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Just Diagnose Celiac What Vitamins And Supplements Do I Need?

niese

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niese Explorer
niese
Posted

I was just diagnose by a biopsy that I have Celiac, still waiting on blood work.  I started Gluten free diet and still in sever pain, no energy, don't have watery diarrhea but lose bowel movements, feel totally run down, have thrush in my mouth, not to mention totally overwhelmed.  I am totally confused on what vitamins and supplements I should take. What is the difference between probiotics and digestive enzymes and why and how should I take them? I also have microscopic colitis.  So I am fighting a double whammy right now with both my small and large intestines.  Any advice will be greatly appreciated.  

 

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1desperateladysaved Proficient
1desperateladysaved
Posted

I was just diagnose by a biopsy that I have Celiac, still waiting on blood work.  I started Gluten free diet and still in sever pain, no energy, don't have watery diarrhea but lose bowel movements, feel totally run down, have thrush in my mouth, not to mention totally overwhelmed.  I am totally confused on what vitamins and supplements I should take. What is the difference between probiotics and digestive enzymes and why and how should I take them? I also have microscopic colitis.  So I am fighting a double whammy right now with both my small and large intestines.  Any advice will be greatly appreciated.  

 

 

Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

niese Explorer
niese
Posted
  • Author

Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

Thank you Diana, this info really helps clear things up. 

1desperateladysaved Proficient
1desperateladysaved
Posted

We all seem to start a bit overwhelmed, but work out of it eventually.  Irish heart wrote a thread for Newbies incase you have yet to see it.  https://www.celiac.com/forums/topic/91878-newbie-info-101/?hl=%2Birishheart+%2Bnewbie#entry833862  I am still in the healing process.

 

Note:  there may be still some unanswered questions in the original post.  Also welcome Niese!

 

Diana

nvsmom Community Regular
nvsmom
Posted

L-Glutaminase is a supplement that helps repair muscle tissue and as such, it helps repair the small intestine. It might be something to look into.

niese Explorer
niese
Posted
  • Author

L-Glutaminase is a supplement that helps repair muscle tissue and as such, it helps repair the small intestine. It might be something to look into.

I did start L-Glutaminase a few days ago but seems like every time I take it my stomach burns for awhile afterwards. 

niese Explorer
niese
Posted
  • Author

Wow,  Please do work on it to get well.  IF you can do or have done a nutrient test you can find out some exact things that you are needing.  Do get  quality supplements.  I get mine through my health care professionals.

 

Probiotic:   Adds good bacteria that live in the intestines.  Yougart contains these bacteria.  There are many varities and each can have its own advantages.

 

Enzymes:  My health practitioner told me that the villi in the small intestine tell the pancreas when to fire.  When the villi is damaged, they fail to do this.  An enzyme supplement can help break down the food.  The damage to the villi is reversible, so you may not need to take the enzymes for ever.

 

Get Better soon

 

Diana

My hubby bought me a probiotic and on the bottle it states enzymes for digestive health.  He swears this one pill is both probiotic and digestive enzymes.  I am still confused on these two. Can it be in one pill or is it two separate things that I need?

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cyclinglady Grand Master
cyclinglady
Posted

ioI did start L-Glutaminase a few days ago but seems like every time I take it my stomach burns for awhile afterwards. 

I think you're trying to do too much too soon.  My advice is to slow down.  Just adhere to the gluten-free diet.  Focus on that.  Because you have issues with Thrush, take probiotics.  Right now, I take Trunature that's dairy and soy free from Costco.  It's cheap.  After any courses of antibotics, I take Bio-K+ which dairy free versions and it's in liquid form.  It's not cheap, but it's what my doctor prescribes and it can be purchased in most health food stores or Whole Foods/Sprouts, etc.  

 

I take L-Glutamine now, but I waited for about six weeks of being gluten-free, just to let my system calm down.  I also didn't start taking iron supplements until then either (as they can be hard to digest) -- I have iron deficiency anemia.  Sometimes it's best to start something slowly, like every other day to build up a dosage that's right for you.  

 

Has your doctor prescribed anything for your thrush?  

1desperateladysaved Proficient
1desperateladysaved
Posted

My hubby bought me a probiotic and on the bottle it states enzymes for digestive health.  He swears this one pill is both probiotic and digestive enzymes.  I am still confused on these two. Can it be in one pill or is it two separate things that I need?

My probiotic is taken on an empty stomach.  Whereas my enzymes are taken before a meal.  They are separate.  They are different things.  I know they have capsules that are time release, so I can't say for sure whether it might be possible to release each when or where they are needed.

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

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    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

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    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

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      Contact them.
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