Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Mild Glutening And Possible Oat Sensitivity


abemads

Recommended Posts

abemads Newbie

I have a question regarding symptoms of glutenings. Now It’s been about 6 months since I was diagnosed with Celiac decease, and I’ve been eating mostly gluten free ever since. I say mostly because there has been a few accidents. My question is if I can expect to fell different symptoms dependent on amount of gluten consumed?

A while ago I ate at a lunch buffet and about an hour later I got sick. First nausea and strong brain fog followed by watery diarrhea and tongue sores. All very reminiscent of the time before diagnosis. I have no doubt that this was a glutening.

Now last week I kissed my girlfriend goodbye right after breakfast. She had eaten bread and muesli and since we would be apart for several weeks it was a lengthy kiss. This time I also think I might have been glutened, but it is much less obvious. I had some watery diarrhea, followed by some trouble concentrating and a bad mood. I also noticed some slight nausea and I developed a bad case of tongue sores.

Could it be that the symptoms are less strong simply because I ingested less gluten?

A follow up to this is regarding gluten free oats. Three months ago I started eating certified gluten free oats. At first everything was fine, no obvious symptoms. It I ate wheat in the same amounts I would be quite sick, so I thought I was fine. Well I developed some symptoms gradually. I had mouth ulcers, some stomach problems, periods of bad mood and brain fog. I stopped eating oats and everything went back to normal. Last month I started eating oats again, being careful to not eat large amounts. After some days I get some symptoms, mouth ulcers, a bit of brain fog and I was in an impossible mood for days. I quit the oats and two days later I’m feeling great again.

What I don’t understand is that if I’m intolerant to the protein in oats (Avenin) then why are the symptoms so much weaker than the symptoms for gluten? If I don’t have problems with Avenin then why do I have these symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



AlwaysLearning Collaborator

My reaction definitely varies in direct correlation to the amount of gluten ingested both in intensity of symptoms to how long they last. And the smallest contamination can trigger them, so yeah, the girlfriend could have done you in with that kiss though I don't think anyone would recommend that you remove her from your diet. lol.

I do know that I quit eating oats long before I stopped eating gluten because it was so obvious that my body didn't like them. But I didn't go back to investigate further once I figured out the gluten side of my issues so I can't say that I feel as if I ever figured out why. 

Oats are high in arginine which has some affect on our immune systems though I can't say that I understand how. And they reduce cholesterol levels which may not always be a good thing for someone who has had malabsorption issues in the past. It is possible to have cholesterol levels that are too low.

But you'll need someone else with more oat-specific knowledge to answer the question about the proteins. I wouldn't mind learning more as well. I tried gluten-free oats once in the first month of going gluten free and they didn't sit well with me so I haven't revisited them again.

zero Newbie

With regards to oats, this link my be useful,

  Open Original Shared Link

 

The wikipedia page on oat sensitivity says this,

  "There is no evidence that oats can trigger GSE (gluten sensitive enteropathy), only that in a small number of celiacs disease can be sustained or reinitiated by oats once triggered by wheat."

but there is no citation so not sure if it is accurate.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    2. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    3. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

    5. - JoJo0611 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Yeast extract

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.