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What Should I Ask From My Doctor When I Get My Biopsy Results Next Week?


spirit-walk

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spirit-walk Contributor

I had an upper endoscopy and colonoscopy done Monday. They said it would be about a week before I received results. I've been to so many doctors over the last 2 years and been told that everything looks good, so I'm no longer optimistic that I'm going to get answers. But, since this is my first run-through with the gastroenterologist and biopsies, what should I be asking from them? On a side note, the doctor told my wife that the inside of my stomach was reddish and said it might be gastritis. Maybe that's a start down the path to understanding what's going on. I've been eating as healthy as I can for the last nine months. I drink only water and only use honey or molasses for sweeteners. Pretty much stay away from all processed food except for a few gluten-free cereals, and I think they cause issues. Nine months of this diet, and I still have a reddish stomach? This makes me wonder if there is any real healing going on. Sorry to ramble, but I'm just looking for advice on what to ask and what to get for my records. Thanks.


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kareng Grand Master

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

spirit-walk Contributor

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

 

 

Maybe read up about gastritis. Ask what you should do about it. Did he biopsy the stomach to check for things listed in the link?

Open Original Shared Link

For the Celiac portion - ask why he thinks its negative or positive. Make sure you understand his explanation.

Get a copy of the path reports

 

Thanks. He did biopsies, but I'm not sure what all he is checking for. I'm pretty sure he was checking for Celiac's Disease even though I have been off gluten for 9 months. I know he really wanted to the procedures to see what he'd find.

 

I have several of the symptoms listed for gastritis.

kareng Grand Master

Thanks. He did biopsies, but I'm not sure what all he is checking for. I'm pretty sure he was checking for Celiac's Disease even though I have been off gluten for 9 months. I know he really wanted to the procedures to see what he'd find.

 

I have several of the symptoms listed for gastritis.

Sorry I was so abrupt. I got a call to go to the hospital when I was typing.

Anyway....if you have been off gluten for 9 months, it isn't likely there will be any Celiac type damage found in the small intestines.

What I was trying to say is the gluten-free diet might not have any effect on gastritis.

w8in4dave Community Regular

Maby you should ask them where you go from here because your having so many problems , tell them you have taken your self off of gluten for 9 months. Make sure you tell them your very concerned about your health and want some answers ... Sometimes when you get these things done and don't say anything they don't do anything!! Make sure you tell them how concerned you are for your own health!! 

spirit-walk Contributor

Maby you should ask them where you go from here because your having so many problems , tell them you have taken your self off of gluten for 9 months. Make sure you tell them your very concerned about your health and want some answers ... Sometimes when you get these things done and don't say anything they don't do anything!! Make sure you tell them how concerned you are for your own health!! 

 

Will do that for sure! And I've learned this lesson from the rheumatologists I've seen.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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