Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Iron Deficiancy Anemia


Adalaide

Recommended Posts

Pegleg84 Collaborator

hope the infusions work out for you

And if its what you can eat, eat all the cow you need. So lucky you can still eat dairy (jealous)

 

feel better soon! Hope it all sorts out and you can figure out what else is wrong.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

Made it home from the infusion all intact and survived it fine. (Except for the part where someone almost died in my book and I cried like a baby right when the nurse walked in. :ph34r:) I got a bit of a headache from it, but nothing I won't survive with a little afternoon nap. It is incredible to feel like I could eat something without vomiting.

 

Organizing my bookshelves again is tomorrow's to-do list. I'm not doing any bending/stooping with a headache, plus I'm keeping the noise to a minimum today. The hubs is still recovering from whatever had him so terribly ill yesterday and I want to let him just sleep. Somewhere in that mess I'll find my medical records and thyroid tests.

Adalaide Mentor

So, that cleaning at my leisure got kicked into high gear. My dad who lives 2000 miles away is 2 states away! I don't know that he is coming to visit but I have to think that he may, he is retired with all sorts of time on his hands and nothing better to do than ramble about, and being that close makes me think he may just pop in. GAH!!! I better get this place in ship shape!

 

So my records... that dips$#& doctor only ran one thyroid test. I found results from 1/15/13 and 4/1/11.

 

4/1/11: Thyroid Stimulating Hormone     2.33 uIU/mL     0.45-4.67 uIU/ML

1/15/13: Thyroid Stimulating Hormone   1.86 uIU/mL     same range

 

They both say under them "this is a 3rd generation TSH assay"

 

The moron didn't listen to a word out of my mouth about the whole it could be an autoimmune problem in which the numbers will be fine on the standard test so you need to test this and this and this and I gave him a freaking list of what to test for. I was at a point where I was so frustrated and upset with other things that I may have overlooked that when I saw the results myself. I was only a few short months away from firing him. (Which resulted in a very brief dalliance with an even more dips$#&ty doctor.)  I guess when I see the doctor on Thursday I will ask to have my thyroid actually tested. Sure, it is still in the "safe" range. But it also looks a whole lot like it could be a slowly tanking thyroid and if I can get a non-retarded doctor to do something now I could maybe stop it before it gives up on me entirely.

 

Have I ever mentioned how much I hate doctors? (Mostly I suppose I should be mad at myself for not double checking but omg I gave him a list! How much more can I do to advocate for myself. I explained why as a celiac I needed these specific tests blah blah blah.)

 

ETA: I realize tanking isn't the right word. IDK what word to use but if my numbers just keep going down and down my thyroid is doing something wonky. Or maybe it is normal fluctuation. Still, not happy with not having the right tests done.

BZBee Apprentice

For borderline low iron take prenatal vitamins, gluten free of course. I take brain strong.

Adalaide Mentor

As a quick update, for anyone who hasn't read through every post. I am no longer taking iron pills. I began iron infusions yesterday after speaking with my insurance people on the phone and being told it is an approved treatment. I got a call yesterday afternoon and I guess there may be some confusion on that, but as far as I can tell the hospital isn't going to deny me the treatments. Come hell or high water, I'm not taking pills again. I'll sort out the financial crap I guess, but I won't go back to pills.

frieze Community Regular

So, that cleaning at my leisure got kicked into high gear. My dad who lives 2000 miles away is 2 states away! I don't know that he is coming to visit but I have to think that he may, he is retired with all sorts of time on his hands and nothing better to do than ramble about, and being that close makes me think he may just pop in. GAH!!! I better get this place in ship shape!

 

So my records... that dips$#& doctor only ran one thyroid test. I found results from 1/15/13 and 4/1/11.

 

4/1/11: Thyroid Stimulating Hormone     2.33 uIU/mL     0.45-4.67 uIU/ML

1/15/13: Thyroid Stimulating Hormone   1.86 uIU/mL     same range

 

They both say under them "this is a 3rd generation TSH assay"

 

The moron didn't listen to a word out of my mouth about the whole it could be an autoimmune problem in which the numbers will be fine on the standard test so you need to test this and this and this and I gave him a freaking list of what to test for. I was at a point where I was so frustrated and upset with other things that I may have overlooked that when I saw the results myself. I was only a few short months away from firing him. (Which resulted in a very brief dalliance with an even more dips$#&ty doctor.)  I guess when I see the doctor on Thursday I will ask to have my thyroid actually tested. Sure, it is still in the "safe" range. But it also looks a whole lot like it could be a slowly tanking thyroid and if I can get a non-retarded doctor to do something now I could maybe stop it before it gives up on me entirely.

 

Have I ever mentioned how much I hate doctors? (Mostly I suppose I should be mad at myself for not double checking but omg I gave him a list! How much more can I do to advocate for myself. I explained why as a celiac I needed these specific tests blah blah blah.)

 

ETA: I realize tanking isn't the right word. IDK what word to use but if my numbers just keep going down and down my thyroid is doing something wonky. Or maybe it is normal fluctuation. Still, not happy with not having the right tests done.

Addy, the second # is better than the first...but getting the new doc to do the whole lot would be good!

pricklypear1971 Community Regular

After dealing with thyroid for 7+ years I've decided tsh means jack crap. At least for me. If its high, it's just easier to get docs to pay attention - so it's convenient. The meat and potatoes are in the free hormone tests and antibodies.

So, get antibody panels and free t3/t4 and rt3, and take it from there.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

After dealing with thyroid for 7+ years I've decided tsh means jack crap. At least for me. If its high, it's just easier to get docs to pay attention - so it's convenient. The meat and potatoes are in the free hormone tests and antibodies.

So, get antibody panels and free t3/t4 and rt3, and take it from there.

 

Those are what I explained to my doctor I needed done. I explained exactly why I needed them done...blah blah blah. At least my new doctor isn't a moron. Hopefully on Thursday I can go play with the vampires again and see what the tests say.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,324
    • Most Online (within 30 mins)
      7,748

    mao5617
    Newest Member
    mao5617
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.