Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Starting Over Everytime Time I Get Glutened?


Mike212

Recommended Posts

Mike212 Rookie

I am 15 and was diagnosed with celiac disease about a month ago and have been gluten free for about 3 weeks until now when i ingested some gluten. I know cuz I started having really bad gas. So my question is everytime i get glutened is it like COMPLETELY starting over with the diet and completely destroy my villi or does it only hurt my progress moderately?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mommy2krj Explorer

I'm rather new to all this....more so even than you are! :) But, from what I understand, it's not so much that you're starting over. Your body is attempting to heal itself and getting exposed to gluten hinders that. But I don't think it takes you back to square one.

 

I think of it more like, if you have a cut and it's started to heal but then you do something to tear it open a little bit, it takes a little longer for it to heal completely but the healing process doesn't have to start over completely....just has to work harder on that one area for a little bit longer. But, on the same token....if you repeatedly reopen the cut without any time to heal at all...that will set you back to square one and then some because you keep damaging it.

 

Of course...I could be completely off....but that is the way I understand it all at this point. So, I think you only kind of hurt the healing progress a little bit....depending on how bad your body reacts to the gluten.

Mike212 Rookie

I'm rather new to all this....more so even than you are! :) But, from what I understand, it's not so much that you're starting over. Your body is attempting to heal itself and getting exposed to gluten hinders that. But I don't think it takes you back to square one.

 

I think of it more like, if you have a cut and it's started to heal but then you do something to tear it open a little bit, it takes a little longer for it to heal completely but the healing process doesn't have to start over completely....just has to work harder on that one area for a little bit longer. But, on the same token....if you repeatedly reopen the cut without any time to heal at all...that will set you back to square one and then some because you keep damaging it.

 

Of course...I could be completely off....but that is the way I understand it all at this point. So, I think you only kind of hurt the healing progress a little bit....depending on how bad your body reacts to the gluten.

thanks for the info, i think u are right despite me being diagnosed earlier lol, and good luck on your gluten-free diet (:

kareng Grand Master

I think it is like " Mommy" said.  You wouldn't want to mess up every day or even every week.  Its OK to make some honest mistakes, especially in the first couple of months as you are learning.

 

 

Open Original Shared Link

 

 

"Do I need to have a follow-up test each time I get glutened?

Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

 

 

 

 

 

Open Original Shared Link

 

 

"If I accidentally ingest gluten will it show up in a blood test?

No, accidental exposure will not show up in a blood test. Repeated exposure elevates antibodies in the blood and causes damage in the small intestine"

GFinDC Veteran

I don't think of it as starting over, just more of a hiccup in the road.  The immune process is something that keeps us from being sick due to germs in the environment.  So it isn't a light-wieght kind of system, since there are lots of deadly germs around us all the time.  The immune system has to kill those germs constantly or we become sick.  The autoimmune process is the same thing, it attacks when exposed to a trigger (gluten).  It may keep producing immune cells to attack for quite a while after the initial invaders are gone.  Weeks or even months.  So you may be more sensitive to any stray gluten for a while, because your immune system is already on alert.

 

After a while you get more aware of gluten and can avoid it better.  But it takes time to learn that and get used to how to eat safely.  It's not something we all just know.  Sticking mostly with whole foods is a great way to eat and really makes it simpler to avoid gluten.  It's when we eat processed foods with many ingredients that things get more complicated and risky.

dilettantesteph Collaborator

It isn't like starting over.  I made steady progress despite glutenings as I was figuring stuff out.  You will too.  

Mike212 Rookie

I think it is like " Mommy" said.  You wouldn't want to mess up every day or even every week.  Its OK to make some honest mistakes, especially in the first couple of months as you are learning.

 

 

Open Original Shared Link

 

 

"Do I need to have a follow-up test each time I get glutened?

Follow-up tests are intended to test whether there’s significant (and repeated) exposure to gluten. A mistake (or two) may cause symptoms, but they will only activate the disease for a short time, though it must be noted that each celiac responds differently. It’s the repeated exposure for the long-term that keeps the disease active enough to cause damage."

 

 

 

 

 

Open Original Shared Link

 

 

"If I accidentally ingest gluten will it show up in a blood test?

No, accidental exposure will not show up in a blood test. Repeated exposure elevates antibodies in the blood and causes damage in the small intestine"

thanks alot, I understand better now, I am still trying to find the cause of this glutening 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mike212 Rookie

It isn't like starting over.  I made steady progress despite glutenings as I was figuring stuff out.  You will too.  

thanks, i think that too

Mike212 Rookie

I don't think of it as starting over, just more of a hiccup in the road.  The immune process is something that keeps us from being sick due to germs in the environment.  So it isn't a light-wieght kind of system, since there are lots of deadly germs around us all the time.  The immune system has to kill those germs constantly or we become sick.  The autoimmune process is the same thing, it attacks when exposed to a trigger (gluten).  It may keep producing immune cells to attack for quite a while after the initial invaders are gone.  Weeks or even months.  So you may be more sensitive to any stray gluten for a while, because your immune system is already on alert.

 

After a while you get more aware of gluten and can avoid it better.  But it takes time to learn that and get used to how to eat safely.  It's not something we all just know.  Sticking mostly with whole foods is a great way to eat and really makes it simpler to avoid gluten.  It's when we eat processed foods with many ingredients that things get more complicated and risky.

Yea, thanks for answering, I am getting better and better at this gluten-free diet

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.