Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got My Results Back From Endoscopy And Colonoscopy


spirit-walk

Recommended Posts

nvsmom Community Regular

Okay, I received my TPO numbers. 

 

TPO was 10.0 units

 

Everything look okay?

Do you know the range? If your lab is like mine, then the range will be 0-34.  That doesn't tell the whole story though - my TPO Ab has never been out of range yet my thyroid doesn't do much. I feel good on 150 mg of natural desiccated thyroid (with T4 and T3) which is a full replacement dose; my TSH is now 0.01 (range 0.2-6.0) and my free T3 is 5.6 (3.5-6.5). When my TSH was as high as yours, my FT4 was also low like yours is as was my FT3. Your FT3 looks okay - looks better than your FT4 and TSH so I am unsure what to advise...

 

I think I would say, if you continue to have hypo symptoms to request a trial of thyroid hormone supplementation and see if it helps you. If at all possible, find a doctor who is willing to treat based on symptoms rather than labs... they are rare.

 

I hope you feel well soon.  :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lock Newbie

I can't really answer the thyroid question. But I wonder if you have researched all the micronutrients and make sure you are getting enough iodine and others. You say you eat natural meat. Does that mean organic? Grass fed? And do you eat only lean meat, or do you eat fat and organ meat? The fats and the organs are very dense with nutrients.

 

Once your gut has been compromised with gluten, or with whatever else, or even if you are perfectly healthy, sometimes in our society it can be hard to get enough of all the micronutrients. Vitamin D for example, if you don't spend enough time in the sun.

 

All the fat soluble vitamins if you are not getting enough of the good fats.

 

For thyroid, try sea kelp. I also heard that you can get iodine by buying a bottle and swabbing a small patch on your arm every day. You can google and find more precise recommendations.

 

I think you are right, your problems are all tied together some way. I have the same thoughts. Many of my problems involve collagen being weak or malfunctioning. So things that seem completely unrelated like pelvic prolapse and detached retina, loose joints and tendons and joint pain, all involve connective tissue. I have a theory, that because of my undiagnosed gluten problem, years of subclinical malnourishment may be underlying all of this, weakening connective tissue in many areas of my body.

 

I doubt I will find any scientific studies relating these things together, but there is much they don't know yet. My approach is to try to improve my nutrition from now on and see what improves.

spirit-walk Contributor

Do you know the range? If your lab is like mine, then the range will be 0-34.  That doesn't tell the whole story though - my TPO Ab has never been out of range yet my thyroid doesn't do much. I feel good on 150 mg of natural desiccated thyroid (with T4 and T3) which is a full replacement dose; my TSH is now 0.01 (range 0.2-6.0) and my free T3 is 5.6 (3.5-6.5). When my TSH was as high as yours, my FT4 was also low like yours is as was my FT3. Your FT3 looks okay - looks better than your FT4 and TSH so I am unsure what to advise...

 

I think I would say, if you continue to have hypo symptoms to request a trial of thyroid hormone supplementation and see if it helps you. If at all possible, find a doctor who is willing to treat based on symptoms rather than labs... they are rare.

 

I hope you feel well soon.   :(

Here's what it says:

 

Thyroid Peroxidase AB (TPO)

 

10.0 units       <101.

 

Result was obtained with INOVA QUANTA Lite TM TPO Elisa. Thyroid peroxidase Values obtained with different manufacturers' assay method may not be used interchangeably. The magnitude of the reported IgG levels cannot be correlated to endpoint titer.

spirit-walk Contributor

Lock,

 

I eat a lot of lean meats (chicken breasts). But I do eat ground turkey thigh and a lot of salmon.

 

I just sent you a PM for some other questions.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,162
    • Most Online (within 30 mins)
      7,748

    Carolyn harkless
    Newest Member
    Carolyn harkless
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.