Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Periods Aches!


designerstubble

Recommended Posts

designerstubble Enthusiast

Hi there

Just a quickie...

Before dx 8 mths ago I had light periods every 21ish days... But i'm pretty sure I'd stopped ovulating.

Now, gluten-free 8 mths, periods are 'normal'... every 27-28 days, boobs grew back (they'd disappeared!)...and I'm sure I am ovulating again... BUT (there's always a but!!) I have been suffering the last 3 periods with really achy legs???

 

I have never had achy legs before with a period? I get the achy back and mild cramping, but nothing dreadful, the last 3 periods have wiped me out too... It feels a bit like a mild flu, hips thighs and knees.

Anyone had anything similar?

Many thanks

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

I used to get bone aches during my periods.  I'm not sure what it is but I know hormones can cause fluid retention and maybe that is it? 

designerstubble Enthusiast

I used to get bone aches during my periods.  I'm not sure what it is but I know hormones can cause fluid retention and maybe that is it? 

Yeah, I guess I get a bit bloated too actually... Now that you come to mention it... I suppose it feels kinda boney?! It's really hard to distinguish! Its just dull and achy!! And horrible.

Celiac Mindwarp Community Regular

Hiya

I had terrible heavy periods before gluten-free, with migraine, 2 days of cramping, often a day in bed, aching from armpits to knees, PMS for a week before, plus ovulation pain.

 

It improved when I went gluten-free, lighter, less pain. When I went paleo the first month was terrible again. After that, I have made sure I had extra startch for 2-3 days before I was due, and have been much better, to the extent that I have to keep a note of when I am due, as it can creep up on me. This NEVER happened before!!

 

This month, I was a bit hardcore, trying to lose some more weight, and didn't follow my extra startch rule, and have had a worse period again this week.

 

So, back to a nice big jacket potato for 3 days before I am due next month.

 

Good luck :rolleyes:

VeggieGal Contributor

I have been in terrible pain with my periods since I went gluten-free. For one day or two days I am totally wiped out, dizzy, sickly, doubled up with tummy pain but my main new symptom is severe pain down my thighs to the knees..Im dreading the next one and was wondering if it was something more serious.

Sorry you are going through it as well and hope it settles down soon.

I didnt know about the extra starch CMW, so I'll give it ago.

love2travel Mentor

Since I was 12, my cramps have been extremely painful. The last two years my back, legs, hips and boobs become exceedingly tender. So sore that even having a shower hurts badly. So, I sympathize with what you go through.

powerofpositivethinking Community Regular

it's only my 4th period gluten-free, so I am very hopeful things will improve.  My boobs were never sore pre-gluten-free, so maybe that's my new signal that it's coming because they have hurt before each one since going gluten free. I'm two days into this one, and I have had painful cramps today.  my period also came 8 days early...yuck  :o

 

a little back story...i was on Yaz from October 2009 until December 2011.  Once I stopped that I called my ob/gyn in May of 2012 to say that I hadn't had a period since December, so I had to take the provera pill to start it.  I had always been fairly regular before the pill, and I had taken another BC pill before and my period returned normally after that time.  S...l...o...w...l...y since May of last year my period has been trying to normalize itself.  In time, in time  :)

 

edit:  I meant to add I also felt nauseous this morning, and I never get that feeling.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celiac Mindwarp Community Regular

I discovered the starch thing by accident. It is the 3 days I used to eat chocolate but can't any more!! Who'da thought potato would replace chocolate....

VeggieGal Contributor

I discovered the starch thing by accident. It is the 3 days I used to eat chocolate but can't any more!! Who'da thought potato would replace chocolate....

Nothing can replace chocolate!! Do I have to cut it out? Can't I just eat starch/potatoes as well ? Please?? ... I NEED chocolate for my mood lol :)

kareng Grand Master

Nothing can replace chocolate!! Do I have to cut it out? Can't I just eat starch/potatoes as well ? Please?? ... I NEED chocolate for my mood lol :)

 

 

You and I can eat chocolate.  CMW seems to have been cursed and cannot eat chocolate.  Poor thing!  :(

VeggieGal Contributor

You and I can eat chocolate. CMW seems to have been cursed and cannot eat chocolate. Poor thing! :(

Awww sorry CMW....could Carob be an alternative? I've just had a 9bar (gluten free/dairy free) and it was yum !

Celiac Mindwarp Community Regular

I went cold turkey and I am dealing with it. Better than all the rubbish it brings :)

If you can eat it, go ahead (maybe when I am not in the room :) )

designerstubble Enthusiast

Omg, I'm not the only one then... As much as I know how crap it is, I am comforted that there are others.

Potato! Funnily enough, my diet (which due to many many intolerances) is restricted... BUT I loaded up on the humble potato before my period, and for 3 days I actually ate a baked potato with a veggie rice!! Double starch!! I craved it baaaad! I can't tolerate much choc, a little... so I do have a square... but thats it.

 

Veggie Gal, I am like you, feeling wiped, nauseous... feeling like an intravenous sugar drip needs to be inserted... Felt like total crud, a day or two in bed would've been sooo a welcome, if only. Yesterday I spent all evening snivelling. My tummy and back ache is average I'd say, hurts but I can function... but the legs... like you... from hips to knees?? Its weird, NEVER EVER had it before and I too was also wondering if it was something more serious?

 

What could it be?

 

I am day 4-5 period wise now, aches and pains still there though slightly better... but today I had a little more energy. Ugh. I'm sure the adrenals, hormones, thyroid all work together... I am going to look into it! I have been doing my usual horror story scenario and been crying today (I do this when something else happens to me, ALWAYS think the worst).

 

Can anyone please tell me where to buy a positive attitude? :)

designerstubble Enthusiast

Ps. I know endometriosis may cause bad pain in legs, and abdomen... and when I had a quick scan on yesterday, apparently you are supposed to report any leg pain during period to your doctor. Which in itself fills me with dread... (having to talk to my doctor)

VeggieGal Contributor

Ps. I know endometriosis may cause bad pain in legs, and abdomen... and when I had a quick scan on yesterday, apparently you are supposed to report any leg pain during period to your doctor. Which in itself fills me with dread... (having to talk to my doctor)

I'll mention it to my doctor...like you I always think the worst, but best to get it checked.

Ps. If you find out where to get a PMA, please let me know :)

CMW/DS.... if you miss chocolate, have a look into carob, its also got some health benefits.

designerstubble Enthusiast

I'll mention it to my doctor...like you I always think the worst, but best to get it checked.

Ps. If you find out where to get a PMA, please let me know :)

CMW/DS.... if you miss chocolate, have a look into carob, its also got some health benefits.

Ok, let me know what your doc thinks... I'll do the same and post back (wont be for about a week or so), like you say... best to get it checked out hey? :) and let me know if the potato helps you... I'll eat 5 if have to? 

 

PMA anyone... somebody heeeeeeelllllllp!!!! 

Aaaaaaaaaarrgh!

eblue Apprentice

Hi there

Just a quickie...

Before dx 8 mths ago I had light periods every 21ish days... But i'm pretty sure I'd stopped ovulating.

Now, gluten-free 8 mths, periods are 'normal'... every 27-28 days, boobs grew back (they'd disappeared!)...and I'm sure I am ovulating again... BUT (there's always a but!!) I have been suffering the last 3 periods with really achy legs???

 

I have never had achy legs before with a period? I get the achy back and mild cramping, but nothing dreadful, the last 3 periods have wiped me out too... It feels a bit like a mild flu, hips thighs and knees.

Anyone had anything similar?

Many thanks

I always have aches in my legs when its that time of the month. They are horrible! I have horrible cramps and extremely heavy periods. My legs hurt to the touch. Im hoping that it will get better in a few months from going gluten free (I was only diagnosed last month)..I always figured it was fluid retention

VeggieGal Contributor

My leg pains only got unbearable after going gluten-free so I'm seeing doctor next week, but i'll try this....(unfortunately, I'm not sure I can take ibuprofen due to asthma).

Following info from  Open Original Shared Link ........

If you can predict a day or two ahead of when your period usually starts, you can lessen or prevent these leg cramps by taking ibuprofen. The cramps are due to prostaglandins that are being released by your body to help shed the lining in your uterus and bring about your period. Unfortunately, prostaglandins don’t just affect the uterine muscles, but can cause cramps in other muscles too. By taking the ibuprofen before you even have cramps, you prevent the prostaglandins from having a place to attach to the muscle and cause cramps

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748

    Bryan s
    Newest Member
    Bryan s
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.