Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Changes Over Time


KMMO320

Recommended Posts

KMMO320 Contributor

I was diagnosed in Oct but I was in some denial for a while. In fact, several months ago, I even posted here how once in a while I would still consume gluten, in the hopes that I would have "gotten over" it, or maybe thinking the dr was wrong and I would be fine. 

 

I am happy to say that kind of thinking is gone and I have been 100% gluten free (aside from accidents) for some time now. 

 

I am diligent and I make sure to ask questions where ever I go. I am not worried about hurting people's feelings when I kindly decline to eat food they have made or brought to parties. I don't worry about participating in eating a group lunch at work. 

 

My friends, family and coworkers understand when and why I decline. Sure, some people still don't get it, some people even still think it is in my head, or that I am over reacting, but I really don't care. They can think what they want, they are not the ones who get sick. 

 

In the beginning, yes, I got sick when I ate gluten but I was so used to it before I was diagnosed that I did it any way. I used to brag about how I wasn't THAT sensitive that a little CC would bother me. It is so different now. I can tell within 30 mins if I had some fries that was cooked in the same oil as say, chicken fingers. Once, I buttered a gluten-free bagel with the butter in the fridge that I CLEARLY labeled as MOM's BUTTER..DO NOT USE! and I was sick an hour later. I found out my husband had used that butter for toast, re-dipping his knife. He really didn't think it would affect me. 

 

I ate gluten-free shrimp scampi at a restaurant and was VERY VERY sick the next day. I called and found out that they cook the gluten-free pasta in the same water as regular pasta! Some places and people simply do not know. 

 

I just came off of a week long migraine after eating at a cookout at my sister's house. It was the worst migraine ever. Even when I am careful, sometimes things happen but I am realizing that this is for the rest of my life and I accept it. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Glad to see that you've adjusted! Life shouldn't be lived sick, not when health is so relatively easy. ^_^

 

Yes, sometimes things happen. Meh, life goes on right? This is part of life for us and as time goes on it will happen less and less. Practice makes perfect.

nvsmom Community Regular

:) That's great that you have found how to work around celiac (aside from a few accidents) and are in a good place with it.

 

My favourite fortune cookie ever said:

 

"Acceptance is the key to happiness."

 

That's so true for anyone living with a chronic disease.  It's makes life easier if you work with what you've got.

 

I hope you continue to feel better, and manage to avoid future monster migraines.  :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,373
    • Most Online (within 30 mins)
      7,748

    Carrie114
    Newest Member
    Carrie114
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Zuma888
      I didn't ask a doctor about this actually. I did ask several doctors a long time ago and they told me gluten has nothing to do with hashimoto's. One of them told me to do a gluten challenge to test for celiac, but at the time I was in graduate school so couldn't afford to be even more ill than I was. If you have the symptoms, I really don't advise you to do a gluten challenge. It messed me up mentally and physically for months. At the same time, I benefitted from doing the challenge in the sense that it convinced me that all my symptoms were truly from gluten - even stuff like insomnia! So now I am terrified to eat gluten, whereas before I would have a little once in a while and not notice anything dramatic. 
    • Winnie-Ther-Pooh
      I am in a similar situation where I can't feasibly do a gluten challenge but have all the symptoms and I have 2 celiac genes. I'm curious if your doctor advised you to eat as if you had a diagnosis or if they were more dismissive about it. 
    • Zuma888
      Negative, although I had most of the symptoms of celiac disease. I now eat as if I had a diagnosis.
    • Winnie-Ther-Pooh
    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
×
×
  • Create New...