Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mild Glutening And Possible Oat Sensitivity


abemads

Recommended Posts

abemads Newbie

I have a question regarding symptoms of glutenings. Now It’s been about 6 months since I was diagnosed with Celiac decease, and I’ve been eating mostly gluten free ever since. I say mostly because there has been a few accidents. My question is if I can expect to fell different symptoms dependent on amount of gluten consumed?

A while ago I ate at a lunch buffet and about an hour later I got sick. First nausea and strong brain fog followed by watery diarrhea and tongue sores. All very reminiscent of the time before diagnosis. I have no doubt that this was a glutening.

Now last week I kissed my girlfriend goodbye right after breakfast. She had eaten bread and muesli and since we would be apart for several weeks it was a lengthy kiss. This time I also think I might have been glutened, but it is much less obvious. I had some watery diarrhea, followed by some trouble concentrating and a bad mood. I also noticed some slight nausea and I developed a bad case of tongue sores.

Could it be that the symptoms are less strong simply because I ingested less gluten?

A follow up to this is regarding gluten free oats. Three months ago I started eating certified gluten free oats. At first everything was fine, no obvious symptoms. It I ate wheat in the same amounts I would be quite sick, so I thought I was fine. Well I developed some symptoms gradually. I had mouth ulcers, some stomach problems, periods of bad mood and brain fog. I stopped eating oats and everything went back to normal. Last month I started eating oats again, being careful to not eat large amounts. After some days I get some symptoms, mouth ulcers, a bit of brain fog and I was in an impossible mood for days. I quit the oats and two days later I’m feeling great again.

What I don’t understand is that if I’m intolerant to the protein in oats (Avenin) then why are the symptoms so much weaker than the symptoms for gluten? If I don’t have problems with Avenin then why do I have these symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

My reaction definitely varies in direct correlation to the amount of gluten ingested both in intensity of symptoms to how long they last. And the smallest contamination can trigger them, so yeah, the girlfriend could have done you in with that kiss though I don't think anyone would recommend that you remove her from your diet. lol.

I do know that I quit eating oats long before I stopped eating gluten because it was so obvious that my body didn't like them. But I didn't go back to investigate further once I figured out the gluten side of my issues so I can't say that I feel as if I ever figured out why. 

Oats are high in arginine which has some affect on our immune systems though I can't say that I understand how. And they reduce cholesterol levels which may not always be a good thing for someone who has had malabsorption issues in the past. It is possible to have cholesterol levels that are too low.

But you'll need someone else with more oat-specific knowledge to answer the question about the proteins. I wouldn't mind learning more as well. I tried gluten-free oats once in the first month of going gluten free and they didn't sit well with me so I haven't revisited them again.

zero Newbie

With regards to oats, this link my be useful,

  Open Original Shared Link

 

The wikipedia page on oat sensitivity says this,

  "There is no evidence that oats can trigger GSE (gluten sensitive enteropathy), only that in a small number of celiacs disease can be sustained or reinitiated by oats once triggered by wheat."

but there is no citation so not sure if it is accurate.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,079
    • Most Online (within 30 mins)
      7,748

    Roderick
    Newest Member
    Roderick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • RMJ
      I’m frustrated with celiac disease and my current gastroenterologist (GI). I’ve been gluten free for almost 13 years, with normal antibodies for almost 8 years - except for one excursion of my DGP IgA 5 years ago which returned to normal when I changed brands of gluten free flour. All 4 celiac antibodies were positive 13 years ago but I didn’t have an endoscopy for reasons unrelated to celiac disease.  I did have one 9 years ago. The DGP IgA was still slightly elevated, GI saw some blunted villi visually, biopsy showed “patchy mild increase in intraepithelial lymphocytes” and “focal mild villous blunting” (Marsh 3A). For the past few years I’ve had intermittent trouble with nausea and stomach pain so my current GI suggested doing a repeat endoscopy. He saw nothing visually, but biopsy showed “focal mild intraepithelial lymphocytosis” and “minimal focal villous blunting”.  All I got was a letter from the GI and his nurse that said there were mild changes consistent with celiac disease. I sent a message to the doctor asking where I go from here but just got an answer from a nurse saying it is better, less damage than 2016 so keep following the gluten free diet. So focal is better than patchy for increased lymphocytes and minimal focal is better than focal mild villi blunting? I feel this biopsy result after 13 years deserves some discussion, but this doctor never answers messages, his nurses just give out canned responses, it takes 6 months to get an appointment, and his only suggestion for nausea and pain was more soluble fiber. I’ve read that adults may not heal completely on a gluten free diet but with normal antibodies for years I was not expecting this result. I have made an appointment with a different GI who hopefully is more communicative. Rant over. Thanks for reading.
    • Pablohoyasaxa
      I was diagnosed with gluten sensitivity and a wheat allergy as a child in the early 1960s, . which I inherited from my father's DNA. My mom tried the best she could with both of us, but in those times health and allergies were kind of brushed aside.  I grew out of it, or so we thought, but the rashes reared their ugly heads while I was in college. Keg parties (wheat & gluten in beer and youthful reckess eating led to an outbreak. To the point, I am a 65 year old and now living with full blown celiac with dermatitis herpetiformis blisters that are just beginning to receed after being gluten-free for over 2 years at least. The lesions are so unsightly that I need to stay covered. Ive been living in South Florida and would love to wear shorts but people see the sores and thing I am a leper. Ive lost a lot of weigh from  stomach cramps and frequent bowel movements. Will this ever end!
    • StuartJ
      Unbranded - bought from a local Amish store
    • trents
      @StuartJ, what brand of gluten-free flour did she use?
    • StuartJ
      Well I'm pretty sure it was this one  https://www.mamaknowsglutenfree.com/wprm_print/homemade-gluten-free-bread-bread-machine-dairy-free-option
×
×
  • Create New...