Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Remember...

AmandaD

Recommended Posts

AmandaD Community Regular
AmandaD
Posted

Hi - Anyone else here on this board remember (if they had the tissue transglutaminase test done to diagnose them) what their TTG number or level was?

Just curious...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted

Mine was a stool test...not blood. I'm not really sure what the difference is but here's my results.

Fecal Antitissue Transglutaminase IgA 15 Units (Normal Range <10 Units)

BTW....I was not consuming gluten for 4 months prior to my test but was still glutened from supplements, etc. Does anyone know if after 4 months this number would have come down? Is it likely it was higher when I was eating gluten everyday?

If I'm totally gluten-free should this number go down to zero eventually?

Canadian Karen Community Regular
Canadian Karen
Posted

When diagnosed, over 100.

Last month, bloodwork showed 13.

Karen

Matilda Enthusiast
Matilda
Posted

..

KaitiUSA Enthusiast
KaitiUSA
Posted

I believe mine was almost 3 times what it should have been.

nikki-uk Enthusiast
nikki-uk
Posted

My husbands was 12 for the tTg which was negative .

Positive biopsy though. :huh:

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

nikki-uk Enthusiast
nikki-uk
Posted

Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight.... :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rachel--24 Collaborator
Rachel--24
Posted
Sorry,just read your post Rachel,I've just asked the same question?Brain running a bit slow tonight.... :blink:

<{POST_SNAPBACK}>

Thats OK...ask away cuz I never got an answer to that question.

nikki-uk Enthusiast
nikki-uk
Posted

Just like to say Rachel you look so much better!(hope you don't mind me saying!)

AmandaD Community Regular
AmandaD
Posted
  • Author

Odd - my number was 10.5 and then a positive biopsy as well. Don't get it...

I don't know about the antibodies ever going to zero but my doc did say they should go into a negative zone which was about 1 to 7...

My husbands was 12 for the tTg which was negative .

Positive biopsy though. :huh:

My son had the test a couple of months ago and scored a 10(neg again)but surely if there's 'no coeliac' it should read zero??(Have asked for a referal for gastro doc as symptoms continue)

Wondered if other celiac disease'ers antibodies ever go to zero?

<{POST_SNAPBACK}>

Rachel--24 Collaborator
Rachel--24
Posted
Just like to say Rachel you look so much better!(hope you don't mind me saying!)

<{POST_SNAPBACK}>

Thanks...I feel alot better too. :D

PicturePerfect Explorer
PicturePerfect
Posted

I had about 4 times more than I should have had, if I remember correctly. Then with the endoscopy, the doctor could not tell just by my intestines if I had Celiac or not.. they had to take a sample. :huh:

celiac3270 Collaborator
celiac3270
Posted

I don't remember my numbers-- but to answer one question: it would never go to zero. You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

Rachel--24 Collaborator
Rachel--24
Posted
You can be perfectly healthy, perfectly non-celiac with no gene or anything, and still have a tTG of say... 6.

<{POST_SNAPBACK}>

Why is that? :huh:

SueC Explorer
SueC
Posted

Mine was 187. 3 months gluten-free it was 25. I just did my 6 month testing but haven't got result back yet. I am hoping it will be in the norml range.

julie5914 Contributor
julie5914
Posted

I didn't have it run before going gluten-free - I only had the EMA. But I am 4 months gluten-free and my ttg was 20 (not sure what the range was, but that was a blood sample). They just told me over the phone to be more diligent about keeping gluten out. Rachel, I am not sure if my number was still 20 just because I am still getting out of my body or if it was because I am still getting it somehow.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    2. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    3. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
    5. trents
      - trents replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      High TTG-IgG and Normal TTG-IgA

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,846
    • Most Online (within 30 mins)
      7,748
    Fultonn
    Newest Member
    Fultonn
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      High TTG-IgG and Normal TTG-IgA

      By trents · Posted

      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.