Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do I Need More Test?

niese

Recommended Posts

niese Explorer
niese
Posted

I was diagnose with Celiac through a biopsy about month ago.  My dr then ordered blood work the script said Celiac Panel.  I get the results from that next week when I see him.   I am requesting  he check if I have any vitamin and mineral deficiencies and I want a food allergy test.  What else should I request? 

 

Thanks

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


nvsmom Community Regular
nvsmom
Posted

Thyroid disease is in over 10% of celiacs. If you want that checked request:

  • TSH - should be near a 1 ore you could be subclinical - and need treatment
  • Free T4 and Free T3 - should be in the 50-75% of your lab's normal reference range
  • TPO Ab - should be pretty low

Some like to get bone density checked too but it's usually not needed.

 

I can't remember, have you had your kids checked too?

niese Explorer
niese
Posted
  • Author

Thyroid disease is in over 10% of celiacs. If you want that checked request:

  • TSH - should be near a 1 ore you could be subclinical - and need treatment
  • Free T4 and Free T3 - should be in the 50-75% of your lab's normal reference range
  • TPO Ab - should be pretty low

Some like to get bone density checked too but it's usually not needed.

 

I can't remember, have you had your kids checked too?

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

1desperateladysaved Proficient
1desperateladysaved
Posted

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

Hang in there.  Some of mine are now being tested.  I just hope they had enough gluten to be positive if they need be!

nvsmom Community Regular
nvsmom
Posted

Thanks for the info, my kids are adults I advised them to be checked especially my daughter I see so many symptoms in her.  My son doesn't want tested.  I can't make them but I wish they would get tested. 

 Ah, I thought the little cuties in your avatar were your kids... if they are grandkids, they should be tested too. Chances are evryone is fine but it's good to check it out.  :)

 

Good luck with your appointment.

niese Explorer
niese
Posted
  • Author

 Ah, I thought the little cuties in your avatar were your kids... if they are grandkids, they should be tested too. Chances are evryone is fine but it's good to check it out.  :)

 

Good luck with your appointment.

Yes those are my grandchildren my oldest 7 and my youngest 1 month.  I advised both their parents to have them tested especially the oldest grandchild she complains alot about her belly hurting and she is a very picky eater eats alot of pasta and gets lots of headaches.  

notme Experienced
notme
Posted

i finally convinced my son to get my grandson tested (and figured if he had it, convince my son to eat gluten-free as well because he has digestive issues) and i have no idea what test they did or what the numbers were but the pediatrician told them feeding him gluten-free would actually be detrimental :(  they will probably never get him tested again and the poor kid has been to the emergency room twice already b/c he is so constipated.  it was sooooo sooo so hard to potty train him when his body gives him zero lead time....  :(  

 

i had a heck of a time learning not to lick my fingers and i have a shared kitchen, too.  i did it without even thinking i had done it ("did i just lick my fingers?  while making a gluten sandwich for somebody else?  surely i didn't......"  lolz)  

 

but you seem like you have a good idea what you're doing - hope you feel better soon :)  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


niese Explorer
niese
Posted
  • Author

i finally convinced my son to get my grandson tested (and figured if he had it, convince my son to eat gluten-free as well because he has digestive issues) and i have no idea what test they did or what the numbers were but the pediatrician told them feeding him gluten-free would actually be detrimental :(  they will probably never get him tested again and the poor kid has been to the emergency room twice already b/c he is so constipated.  it was sooooo sooo so hard to potty train him when his body gives him zero lead time....   :(

 

i had a heck of a time learning not to lick my fingers and i have a shared kitchen, too.  i did it without even thinking i had done it ("did i just lick my fingers?  while making a gluten sandwich for somebody else?  surely i didn't......"  lolz)  

 

but you seem like you have a good idea what you're doing - hope you feel better soon :)

I know what you mean about licking your fingers, I have done that myself but I am getting more conscious of it.  Sorry to hear about your grandson pray he gets well. wow sounds like he had a terrible dr hope they get a second option.  

notme Experienced
notme
Posted

I know what you mean about licking your fingers, I have done that myself but I am getting more conscious of it.  Sorry to hear about your grandson pray he gets well. wow sounds like he had a terrible dr hope they get a second option.  

i doubt they will - my son and the kid's mother are not together and i'm sure she doesn't regard my opinion as relevant - the best i may be able to do is get a copy of the test results (but i have asked and not gotten them.  i'm sure she doesn't want to 'fool' with it)  

 

(i know, right?  liiiick!   oops!!!  spit spit spit spit spit lolz)  <my husband always walks in and says something like, "oh, THAT'S ladylike...."  

 

here's another one - setting your napkin on the table (in crumbs when sharing a meal with gluten eaters) i always hold my napkin if it's going to wipe my mouth.  or set it in my lap.  or hold it with my elbow.  or put it on my head lolz anything but put it on the (OMGOSH IS THAT CRUMBS??) table. 

niese Explorer
niese
Posted
  • Author

i doubt they will - my son and the kid's mother are not together and i'm sure she doesn't regard my opinion as relevant - the best i may be able to do is get a copy of the test results (but i have asked and not gotten them.  i'm sure she doesn't want to 'fool' with it)  

 

(i know, right?  liiiick!   oops!!!  spit spit spit spit spit lolz)  <my husband always walks in and says something like, "oh, THAT'S ladylike...."  

 

here's another one - setting your napkin on the table (in crumbs when sharing a meal with gluten eaters) i always hold my napkin if it's going to wipe my mouth.  or set it in my lap.  or hold it with my elbow.  or put it on my head lolz anything but put it on the (OMGOSH IS THAT CRUMBS??) table. 

Oh my I never gave the napkin a thought, usually it is on my lap.  I did stop putting my fork on the table when I set it.  

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    2. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
    3. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless...
    4. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      32

      My journey is it gluten or fiber?

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system?
    5. SamAlvi
      - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,845
    • Most Online (within 30 mins)
      7,748
    Paulaannefthimiou
    Newest Member
    Paulaannefthimiou
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I made it through the holiday w/o being glutened. I had my brother cook with gluten-free breadcrumbs and I didn't get sick. I baked cookies with gluten-free flour and had dry ingredients for cookies in ziplock bag. I also made gluten cookies as well and guess I did good washing to avoid CC. My wife also went to a french bakery and bought a gluten-free flourless chocolate cake dedicated gluten-free it was out of this world. 
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      What do you mean it would not allow any celiac to eat gluten again. I think if this helps cross contamination when eating out at a non dedicated gluten-free restaurant this would be nice not to encounter the pains. But is their a daily enzyme to take to help strengthen the digestive system? 
    • SamAlvi
      High TTG-IgG and Normal TTG-IgA

      By SamAlvi · Posted

      Hi, thank you for the reply. Unfortunately, no other antibody tests were ordered. I am a 32-year-old male. About two months ago, I ate pancakes and then developed severe diarrhea that lasted the entire day. At night, I became unconscious due to fluid loss and was admitted to the ER, where I received IV fluids. Two days later, I ate bread again and once more developed severe diarrhea. I ended up in the ER again and received IV fluids. In my country, Pakistan, doctors are unfortunately not very thorough, so they treated me for a stomach infection. I visited three or four doctors, including a gastroenterologist, but it seemed like they just wanted to keep me on medications and IV fluids. Eventually, I did some digging myself and started connecting the dots. For years, I’ve had excessive gas buildup and frequent loose stools, but I never paid much attention to it. I also cannot easily digest dairy products. Two years ago, I had a CBC test that showed iron deficiency. My doctor told me to eat more meat and said it was nothing serious. However, for the past five years, I’ve also had severe motion sickness, which I never experienced before. Whenever I get on a bus or in a car, I sometimes lose consciousness for 10–20 seconds and wake up sweaty, and occasionally I feel the need to vomit. After more research on the internet, I came across gluten and celiac disease, so I got two related tests (TTG-IgA & TTG IgG) done along with a stool test and another CBC. The stool test showed weakly positive blood. Ever since eating those pancakes and bread, I’ve had a burning sensation in my gut. My doctor reviewed my tests, he told me to completely stop eating gluten and started me on IV fluids for 20 days, saying that I had severe inflammation in my gut. It has now been two months since I quit gluten, and I’m still not sure whether this is celiac disease or gluten intolerance. I don’t really trust doctors in Pakistan, so I thought I might get some help here.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.