Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge And Now A Rash...coincidence Right?


birdie22

Recommended Posts

birdie22 Enthusiast

I am 12 days into a gluten challenge. Today I woke up with a lacy rash on my arms and legs (I almost look sunburn) and joint pain in my wrists, knees, and fingers. A bit of googling and I think it is the virus Fifth Disease. My kids don't have it but I've been taking them to swim lessons for the past two weeks so I'm exposed to lots of other kids. It doesn't bear resemblance to DH. Total coincidence right?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

Does this rash itch? Your description of 'lacy' makes me wonder if it might be livedo reticularis. I have that and it seems to be related to inflammation at least for me. It was so bad I was purple before diagnosis but since I went gluten free it has resolved greatly, unless I get glutened.

seezee Explorer

I had 5th disease last June and there's a blood test to confirm. I took it to rule out Lyme. 

birdie22 Enthusiast

It doesn't itch per se but gets a bit prickly in spots (like the feeling of walking in tall grasses) mostly on my legs. I was reading on fifth disease and in adults it isn't uncommon to not have the slapped cheek look (which I don't) and for adult women to get joint pain, which I do have. But I don't and haven't had in the last few days a fever, or headache, or cold symptoms which are usually symptoms. And of course being the 4th of July I can't call my PCP. I don't feel sick at all so doesn't seem worth wasting time going to an after hours place.

  • 2 months later...
birdie22 Enthusiast

I just wanted to update this in case anyone else happens upon this thread in a search. I ended my gluten challenge that very day figuring it wasn't worth the symptoms, especially if this was related. The rash lasted another 2 or 3 days. The joint pain lasted about 4 or 5. The joint swelling in my fingers and feet lasted a solid week. I also noticed around this time that my cheeks were red and it would come and go. The red cheeks (as stated in my other post) did not happen at the same time as my rash. My kids and husband never came down with anything before or following this episode for me.

 

So my follow up with my PCP was about a month after this episode and I mentioned it to her and said, I know, it's probably a coincidence and it was viral and just happened to occur during my gluten challenge. I was surprised when she responded, no, she doesn't think it was coincidence at all and that rashes, flushed face, joint pain and swelling are common responses to food intolerance and/or allergy. I was surprised because while she is quite celiac knowledgeable in many regards she also didn't believe in referring me for an endoscopy based on negative serology and doesn't find genetic testing at all helpful. So she didn't think it was Fifth's Disease virus at all and has solidified my diagnosis as NCGS.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,345
    • Most Online (within 30 mins)
      7,748

    Louise Sullivan
    Newest Member
    Louise Sullivan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My reaction to a gluten bolus exposure is similar to yours, with 2-3 hours of severe abdominal cramps and intractable emesis followed by several hours of diarrhea. I don't necessarily equate that one large exposure to gluten with significant intestinal lining damage, however. I think it's just a violent reaction to a what the body perceives to be a somewhat toxic substance that I am no longer tolerant of because I have quit exposing myself to it regularly. It's just the body purging itself of it rather than an expression of significant damage. Before diagnosis, when I was consuming gluten daily, I had little to no GI distress. I was, for the most part, a "silent celiac". The damage to my small bowel lining didn't happen all at once but was slow and insidious, accumulating over a period of years. The last time I got a big shot of gluten was about three years ago when I got my wife's wheat biscuits mixed up with my gluten-free ones. There was this acute reaction after about two hours of ingestion as I described above. I felt washed out for a few days and fully recovered within a week or so.  Now, I'm a 74-year-old male. So, I'm not worried about being pregnant. And I don't want to contradict your physicians advice. But I just don't think you have done significant damage to your small bowel lining by one episode of significant gluten ingestion. I just don't think it works that way.
    • Skydawg
      Wondering about some thoughts on how long to wait to try to get pregnant after a gluten exposure?  I have been diagnosed for 10 years and have followed the diet strictly. I have been cross contaminated before, but have never had a full on gluten exposure. I went to a restaurant recently, and the waiter messed up and gave me regular bread and told me it was gluten free. 2 hours later I was throwing up for the whole evening. I have never had that kind of reaction before as I have never had such a big exposure. My husband and I were planning to start trying to get pregnant this month. My dr did blood work to check for electrolytes and white blood cells, but did not do a full nutritional panel. Most of my GI symptoms have resolved in the past 2 weeks, but I am definitely still dealing with brain fog, fatigue and headaches. My dr has recommended I wait 3 months before I start to try to get pregnant.   I have read else where about how long it can take for the intestine to fully heal, and the impacts gluten exposure can have on pregnancy. I guess I am really wondering if anyone has had a similar experience? How long does it take to heal after 1 exposure like that, after following the diet so well for 10 years? Is 3 months an okay amount of time to wait? Is there anything I can do in the meantime to reduce my symptoms? 
    • ShadowLoom
      I’ve used tinctures and made my own edibles with gluten-free ingredients to stay safe. Dispensary staff don’t always know about gluten, so I double-check labels or just make my own.
    • Scott Adams
      It's great to hear that there are some good doctors out there, and this is an example of why having a formal diagnosis can definitely be helpful.
    • RMJ
      Update: I have a wonderful new gastroenterologist. She wants to be sure there’s nothing more serious, like refractory celiac, going on. She ordered various tests including some micronutrient tests that no one has ever ordered before.  I’m deficient in folate and zinc and starting supplements for both. I’m so glad I decided to go to a new GI!
×
×
  • Create New...