Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pediactric Gi Doctor In Dallas?

LisaP

By LisaP
in Doctors

Recommended Posts

ashlee's mom Rookie
ashlee's mom
Posted

Well, that is a relief, I was afraid she was hallucinating! I don't know, I would think it is probably Celiac and for some reason she is a hard case to diagnose. If you know it is autoimune, and the symptoms match, it really seems to point to it! Someone on this board was mentioning autoimune disorders running in the family somehow. We don't know of any in our family, so Ashlee really took us by surprise. She seemed pretty healthy, but now looking back, I can see signs that have been around for awhile. Our first clue was her growth slowing down, then last year the diarrhea kicked in and wouldn't go away. Everyone kept saying it was viral, but I always get whatever she gets, and I was fine. I used to do daycare, and no one else had it. I don't know, I just knew something was up. She was so sick by the time she was diagnosed that she is now terrified of gluten!

I hope the weekend goes easily and that you can finally get some answers on Monday!

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mscriber Newbie
mscriber
Posted

Yep, I hope the weekend goes well too. Chelsea's had such a bad day that she went to bed and said she'd had it! Sad to see a 15 yr old going to bad at 9PM. I need them to be doing a little better as I have to go take a 4 hour class in the AM tomorrow. If they are still bad I may have to postpone again and that would keep me from getting my Personal Trainer's Certification.

Thanks for your support. Hoping the Dr. is helpful on Monday too...but they were talking to her directly and she seemed willing to help. I am wondering if my daughter's neurologist may have greased a few wheels there. They called me and had already talked to this Dr. and she said she'd see her on Mon.

Hope she's good! :unsure:

ashlee's mom Rookie
ashlee's mom
Posted

Yes, it sounds like the doctors have spoken. That is really good, they seem to believe each other when one says there really is a problem! I'll be waiting to hear what they have to say!

Michelle

ashlee's mom Rookie
ashlee's mom
Posted

Merrie'

So, how did the appointment go yesterday? Did you find anything out? I hope it helped and Chelsea is at least on the path to an answer.

Michelle

mscriber Newbie
mscriber
Posted

hmmmmm....very irritating. Nothing conclusive. The blood test came back, as she said, "unremarkable". Whatever that means.....and said had toget copies from the originating Dr. not her. They told me to get them from her. UGH! I am ready to start yelling!!! Ran more blood tests and RASP panel? for food allergies. They made noises of another biopsy, but told them we'd see...I am not letting them do it until I can be sure the person that does it knows what they are doing!!! :angry:

So...waiting... :(

Chelsea is a bit better today, but crabby and fed up. Took her off all unnatural foods and gluten....if they can't solve it we'll do it ourselves! ;)

ashlee's mom Rookie
ashlee's mom
Posted

How frustrating! Yeah, I think you do have to get medical records and test results from the Dr. who ordered them. Personally, I get tired of all the privacy protection with medical records. Really, I don't care if anyone see's my test results! It just makes it a pain to get your own records! I think adjusting her diet on your own sounds smart. I think I would also be skeptical at this point! I can't remember how much trouble she is having with the GI symptoms, but Ashlee had to cut out dairy for 6 weeks or so while she healed from the damage gluten had done to her system. We added it back in after that and she did fine. Just something else to consider if she continues having probems. They say it is very common for Celiacs to be lactose intollerant at first. I have been checking out the Delphi boards, I saw a link here somewhere and it is very informative. There is a lot of information regarding testing and all that! I thought of you when I was reading a lot of it! Right now I think you are doing the best thing for her. I have heard of people noticing a difference as early as a few days gluten free, but it took Ashlee more like 2 weeks, and then it was still longer until all the symptoms were gone. It is hard to wait, but exciting to think that if this is really it she might get some relief at last!

Michelle

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,681
    • Most Online (within 30 mins)
      7,748
    Donna Ybarra
    Newest Member
    Donna Ybarra
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.