Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

greed2109

Recommended Posts

greed2109 Newbie

Hello, 

 

I recently just joined and find this forum to be very helpful. After two long years of all sorts of weird issues (joint pain, numbness and tingling, acid reflux) and thousands of dollars in medical bills with no answers for my symptoms turns out about 3 weeks ago monday my biopsy and blood test came back positive for Celiac Disease.. FINALLY looks like i may have an answer. 

 

Long story short my doctor is having me take Nutrametrix supplements ( ORAC, OPC-3, B-Complex, Might-a-mins, Aloe Vera Juice, and a Probiotic) To treat the nausea and burning sensation in my gut. Have any of you taken these supplements? Have they helped you? 

 

ORAC

OPC-3                             2x daily empty stomach

Activated-B Complex

 

Nutriclean Probiotic     2x daily before meals 

 

Might-a-mins      after/or before meals or PRN (as needed)

 

Aloe Juice natural flavor     2oz 4-5x as PRN 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

I'm glad you have an answer, and welcome.

 

After looking up those supplements, my first thought is what stake does your doctor have in the company? If you purchase the cheapest way possible, 90 pills at a time, that is $200 for 45 days of supplements. And that's just the supplements, not the rest! Another $70 for probiotics, plus however many of the others you take. And at $26 a bottle for that aloe juice and 16  2oz servings you'll go through two bottles a week if that means 4-5 times a day as needed. I can tell you what I'd tell my doctor, no matter if I had the money to spend on it or not.

 

There are a lot of supplements and probiotics on the market. Your doctor having a financial stake in the company shouldn't influence which you choose to take. Have you been tested for vitamin deficiencies before you start taking anything or is your doctor just advising a random catch-all? A good B complex is something I see a significant number of people here say they take because they were deficient in B something or other. The ORAC and OPC-3 don't seem to offer any actual benefit, did the doctor provide sound medical reasoning on why you should be taking each of these? They both really seem an awful lot like snake oil to be perfectly honest.

 

I'm sure there will be people along with more knowledge of probiotics and supplements than I have. I have never taken mine in liquid form, I've always taken pills when I take them. I take ones with a USP stamp on them, which means they are independently reviewed by an outside source for quality. Nature Made is a good company and will label on their bottle if they are gluten free or not. It is my go-to company for supplements. I don't take a probiotic so I don't really have any advice on that one.

greed2109 Newbie

Thanks for the reply!

 

It was my doctors nurse practitioner who suggested I take those supplements. She was the first person I saw since being diagnosed and my symptoms included joint pain, headaches, numbness tingling, and bad stomach pains from dull to sharp. My GI told me my stomach was severely inflamed and would probably take about 6 months to heal.. Ill assume thats why I'm taking the Aloe Vera? My B-12 is also low at 300 not critical but for someone my age who eats healthy anyway should be around 550-700. The pro biotic and stomach enzymes are to help with digestion and stomach pain (is what i was told) As for the OPC and ORAC.. Looks like body cleansing and maybe some joint relief? I got blood drawn that day and don't understand most of the results but I do know I am not anemic I will get the results Thursday. I was told the Vili being dull and not being able to "pluck" nutrients that solid pills for vitamins would not be a good choice this early on for me. 

 

As for a financial stake.. Their office does sell these products however I did not buy them from their office... I do realize they are very expensive but at this point dealing with pain for 2 years ill do anything to feel better especially since I just got a full time Fire Department job and will be taking my PAT test in a week! So there was Urgency on my part.. I know it wont go away tomorrow but any relief would be great.. 

 

I will be seeing my actual PCP for the first time this Thursday and a nutritionist this Wens. I will update after those appointments. 

 

Thank you,

 

Gregory

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    2. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    3. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      2

      New here

    4. - KathyR37 posted a topic in Coping with Celiac Disease
      2

      New here

    5. - Scott Adams replied to Colleen H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Celiac attack confusion and anxiety


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,812
    • Most Online (within 30 mins)
      7,748

    Papa Emeritus 79
    Newest Member
    Papa Emeritus 79
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
    • Scott Adams
      This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.