Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Wanting To Attend Any Social Functions Involving Food

Shanmegjilal

Recommended Posts

tarnalberry Community Regular
tarnalberry
Posted

Thank you so much for all of the input.I'm trying so hard to not let this ruin my life but instead of getting better at dealing I feel like it's getting harder.I just feel like EVERYTHING involves food.I go and pretend I'm fine but inside I'm so upset...It's definitely the psychological part of this disease that's wearing on me.I guess somedays are better than others and I don't want people to not include me yet I just dread anything where food is involved....If I don't want to go to someone's party because I feel awkward and just don't feel like explaining my restrictions is that ok or am I giving in to this??? What excuses can I use to not go without saying "my diet"? Thank you

 

Same thing I tell my 3-year old.  "Wheat makes me sick.  So I don't eat it."  End of story, really.  If they press, you can either take the "it's called celiac disease, and it's an autoimmune reaction that damages the intestines preventing me from absorbing nutrients in food leaving me very sick" route or the "I'm totally tired of talking about my medical history.  How was your weekend?" route.  Short, sweet, SIMPLE, but honest.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Renaye Contributor
Renaye
Posted

I don't like to go to parties either. The ones that bother me the most is going to my in-laws where food is heaven and everyone tries to go on a diet.. My kids always come home feeling sick. I am amazed of my attitude towards food now because there are really so many foods that is unhealthy. Even my kids notice the difference. What bothers me the most is that my mother in-law really tries to accomodate me by fixing me a baked potato, plain grilled meat and takes some vegetable out before dumping a sauce over it for me as I am diary free also. So I have this plate of food sitting on the counter, plain, while everyone is filling there plate with "real" food. It makes for a long day when you are there for both meals.

So the "tables turned" when I had my son's b-day party and I could eat almost everything. No one could believe it!!!

My suggestion is that if you don't feel comfortable, stay at home, just as long as your immediate family is ok with it. "I have other plans" should be enough for a social gathering but find something to do if you don't go because sitting at home and thinking about it will not be good for you either.

Sometimes when it is a long function, I would come later. It will get easier. I am still dealing with it. Bring a side dish that is inexpensive to share that you can make a meal on. No one may notice the difference or as suggested before, eat something before. I am still struggling with vacations. So far I booked a suite and it is a few blocks from Trader Joes, so I hope I am in good shape for my trip to Chicago!! Good Luck!!

Renaye

cap6 Enthusiast
cap6
Posted

Perfect. I've found it's all in the attitude.

But I hate. And I do mean HATE "I'm sorry", or "oh, that's terrible". You know what's terrible??? Being sick. And listening to other people who are sick, when they complain of symptoms that you know have a strong chance of being food related (and watching them shove that food down their throats).

That's terrible. That's who I feel sorry for.

Me, I'm BETTER!

Amen!!!    Ahhh  the replies the float thru my mind as I am smiling.......   lol!

Carolann444 Rookie
Carolann444
Posted

I know how you are feeling.  I have been on the diet again now for a few months.  After being told I don't have celiac to now finding a good doctor who has diagnosed me with celiac.  I feel great when I am on the diet.  But it gets old when people bring food into work, or everyone wants to go out to eat, or you go to a wedding and there is everything you can't eat, etc, etc.  I feel like I don't want to do anything either because I have very severe reactions and I can't afford, not like any of us can, a mistake with food.  It is difficult and I guess it gets easier but sometimes I feel like I just don't know what to do and I"m not prepared.

Hello, I have been going to parties,BBQ's,etc for the last few years since being dx'd but now I have started to decline invitations because I find it so hard to go and watch everyone else eat and comment on how good everything tastes and  having to pretend it doesn't bother me. I find it's easier to eat at home first rather than bring my own food to events because it's hard to heat it etc. with a lot of people around and I've had people ask to try my food,etc!!!.  People ask what they can get for me to have and can't understand why I won't use their grill,etc.I just don't like explaining it all the time....I guess i"m kind of burnt out from this!! I try but I feel like I'm becoming more and more antisocial....Anyone else go through this? Thanks

Carolann444 Rookie
Carolann444
Posted

I got sick of the social awkwardness that comes with bringing your own food or having to explain, so I stopped going. I'm not really involved in much that would require me to go, (I don't do church or anything like that) so it's usually not a big deal for me. When I have social eating functions, I have them at my house and I cook everything. If friends want to pitch in, I have them bring the raw ingredients and help me cook.

 

It isn't ideal, and I'll admit that I've become pretty depressed about the state of my life. I miss eating in restaurants, being normal...etc. I also am in recovery from an eating disorder that I developed as a result of gluten making me fear food. Since being in recovery, things have gotten a little better. I'm trying not to fear and just to trust that things will be okay if I do eat something. I'm also looking into enzymes that might (although I don't want to get my hopes up) help protect me from trace amounts from cross contamination. My main goal is to be able to eat out again.

Oh wow, I have had similiar things happen to me.  I was afraid to eat for awhile and lost weight and my doctor really got onto me about it!  I think that snapped me out of it some but I still think food is evil lol.  I had wondered if anyone else goes through this too.  I really need to be able to talk with others with celiac since no one around me seems to understand the severity of it.  And it seems I explain over and over and people don't get it.  I don't blame them though since I didn't understand it when I first learned about it.  I told someone the other day, you don't know what its like to go to a restaurant and see people pick up a menu and order whatever they want!  I know its healthier but it does make me feel like a freak or something.

christianmom247 Explorer
christianmom247
Posted

I was diagnosed with celiac over a year ago, and it's still hard to sit and watch everyone else eat food that I can't touch.  But it's no ones' fault--it's just the way it is.  I have this problem, but so many others I know have bigger burdens to bear.  So I just bring my own food, tell people honestly why I can't eat what's served, and count my blessings that the gluten-free diet has made me healthy again!

karichelle Newbie
karichelle
Posted

When we had my mother-in-law's birthday party, my husband and I volunteered to bring the cake. We got a gluten-free & vegan cake from an awesome bakery (the same one who made my bday cake last year) and took it, and everyone loved it.

 

This could be a good strategy for family events.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    3. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    4. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
    5. pothosqueen
      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      26F!
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748
    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  One of the symptoms of Thiamine deficiency is difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD symptoms as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
    • pothosqueen
      Celiac for dummies

      By pothosqueen · Posted

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.