Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Periods Aches!


designerstubble

Recommended Posts

designerstubble Enthusiast

Hi there

Just a quickie...

Before dx 8 mths ago I had light periods every 21ish days... But i'm pretty sure I'd stopped ovulating.

Now, gluten-free 8 mths, periods are 'normal'... every 27-28 days, boobs grew back (they'd disappeared!)...and I'm sure I am ovulating again... BUT (there's always a but!!) I have been suffering the last 3 periods with really achy legs???

 

I have never had achy legs before with a period? I get the achy back and mild cramping, but nothing dreadful, the last 3 periods have wiped me out too... It feels a bit like a mild flu, hips thighs and knees.

Anyone had anything similar?

Many thanks

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I used to get bone aches during my periods.  I'm not sure what it is but I know hormones can cause fluid retention and maybe that is it? 

designerstubble Enthusiast

I used to get bone aches during my periods.  I'm not sure what it is but I know hormones can cause fluid retention and maybe that is it? 

Yeah, I guess I get a bit bloated too actually... Now that you come to mention it... I suppose it feels kinda boney?! It's really hard to distinguish! Its just dull and achy!! And horrible.

Celiac Mindwarp Community Regular

Hiya

I had terrible heavy periods before gluten-free, with migraine, 2 days of cramping, often a day in bed, aching from armpits to knees, PMS for a week before, plus ovulation pain.

 

It improved when I went gluten-free, lighter, less pain. When I went paleo the first month was terrible again. After that, I have made sure I had extra startch for 2-3 days before I was due, and have been much better, to the extent that I have to keep a note of when I am due, as it can creep up on me. This NEVER happened before!!

 

This month, I was a bit hardcore, trying to lose some more weight, and didn't follow my extra startch rule, and have had a worse period again this week.

 

So, back to a nice big jacket potato for 3 days before I am due next month.

 

Good luck :rolleyes:

VeggieGal Contributor

I have been in terrible pain with my periods since I went gluten-free. For one day or two days I am totally wiped out, dizzy, sickly, doubled up with tummy pain but my main new symptom is severe pain down my thighs to the knees..Im dreading the next one and was wondering if it was something more serious.

Sorry you are going through it as well and hope it settles down soon.

I didnt know about the extra starch CMW, so I'll give it ago.

love2travel Mentor

Since I was 12, my cramps have been extremely painful. The last two years my back, legs, hips and boobs become exceedingly tender. So sore that even having a shower hurts badly. So, I sympathize with what you go through.

powerofpositivethinking Community Regular

it's only my 4th period gluten-free, so I am very hopeful things will improve.  My boobs were never sore pre-gluten-free, so maybe that's my new signal that it's coming because they have hurt before each one since going gluten free. I'm two days into this one, and I have had painful cramps today.  my period also came 8 days early...yuck  :o

 

a little back story...i was on Yaz from October 2009 until December 2011.  Once I stopped that I called my ob/gyn in May of 2012 to say that I hadn't had a period since December, so I had to take the provera pill to start it.  I had always been fairly regular before the pill, and I had taken another BC pill before and my period returned normally after that time.  S...l...o...w...l...y since May of last year my period has been trying to normalize itself.  In time, in time  :)

 

edit:  I meant to add I also felt nauseous this morning, and I never get that feeling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

I discovered the starch thing by accident. It is the 3 days I used to eat chocolate but can't any more!! Who'da thought potato would replace chocolate....

VeggieGal Contributor

I discovered the starch thing by accident. It is the 3 days I used to eat chocolate but can't any more!! Who'da thought potato would replace chocolate....

Nothing can replace chocolate!! Do I have to cut it out? Can't I just eat starch/potatoes as well ? Please?? ... I NEED chocolate for my mood lol :)

kareng Grand Master

Nothing can replace chocolate!! Do I have to cut it out? Can't I just eat starch/potatoes as well ? Please?? ... I NEED chocolate for my mood lol :)

 

 

You and I can eat chocolate.  CMW seems to have been cursed and cannot eat chocolate.  Poor thing!  :(

VeggieGal Contributor

You and I can eat chocolate. CMW seems to have been cursed and cannot eat chocolate. Poor thing! :(

Awww sorry CMW....could Carob be an alternative? I've just had a 9bar (gluten free/dairy free) and it was yum !

Celiac Mindwarp Community Regular

I went cold turkey and I am dealing with it. Better than all the rubbish it brings :)

If you can eat it, go ahead (maybe when I am not in the room :) )

designerstubble Enthusiast

Omg, I'm not the only one then... As much as I know how crap it is, I am comforted that there are others.

Potato! Funnily enough, my diet (which due to many many intolerances) is restricted... BUT I loaded up on the humble potato before my period, and for 3 days I actually ate a baked potato with a veggie rice!! Double starch!! I craved it baaaad! I can't tolerate much choc, a little... so I do have a square... but thats it.

 

Veggie Gal, I am like you, feeling wiped, nauseous... feeling like an intravenous sugar drip needs to be inserted... Felt like total crud, a day or two in bed would've been sooo a welcome, if only. Yesterday I spent all evening snivelling. My tummy and back ache is average I'd say, hurts but I can function... but the legs... like you... from hips to knees?? Its weird, NEVER EVER had it before and I too was also wondering if it was something more serious?

 

What could it be?

 

I am day 4-5 period wise now, aches and pains still there though slightly better... but today I had a little more energy. Ugh. I'm sure the adrenals, hormones, thyroid all work together... I am going to look into it! I have been doing my usual horror story scenario and been crying today (I do this when something else happens to me, ALWAYS think the worst).

 

Can anyone please tell me where to buy a positive attitude? :)

designerstubble Enthusiast

Ps. I know endometriosis may cause bad pain in legs, and abdomen... and when I had a quick scan on yesterday, apparently you are supposed to report any leg pain during period to your doctor. Which in itself fills me with dread... (having to talk to my doctor)

VeggieGal Contributor

Ps. I know endometriosis may cause bad pain in legs, and abdomen... and when I had a quick scan on yesterday, apparently you are supposed to report any leg pain during period to your doctor. Which in itself fills me with dread... (having to talk to my doctor)

I'll mention it to my doctor...like you I always think the worst, but best to get it checked.

Ps. If you find out where to get a PMA, please let me know :)

CMW/DS.... if you miss chocolate, have a look into carob, its also got some health benefits.

designerstubble Enthusiast

I'll mention it to my doctor...like you I always think the worst, but best to get it checked.

Ps. If you find out where to get a PMA, please let me know :)

CMW/DS.... if you miss chocolate, have a look into carob, its also got some health benefits.

Ok, let me know what your doc thinks... I'll do the same and post back (wont be for about a week or so), like you say... best to get it checked out hey? :) and let me know if the potato helps you... I'll eat 5 if have to? 

 

PMA anyone... somebody heeeeeeelllllllp!!!! 

Aaaaaaaaaarrgh!

eblue Apprentice

Hi there

Just a quickie...

Before dx 8 mths ago I had light periods every 21ish days... But i'm pretty sure I'd stopped ovulating.

Now, gluten-free 8 mths, periods are 'normal'... every 27-28 days, boobs grew back (they'd disappeared!)...and I'm sure I am ovulating again... BUT (there's always a but!!) I have been suffering the last 3 periods with really achy legs???

 

I have never had achy legs before with a period? I get the achy back and mild cramping, but nothing dreadful, the last 3 periods have wiped me out too... It feels a bit like a mild flu, hips thighs and knees.

Anyone had anything similar?

Many thanks

I always have aches in my legs when its that time of the month. They are horrible! I have horrible cramps and extremely heavy periods. My legs hurt to the touch. Im hoping that it will get better in a few months from going gluten free (I was only diagnosed last month)..I always figured it was fluid retention

VeggieGal Contributor

My leg pains only got unbearable after going gluten-free so I'm seeing doctor next week, but i'll try this....(unfortunately, I'm not sure I can take ibuprofen due to asthma).

Following info from  Open Original Shared Link ........

If you can predict a day or two ahead of when your period usually starts, you can lessen or prevent these leg cramps by taking ibuprofen. The cramps are due to prostaglandins that are being released by your body to help shed the lining in your uterus and bring about your period. Unfortunately, prostaglandins don’t just affect the uterine muscles, but can cause cramps in other muscles too. By taking the ibuprofen before you even have cramps, you prevent the prostaglandins from having a place to attach to the muscle and cause cramps

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748

    klkarius
    Newest Member
    klkarius
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.