Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You Don't Get Glutened

Pegleg84

By Pegleg84
in Coping with Celiac Disease

Recommended Posts

Pegleg84 Collaborator
Pegleg84
Posted

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!
As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aeraen Apprentice
aeraen
Posted

I travel frequently, and must admit the only time I've had no issues is when I brought and ate my own food.  However, I don't live too far from Chicago, and my husband and I like to visit at least once a year.  I'll be taking your restaurant list with me the next time I go. 

HumanDecency Contributor
HumanDecency
Posted

Thanks for making me smile! I'll be adding Chicago to the vacation list.

I'm still working on eating at home... but hopefully someday restaurants will be back in the itinerary "other than water"

Tbolt47 Newbie
Tbolt47
Posted

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!

As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Hello Pegleg84,

 

Born and raised in Chicago and prior to being diagnosed with Celiacs it is without a doubt one of the best cities anywhere if you enjoy food, and who doesn't. One of the foods I miss most is Deep dish Pizza . There are fair number of places to get very good thin crust gluten-free pizza but not Deep Dish. Very encouraging you had such great success with your diet on vacation. I am curious, so alcohol does not bother your Celiac's ? I have not found a Gluten Free Beer I like and really all forms of alcohol ( wine, gluten-free Beer, gluten-free Vodka etc.) gives me the same symptoms as though I have consumed gluten. I have been gluten-free for aprox. 6 months.

GottaSki Mentor
GottaSki
Posted

I'm headed to Chicago in the Fall -- thanks Peg for a great starting list!

 

Glad to hear you had such a wonderful trip :)

Pegleg84 Collaborator
Pegleg84
Posted
  • Author

I guess I put a little too much emphasis on the Chicago part of this post. I'm wondering about people's good experiences with... whatever. Maybe it's a family dinner that went well, or discovering that your local gluten-free bakery now makes doughnuts, or just going more than a month without any issues. "Yay! No glutening!" *happy dance* moments.

Gemini Experienced
Gemini
Posted

I've been doing this for 8 years now and can honestly say it's a rare day when I am glutened.  You become more confident and educated as time goes by and that helps greatly.  I go to the UK or Ireland every other year and usually have great success with that.  I am extremely sensitive also and get sick from crumbs....really sick.  But I also bounce back much quicker because I am healed and well now....no deficiencies to slow that down. 

 

It is very possible to travel successfully while gluten-free.  I usually eat breakfast in and the only meal I eat out at is dinner.  It really is a good feeling when you accomplish this and further boosts your confidence.  No one should put off travel because they are afraid to eat meals outside of the home.  Unless you have multiple intolerances, even the most sensitive of us can travel and not spend the entire time sick. I am going to the UK in September/ October and I don't even take that much food with me. I buy it there as their supermarkets carry many gluten-free items.

Taking a suitcase of food, when you have other suitcases to lug around, is a royal pain in the arse.  I guess it all depends on where you go.

 

NYC is extremely gluten-free friendly also and a great city to visit...ditto for Boston!  I have a nephew in Chicago so will visit there sometime and take this list with me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,955
    • Most Online (within 30 mins)
      7,748
    AnnaLousGFBakery
    Newest Member
    AnnaLousGFBakery
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.