Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

So Confused! Milk, Dairy, Casein?


Auntie-Manda

Recommended Posts

Auntie-Manda Apprentice

I definitely have some kind of problem with dairy... Usually after I eat cheese (pizza is the worst), I get a pretty bad stomachache along with some cramping, bloating, and constipation. Some products with milk in them are fine and don't cause problems (like chips with cheese flavor). I just never know until I try it. After a particularily bad experience with pizza, I decided to trial dairy free for a few weeks and see if I felt better. Well, this is day 6, and things are going ok, I guess. I haven't seen any of the symptoms that I see from dairy. But... gluten free + dairy free is no fun at all! I don't really understand the differences between all the milk/dairy/casein problems that people have... Also, since it's likely that I have celiac disease, I hear that my body is maybe just still healing (gluten-free for 3 months only) & having trouble with dairy for now.

 

I take a probiotic daily, and I recently found out that they make a "lactose defense" formula. I'm wondering if this will work for me. But not really knowing exactly what my problem is, and if my body can't handle dairy because it's still healing, I don't know if it's a good idea. I just want to be able to eat food and not blow up like a balloon! Dairy free is for sure a ton more difficult than gluten free for me. So if there's a way to still be able to have cheese & ice cream, I want to know!

 

WWYD?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Brandiwine Contributor

Only thing I know to suggest is to go two weeks with out dairy, and try a cup of milk but nothing else with dairy for a few days see how you feel. If no symptoms after those few days try cheese but nothing else dairy and see what happens. Some ppl have a dairy intolerance other a casein intolerance which can be found in non dairy items. That's all I know about the casein sorry I'm not more savvy on that, I'm sure some one else on here will know more.

Brandiwine Contributor

And also it could be something else in the pizza besides the cheese, some on here can't have tomatoes, Im seemingly having a problem with yeast :-/

Ksee Rookie

Milk has sugars and proteins. Lactose is a milk sugar. Casein is a milk protein. People can react to either or both. The cheese flavor you don't react to might be made of artificial stuff with no actual cow type anything in it. I think it would be much easier to avoid dairy because of the wide variety of products made for people with cow type allergy.

Start with milk, there is soy, rice and almond. None taste exactly like cow but trust me, after you have avoided cow for awhile, it doesn't taste good at all. There are yogurts made from soy and coconut milk and cheeses made from all sorts of things. Many people with allergies to cow can tolerate goat just fine. Goat cheese and milk is easy to find but a bit more expensive. 

There is a wide variety of frozen deserts without any cow in them as well. 

Something I would do is take another look at the pizza. Pizza is mostly other stuff with some cheese on top yes? How does that compare with the amount of cheese you eat in other ways? It seems suspicious to me the pizza causes so much more trouble than anything else.

Auntie-Manda Apprentice

Hmmm, well I eat tons of tomatoes with no issue, and the crust is just gluten free bead-type stuff, and I have other gluten-free bread, crackers, cookies, etc without issues. As far as toppings, I usually have chicken and/or sausage, which are both fine. I guess I figured that pizza was more problematic because there is more cheese than I would otherwise consume in one sitting- like maybe limited dairy is OK, but too much causes problems? I've had problems with other dairy things, too- like frostys from Wendy's and cheese (not on pizza). It seems really sporradic- like the same thing will cause issues one day and not the next. And if I can have dairy sometimes without issue, I want to!

Brandiwine Contributor

That's understandable. Dairy did the same thing to me before I went vegan. Some times a bowl of ice cream was fine and some times it wasn't, same with cheese. I'm not sure why unless it has something to do with damage done from gluten I read on another thread earlier today that went into depth about why dairy can be an issue for us I will try to find it and post it here.

Ksee Rookie

Your probably right, I only thought it was worth looking at again because I've heard people say to look at ingredients every so often to make sure there was no change.

I'm not sure what grocers are near you but I've had good luck doing searches online to find what was available at the local grocer. I went to their website and typed in "gluten free" to find out what products they carried. I already know about milk substitutes because at one point I thought that was my problem. Fortunately for me I found out the real problem was gluten but it would of been easier for me to adapt if it had been cows milk. There is so much more available for that problem. 

I hope you have a happy shopping experience.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Auntie-Manda Apprentice

That's understandable. Dairy did the same thing to me before I went vegan. Some times a bowl of ice cream was fine and some times it wasn't, same with cheese. I'm not sure why unless it has something to do with damage done from gluten I read on another thread earlier today that went into depth about why dairy can be an issue for us I will try to find it and post it here.

And now you can handle dairy? Yay, there's hope for me!

Juliebove Rising Star

I have to avoid all forms of dairy.  Seems I can be okay with it for a while but then it starts making me sick.  If I lay off for a really long time, like 3 years, I can eat it again but it's not worth it.  Before long it will sicken me again and I don't like being sick.

foam Apprentice

Pizza is the ultimate killer food for leaky gut people. Not only is it full of grains in the gluten free base. You have tomatoes, probably sun dried with sugar too. Onions, Cheese, yeast. It's the who's who of disaster foods. I started eating cheese again a couple of weeks ago but as of a couple of days ago it's started to mess me up again. Wasn't ready for it it seems. Don't underestimate yeast, it can mess you up hugely if you have antibodies to candida.

gfreejz Rookie

After I went gluten free, I had to avoid dairy for about a year. Even lactose free milk gave me problems.  Now I can have some dairy like real chedder cheese because it is very low on lactose and gluten free ranch dressing. Also I have found that it takes my body a week to rid itself of dairy, meaning that if I eat a little cheese everyday, by the end of the week, I start to have problems. Also, I can not eat butter in any amount and things with whey ( lots of lactose) like sour cream, ice cream, velveta, and dips. I also avoid greasy foods and spicy foods.

If I had a small cross contamination, I cannot have any dairy for a few weeks after. When I first went gluten free, things that had alot of sugar also did not agree. I have a local ice cream shop that has lactose free soft serve ice cream which is ok for me and I even can eat quite a bit of it. I personally think that until your body settles down, a wide variety of things can irritate your guts and if you can tolerate something iffy, don't eat it everyday.

Also, gluten-free homeade pizza can be troublesome for me if I really pig out. I think it is because of the combo of cheese and grease from pepperoni.

seraphim Contributor

I tried butter a little while back and had cramping within two hours and my stools looked abnormal for a couple days.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,905
    • Most Online (within 30 mins)
      7,748

    RooBarb
    Newest Member
    RooBarb
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Heatherisle
      She’s eating mostly gluten as far as I know. Think her GP is trying to get her seen fairly quickly
    • RMJ
      Be sure to have her continue eating gluten before the biopsy. Reducing gluten now could lead to healing and false negative results.
    • knitty kitty
      Allegra is an antihistamine.  Histamine is released by the body as part of the autoimmune and immune responses, so an antihistamine would be helpful.  Following the low histamine version of the AIP diet is helpful as well because there's also histamine in foods.  Sometimes our body has trouble getting rid of the histamine it makes and the histamine from our food.  Sometimes the mast cells that make and release histamine get touchy and release histamine at the slightest provocation.  Thiamine helps mast cells not to release histamine so readily.  Look into Mast Cell Activation Syndrome.  SIBO, small intestinal bacterial overgrowth, can also cause high histamine levels.  Following the low histamine AIP diet will starve out the bad SIBO bacteria that feed on carbohydrates we eat.  We don't want to take antibiotics because they kill off both the good and bad bacteria.  We don't want to take probiotics yet because the SIBO bacteria will outnumber them.   The AIP diet will allow the good bacteria to flourish.   Some have Candida infections as well as SIBO.   Lowering histamine levels is important because high histamine levels for a long time can lead to worsening health problems like Crohn's and colitis and other health problems.
    • JessicaAnderson
      Hey! My son will be traveling to Canada from the US next month. What are some items we should try to buy and bring back? I know Doritos are labeled gluten-free in Canada so that’s on our list, what else?
    • Rejoicephd
      Oh I have 2 dogs. And I just looked up the ingredients in their food and it does contain barley as a main ingredient. Maybe some other things too that aren't helpful but barley just caught my eye on a quick look.  And yes I spend lots of time with them, they're always cuddled up on me. I even have wondered before if I was allergic to them and I take Allegra at night out of some thought that maybe I was allergic to them (but I've never confirmed that).  Wow. This is very interesting. I could try putting them out on some grain-free food for a month and see if that helps. Thanks for the tip!
×
×
  • Create New...