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Do I Have Celiac?

Herreralovv

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Herreralovv Rookie
Herreralovv
Posted

Okay so after i had my baby-boy with c section i was breast feeding and making alot of milk. But then suddenly i wasnt making milk and starting loosing weight. At first i didnt pay no mind i just thought it was because i was breastfeeding, so i stopped. Then after i stopped, i continued to loose weight , and i didnt know why because i was eating alot like always. Over time i continued to get symptoms, which were:

Constipation

Weight loss

Thrush

Gurgling stomach noises

Bloating

Tired

Sleepy during the day

Difficulty falling asleep

Headaches

Hungry all the time

Mood swings

Blurry vision

Leg pain

So i went to doctor but i dont have insurance so i was paying. He suspected celiac. But need to pay 2000 for biopsy. J went on gluten free diet. And i dint feel better right away but i did feel better in couple weeks on going gluten free. I havent gained weight yet, but i havent loose weight either, maybe because i keep eating gluten accidently. When i do eat gluten by mistake i just gets a few symptoms but not bad like before, and some times i get it to the next day. People please tell me if u think i could have this.

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nvsmom Community Regular
nvsmom
Posted

You could have celiac disease or non-celiac gluten sensitivity (NCGS - it has the same symptoms as celiac disease but no villi damage). There are over 300 symptoms and associated problems, and your ymptoms fit in there. Many of your symptoms fit Hashimoto's thyroiditis too, with a swingbetween hyper and hypo symptoms (but I'm not a doctor - just thinking out loud).

The only way to know if it is celiac disease is to test. Could you do the blood tests instead if you want to know? The cost would be less.

dani nero Community Regular
dani nero
Posted

If accidents are happening, or if you haven't taken any safety measures to prevent your food from gluten cross-contamination, then I'm afraid that your diet has not truly been gluten-free. Being on a gluten-free diet means that your food needs to be free from even the tiniest crumb. Please read this post https://www.celiac.com/forums/topic/91878-newbie-info-101/ which will help you understand contamination prevention methods and other things. 

 

By the way, if you're planning on doing any tests later, then you should not go on a gluten-free diet yet, because all tests will come back negative if you're already gluten-free. 

Herreralovv Rookie
Herreralovv
Posted
  • Author

Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

Lisa Mentor
Lisa
Posted

Pregancy can be a trigger for those who may be predisposed to Celiac.   Do  you have a family history (parents or other family members) of digestive issues, diabetes, thyroid or other autoimmune disorders?  Sometime, as my parents would say "a bad stomach" could be a genetic trait you may have inherited.

 

As mentioned, the Celiac Blood Panel would be less expensive than a colonoscopy/biopsy, but you must remain on a gluten free diet for the optimun accuracy.

 

 

The following are the celiac specific blood tests:

Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

 

Or, you may choose to go TOTALLY gluten free and see how you feel.

 

Hope this helps. :) And Welcome!

dani nero Community Regular
dani nero
Posted

Doctors did test for liver enzymes, and checked my thyoid and it was fine. And also i was doing the gluten diet as changing the utensils. Not using the same griddle i use to make my husband and kid food. But when i go out i always get sick and tired. Like when i tryed the gluten free pizza from dominos, i forgot all about telling them to change the pan to a clean pan.

 

It's gonna be a tough learning curve in the beginning but will become like second nature as time passes. If I'm about to eat at a restaurant, I first ask them about how they go about preventing cross-contamination. If they don't know what I mean, or tell me that they simply wash the pans that were used to prepare glutinous foods very well, I don't eat there. 

Herreralovv Rookie
Herreralovv
Posted
  • Author

From what i know. No one in my family has no kind of diseases. But my mom a while back had gastritis. But she avoided spicy and greasy food, and she got better. But my sister has also been having digestive problems. The doctors tell her she has gastritis, and shes been takeing medicine but hasnt got better. So until i know for sure that i have celiac. I will tell her to test for that. And thanks i will inform my doctor about the blood test. I know, its kinda hard to adapt. But now with my husband supporting me and making sure i dont eat gluten, its gottn easier with your loved ones supporting u.

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Herreralovv Rookie
Herreralovv
Posted
  • Author

Okay but now i just have one question. If i would have gluten sensisity, would i have to worry about cross contamination. Because from what i read, gluten sensitivity isnt as bad as celiac.

dani nero Community Regular
dani nero
Posted

It's really up to you to find out the amount of gluten you react to. We can't figure it out for you because we can't feel what you feel after consuming cross-contaminated food.

The blood test should help you answer that question.

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
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      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
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