Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac--I Think

no7ang

Recommended Posts

no7ang Rookie
no7ang
Posted

hi, i had been feeling tired and run down for many months last year but began losing weight in December, saw GP in Feb who sent me for blood tests--results were all ok except B12 was slightly low. upper stomach pains started in May so went back to GP who referred me to hospital-- so far i have had endoscopy--this showed a hiatus hernia and gastritis --i was informed that 4 biospies were taken due to weight loss, but i had no explanation as to what they were looking for. i also had an ultrasound and a CT scan. on returning for results i was told biospies were abnormal and that CT showed small bowel was abnormal as loops all matted together so was sent for an  MRI which would show cause of matted loops--had MRI yesterday. CT also showed thickening to colon so have colonoscopy next week. when i pushed my doctor on what he meant by abnormal biopsy results he mentioned celiac but added that he was confused as my blood tests were normal this was all 6 weeks ago. i have looked everything up that i can find re abnormal biopsy results whilst having endoscopy and everything comes back to celiac. am confused as to why i haven't been advised to  change my diet---and am also worried about additional findings of abnormality in small bowel---is this a common finding for people with celiac disease or could it mean that i have already developed complications---am worried sick so

any advise would be much appreciated

 

PS i have no diarrhoea, which seems to come up as a common symptom (?) but do have constipation 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


1desperateladysaved Proficient
1desperateladysaved
Posted

Greetings No7and,

 

Please tell us what tests the doctor did for celiac.  If you have results you could post them.  Sometimes they can do more tests to find out more.  The endoscopy is usually the definitive test if the blood antibodies are negative, or to confirm a positive result.

 

He wouldn't have you stop eating gluten until all testing is done.  Then again if they already tested for antibodies and did an endoscopy; I think they would be done testing for celiac.  I would ask the doctor as soon as possible about that.  I wouldn't wait quietly to see and I am a quiet person!

 

"Abnormality in small bowel---is this a common finding for people with celiac disease?

 

."  Celiac disease is having reactions to gluten which break down the villi in the small intestine?"

 

.  The small intestine is damaged in celiac, but parasites can also cause damage.  Aside from that, I don't know if anything else causes damage there.  I know these facts from my own experience and those of my children.

 

I hope you will get some definitive answers soon and can recover.  Villi damage is reversible, but you do have to take care of yourself.  I would go gluten free as soon as you know for sure that you are finished testing for celiac.  I believe the colonoscopy is for other problems, but I have not had personal experience with that.

 

The final test for celiac or gluten intolerance is to try the diet.  You can maybe start studying up on that.  I hope you will feel better soon.

 

Get Well  ***

 

D

no7ang Rookie
no7ang
Posted
  • Author

Greetings No7and,

 

Please tell us what tests the doctor did for celiac.  If you have results you could post them.  Sometimes they can do more tests to find out more.  The endoscopy is usually the definitive test if the blood antibodies are negative, or to confirm a positive result.

 

He wouldn't have you stop eating gluten until all testing is done.  Then again if they already tested for antibodies and did an endoscopy; I think they would be done testing for celiac.  I would ask the doctor as soon as possible about that.  I wouldn't wait quietly to see and I am a quiet person!

 

"Abnormality in small bowel---is this a common finding for people with celiac disease?

 

."  Celiac disease is having reactions to gluten which break down the villi in the small intestine?"

 

.  The small intestine is damaged in celiac, but parasites can also cause damage.  Aside from that, I don't know if anything else causes damage there.  I know these facts from my own experience and those of my children.

 

I hope you will get some definitive answers soon and can recover.  Villi damage is reversible, but you do have to take care of yourself.  I would go gluten free as soon as you know for sure that you are finished testing for celiac.  I believe the colonoscopy is for other problems, but I have not had personal experience with that.

 

The final test for celiac or gluten intolerance is to try the diet.  You can maybe start studying up on that.  I hope you will feel better soon.

 

Get Well  ***

 

D

 

 

Greetings No7and,

 

Please tell us what tests the doctor did for celiac.  If you have results you could post them.  Sometimes they can do more tests to find out more.  The endoscopy is usually the definitive test if the blood antibodies are negative, or to confirm a positive result.

 

He wouldn't have you stop eating gluten until all testing is done.  Then again if they already tested for antibodies and did an endoscopy; I think they would be done testing for celiac.  I would ask the doctor as soon as possible about that.  I wouldn't wait quietly to see and I am a quiet person!

 

"Abnormality in small bowel---is this a common finding for people with celiac disease?

 

."  Celiac disease is having reactions to gluten which break down the villi in the small intestine?"

 

.  The small intestine is damaged in celiac, but parasites can also cause damage.  Aside from that, I don't know if anything else causes damage there.  I know these facts from my own experience and those of my children.

 

I hope you will get some definitive answers soon and can recover.  Villi damage is reversible, but you do have to take care of yourself.  I would go gluten free as soon as you know for sure that you are finished testing for celiac.  I believe the colonoscopy is for other problems, but I have not had personal experience with that.

 

The final test for celiac or gluten intolerance is to try the diet.  You can maybe start studying up on that.  I hope you will feel better soon.

 

Get Well  ***

 

D

thanks for replying---i am so glad i have found this forum as so much information re gluten free diet out there its all very confusing. I am only assuming that the abnormal biopsy result has discovered celiac---all these other scans and tests are to do with what else has been found so not sure if doctor has 'overlooked' actually discussing celiac specifically given the other findings. i didn't really ask what was meant by abnormal biospy as my mind went into overdrive when he said about matted area in small bowel needing further investigation--  however looking at the effects of celiac a lot of my symptoms are adding up, especially the extreme tiredness and the weight loss---i just want to feel 'normal' again. i practically live off of pasta, bread etc so am going to have a good clear out of cupboards today and start gluten free tomorrow--will have results of all tests in 2 weeks and a clearer idea of what has been found/shown but as a lot of what i've read up on do point to celiac i don't see the sense in delaying. Thank you so much--i am definitely going to be on here a lot!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Me,Sue
      - Me,Sue posted a topic in Introduce Yourself / Share Stuff
      0

      Knowing what to do when feeling unwell.

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed...
    2. Francis M
      - Francis M replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    3. Scott Adams
      - Scott Adams replied to Francis M's topic in Gluten-Free Restaurants
      8

      The Happy Tart review

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling...
    4. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      3

      Stomach burning and neuropathy

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The...
    5. Scott Adams
      - Scott Adams replied to Me,Sue's topic in Related Issues & Disorders
      2

      Nausea

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular? Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,852
    • Most Online (within 30 mins)
      7,748
    LG2
    Newest Member
    LG2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
    • Scott Adams
      Nausea

      By Scott Adams · Posted

      Welcome to the forum. Is the nausea associated with eating certain foods, or anything else in particular?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.