Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Promising Scope...waiting On Bloodwork

wmramsel

Recommended Posts

wmramsel Explorer
wmramsel
Posted

We did the scope and biopsy and blood work.  The GI said that he did not see any damage to her villi, but he qualified that by saying he wasn't surprised because she is so young and has been off of gluten most of her life.  He said it will be the blood work and biopsy that really show if she is Celiac.  He said he thinks she definitely had a gluten problem (obviously).  

Meanwhile, she got glutoned somehow yesterday and threw up today and have multiple gross poops.  The only thing I can think of is the restaurant we went to yesterday that claimed their gluten free fair was prepared and cooked separately.  **Sigh**

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommy2krj Explorer
mommy2krj
Posted

Oy. Sorry she got glutened yesterday! :(

Hope you get some answers from this!

 

I'm really beginning to stress out about my little guy's endoscope tomorrow. And the afterwards when I have to actually start with the gluten free diet. My menu planning skills absolutely stink. :/ My brain has just shut down and I'm no longer thinking clearly about food. *sigh* Like right now, I can't for the life of me figure out what to feed my family for lunch when we go gluten free. No real reason...I know there is plenty but I'm just coming up blank.

It would help if my kids weren't all so picky. This is going to be a rough road in the beginning.

 

Anyway...sorry for that little rant. I'm frustrated to the point of tears and should really just walk away from trying to figure this all out right now but I know it isn't going to be any easier tomorrow or the next day. Sure which I had better planning skills!

notme Experienced
notme
Posted

Oy. Sorry she got glutened yesterday! :(

Hope you get some answers from this!

 

I'm really beginning to stress out about my little guy's endoscope tomorrow. And the afterwards when I have to actually start with the gluten free diet. My menu planning skills absolutely stink. :/ My brain has just shut down and I'm no longer thinking clearly about food. *sigh* Like right now, I can't for the life of me figure out what to feed my family for lunch when we go gluten free. No real reason...I know there is plenty but I'm just coming up blank.

It would help if my kids weren't all so picky. This is going to be a rough road in the beginning.

 

Anyway...sorry for that little rant. I'm frustrated to the point of tears and should really just walk away from trying to figure this all out right now but I know it isn't going to be any easier tomorrow or the next day. Sure which I had better planning skills!

look in the cooking and baking forum - maybe you will find some ideas - or post your own thread about lunch ideas for kids :)  we have a bunch of people on here who like to play with their food!  you will do fine feeding them, it's just a little much in the beginning.  

 

and there's no such thing as an 'unnecessary rant' around here - all rants are valid! lolz - i throw even myself a pity party every now and again.  good luck with the 'scope' - one step at a time.  you're the mama, you can do it!!

mommy2krj Explorer
mommy2krj
Posted

look in the cooking and baking forum - maybe you will find some ideas - or post your own thread about lunch ideas for kids :)  we have a bunch of people on here who like to play with their food!  you will do fine feeding them, it's just a little much in the beginning.  

 

and there's no such thing as an 'unnecessary rant' around here - all rants are valid! lolz - i throw even myself a pity party every now and again.  good luck with the 'scope' - one step at a time.  you're the mama, you can do it!!

Thanks! I've been trying to stay positive about all this because my youngest is really very good at reading me and I didn't want him worrying any more than he already was. Poor kid has been terrified that they were going to cut open his stomach and I don't know where he got that from. :(

I will probably post my own thread about food for kids....I just keep running into small recipes that only feed one or two and there are 5 of us here and one is a bottomless pit of a teenage boy! I will keep plugging away at it and figure it out....my brain is just done for a while. Don't think it helps that I'm sick on top of it. Still fighting off the cold I caught after we got strep...good grief.

Sorry WM for hijacking your thread though.

wmramsel Explorer
wmramsel
Posted
  • Author

Thanks! I've been trying to stay positive about all this because my youngest is really very good at reading me and I didn't want him worrying any more than he already was. Poor kid has been terrified that they were going to cut open his stomach and I don't know where he got that from. :(

I will probably post my own thread about food for kids....I just keep running into small recipes that only feed one or two and there are 5 of us here and one is a bottomless pit of a teenage boy! I will keep plugging away at it and figure it out....my brain is just done for a while. Don't think it helps that I'm sick on top of it. Still fighting off the cold I caught after we got strep...good grief.

Sorry WM for hijacking your thread though.

 

 

DON"T APOLOGIZE!!  Seriously, this is all so stressful and confusing.  I worked on it an hour or so a day.  We are probably going gluten free as a household when we get back from vacation.  It doesn't help that my MIL thinks she is "helping" when she buys junk food that says gluten-free on it.  I wouldn't let her eat this crap anyway!!!  Ugh. 

mommy2krj Explorer
mommy2krj
Posted

Oh yeah...my MIL is the same way and my stepmom. The only one that really seems to listen at all is my mom. *sigh*

 

My dad keeps telling me it's not going to be a big deal because there's so many restaurants that offer gluten free (and yes there are quite a few) but so far only one of them that I know of has dedicated space or way of keeping away the cc and that's Chuck E Cheese. Oy. He isn't really getting the cc part of it all. But at least he isn't looking at me like I'm nuts with this one like he did when my oldest  boy was diagnosed with ADHD.

 

Fun stuff I tell ya. Thanks for the replies and understanding. :)

justa Newbie
justa
Posted

The endoscope is way worse for us a parents. The just go to sleep and it only takes about 15 mins.

It really is not bad

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommy2krj Explorer
mommy2krj
Posted

The endoscope is way worse for us a parents. The just go to sleep and it only takes about 15 mins.

It really is not bad

It really wasn't. And it was barely 15 minutes! They told us we had half an hour so we went to eat (since we didn't eat anything as the little guy wasn't allowed to) and all we did was go to the hospital cafeteria! Got back and they were cranky that we had left the room! Good grief. We were only gone for 20 minutes! Oy. Still waiting on the results. Hopefully the nurse calls me tomorrow with them...we have an appointment with the GI doc on Friday to go over them but they said they'd call as soon as they got the results so I didn't have to worry about them all week.

I just had no idea what to expect. My husband had an endoscope done several years ago, but I know things are always different for kids than they are for adults and I couldn't remember if my husband was in any pain or anything afterwards. All I can remember is how loopy he was from the medications they give the adults. :)

justa Newbie
justa
Posted

Glad it went smooth

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    2. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    3. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    5. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748
    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.