. and she said she'd see her on Mon.

Hope she's good! :unsure:

ashlee's mom Rookie
ashlee's mom
Posted

Yes, it sounds like the doctors have spoken. That is really good, they seem to believe each other when one says there really is a problem! I'll be waiting to hear what they have to say!

Michelle

ashlee's mom Rookie
ashlee's mom
Posted

Merrie'

So, how did the appointment go yesterday? Did you find anything out? I hope it helped and Chelsea is at least on the path to an answer.

Michelle

mscriber Newbie
mscriber
Posted

hmmmmm....very irritating. Nothing conclusive. The blood test came back, as she said, "unremarkable". Whatever that means.....and said had toget copies from the originating Dr. not her. They told me to get them from her. UGH! I am ready to start yelling!!! Ran more blood tests and RASP panel? for food allergies. They made noises of another biopsy, but told them we'd see...I am not letting them do it until I can be sure the person that does it knows what they are doing!!! :angry:

So...waiting... :(

Chelsea is a bit better today, but crabby and fed up. Took her off all unnatural foods and gluten....if they can't solve it we'll do it ourselves! ;)

ashlee's mom Rookie
ashlee's mom
Posted

How frustrating! Yeah, I think you do have to get medical records and test results from the Dr. who ordered them. Personally, I get tired of all the privacy protection with medical records. Really, I don't care if anyone see's my test results! It just makes it a pain to get your own records! I think adjusting her diet on your own sounds smart. I think I would also be skeptical at this point! I can't remember how much trouble she is having with the GI symptoms, but Ashlee had to cut out dairy for 6 weeks or so while she healed from the damage gluten had done to her system. We added it back in after that and she did fine. Just something else to consider if she continues having probems. They say it is very common for Celiacs to be lactose intollerant at first. I have been checking out the Delphi boards, I saw a link here somewhere and it is very informative. There is a lot of information regarding testing and all that! I thought of you when I was reading a lot of it! Right now I think you are doing the best thing for her. I have heard of people noticing a difference as early as a few days gluten free, but it took Ashlee more like 2 weeks, and then it was still longer until all the symptoms were gone. It is hard to wait, but exciting to think that if this is really it she might get some relief at last!

Michelle

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      26F!
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