Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

When You Don't Get Glutened

Pegleg84

By Pegleg84
in Coping with Celiac Disease

Recommended Posts

Pegleg84 Collaborator
Pegleg84
Posted

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!
As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


aeraen Apprentice
aeraen
Posted

I travel frequently, and must admit the only time I've had no issues is when I brought and ate my own food.  However, I don't live too far from Chicago, and my husband and I like to visit at least once a year.  I'll be taking your restaurant list with me the next time I go. 

HumanDecency Contributor
HumanDecency
Posted

Thanks for making me smile! I'll be adding Chicago to the vacation list.

I'm still working on eating at home... but hopefully someday restaurants will be back in the itinerary "other than water"

Tbolt47 Newbie
Tbolt47
Posted

Oh, Chicago, how I love thee!

 

This weekend I went to Chicago, again. For the 2nd time, it was one of the best gluten-free culinary experiences of any city I've been in. It's everywhere! and they seem to be much more conscious of cc and such because, for the 2nd time, I've been home for a couple days and NO GLUTENING! Yay!! I was even brave (or stupid) and ate the burrito stuff (in a bowl) they were using to make burritos at the BBQ, which could have been a CC disaster, but seems to be agreeing with me quite well. I had a few bathroom troubles, but they were more nerves/alcohol/forgot to take my enzymes related, and nothing to worry about.

 

Coming back from vacation without one bad incident feels like a victory! Gluten free happy dance!

As my boyfriend said, I should have all my meals flown in from Chicago. n

 

So, does anyone else have "victory" stories, times when you've done everything right AND it all turned out ok. Gluten-free happy dance moments?

 

Also, if you're ever in Chicago, go to Prasino's for the best gluten-free sandwich, Bountiful Eatery for entirely gluten-free fast food, and Big Star for the best tacos you will ever have (they only use corn tortillas).

And beer. Lots and lots of beer.

 

Cheers!

Peg

Hello Pegleg84,

 

Born and raised in Chicago and prior to being diagnosed with Celiacs it is without a doubt one of the best cities anywhere if you enjoy food, and who doesn't. One of the foods I miss most is Deep dish Pizza . There are fair number of places to get very good thin crust gluten-free pizza but not Deep Dish. Very encouraging you had such great success with your diet on vacation. I am curious, so alcohol does not bother your Celiac's ? I have not found a Gluten Free Beer I like and really all forms of alcohol ( wine, gluten-free Beer, gluten-free Vodka etc.) gives me the same symptoms as though I have consumed gluten. I have been gluten-free for aprox. 6 months.

GottaSki Mentor
GottaSki
Posted

I'm headed to Chicago in the Fall -- thanks Peg for a great starting list!

 

Glad to hear you had such a wonderful trip :)

Pegleg84 Collaborator
Pegleg84
Posted
  • Author

I guess I put a little too much emphasis on the Chicago part of this post. I'm wondering about people's good experiences with... whatever. Maybe it's a family dinner that went well, or discovering that your local gluten-free bakery now makes doughnuts, or just going more than a month without any issues. "Yay! No glutening!" *happy dance* moments.

Gemini Experienced
Gemini
Posted

I've been doing this for 8 years now and can honestly say it's a rare day when I am glutened.  You become more confident and educated as time goes by and that helps greatly.  I go to the UK or Ireland every other year and usually have great success with that.  I am extremely sensitive also and get sick from crumbs....really sick.  But I also bounce back much quicker because I am healed and well now....no deficiencies to slow that down. 

 

It is very possible to travel successfully while gluten-free.  I usually eat breakfast in and the only meal I eat out at is dinner.  It really is a good feeling when you accomplish this and further boosts your confidence.  No one should put off travel because they are afraid to eat meals outside of the home.  Unless you have multiple intolerances, even the most sensitive of us can travel and not spend the entire time sick. I am going to the UK in September/ October and I don't even take that much food with me. I buy it there as their supermarkets carry many gluten-free items.

Taking a suitcase of food, when you have other suitcases to lug around, is a royal pain in the arse.  I guess it all depends on where you go.

 

NYC is extremely gluten-free friendly also and a great city to visit...ditto for Boston!  I have a nephew in Chicago so will visit there sometime and take this list with me!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,116
    • Most Online (within 30 mins)
      7,748
    Mary Pack
    Newest Member
    Mary Pack
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      I assume that you already know that genetic testing for celiac disease cannot be used to confirm a celiac diagnosis. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. It can be used to rule out celiac disease with a high degree of confidence, however, in the case where the genetic testing is negative for the genes. Until and unless you are actually diagnosed with celiac disease I would not raise this as an issue with family. However, if you are diagnosed with celiac disease through blood antibody testing and/or endoscopy with positive biopsy I would suggest you encourage first degree relatives to also purse testing because there is a significant chance (somewhere betwee 10% and almost 50%, depending on which studies you reference) that they will also have or will develop active celiac disease. Often, there are symptoms are absent or very minor until damage to the small bowel lining or other body systems becomes significant so be prepared that they may blow you off. We call this "silent celiac disease". 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      If you were off gluten for two months that would have been long enough to invalidate the celiac blood antibody testing. Many people make the same mistake. They experiment with the gluten free diet before seeking formal testing. Once you remove gluten from the diet the antibodies stop being produced and those that are already in circulation begin to be removed and often drop below detectable levels. To pursue valid testing for celiac disease you would need to resume gluten consumption equivalent to the amount found in 4-6 slices of wheat bread daily for at least two weeks, preferably longer. These are the most recent guidelines for the "gluten challenge". Without formal testing there is no way to distinguish between celiac disease and gluten sensitivity since their symptoms overlap. However, celiac disease is an autoimmune disorder that damages the small bowel lining, not true of gluten sensitivity. There is no test available for gluten sensitivity so celiac disease must first be ruled out. By the way, elevated liver enzymes was what led to my celiac diagnosis almost 25 years ago.
    • trents
      High DGP-A with normal IGA

      By trents · Posted

      Then it does not seem to me that a gluten-related disorder is at the heart of your problems, unless that is, you have refractory celiac disease. But you did not answer my question about how long you had been eating gluten free before you had the blood antibody test for celiac disease done.
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      My genetic test results have arrived - I’m homozygous for DQB1*02, meaning I have HLA-DQ2. I’ve read that this is one of the genes most strongly associated with celiac disease, and my symptoms are very clear. I’m relieved that the results finally arrived, as I was getting quite worried since my symptoms have been getting worse. Next step, blood test. What do these results imply? What should I tell my family? I’m concerned that this genetic predisposition might also affect other family members.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Two months. In extreme situations like this where it’s clearly a smoking gun? I’m in LA so went to a very big hospital for pcp and gi and nutritionist 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.