Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Am Puzzled, My Girl Is In Troubles And I Don't Know What To Do!


jepacar

Recommended Posts

w8in4dave Community Regular

Ohhhh Sweetie! I am so very sorry all this is going on with her. I figured they would of fixed it by now!! Do they have her on a special diet of any sort? Prayers and thoughts your way !!! 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tommysmommy Newbie

Please reconsider eliminating the breast milk - even if only for a day - just to see. Breast milk is very different than other milks but that doesnt mean that as her body heals it isnt finding it difficult to digest (its a common villi issue) young childen tend to react quickly...worth trying for a day or two - if symptoms persist - then uve ruled out a cause, if they resolve...give almond milk a try.

w8in4dave Community Regular

Thanks friends for your support. This is the thing, they found out about the blockage through an x-ray, then they gave her a bulk amount of laxative (PEG 3350) for three days. The day number three she was so sick that she had to lay down the whole day on top of towels because she was passing some kind of yellow water constantly, so I took her to emergency were a "doctor" told me to stop the medication and that the stool would brake down by itself, which it never happened. The last Friday I finally got an appointment to see her pediatrician who told me  "this is not a simple stool blockage" but he doesn't know what it is, so he sent her to do a lot more test (blood and stools) meanwhile she still has diarrhea and pain.... I don't think I have more hair to pull out of my head :(

Waiting to hear another report!! hoping it is a good one! Prayers, good Juju , hugzz and everything eles that can send good vibes your way sweetie! 

  • 2 weeks later...
jepacar Newbie

Hi my dear friends...you won't believe what happened, I eliminated all coconut product and the problem solved the next day!!! it didn't happen when she had the blockage because no matter what, she had "diarrhea" which it was some form of liquid poo trying to go through the blockage, but as soon as the blockage was gone I started the coconut product again, so I couldn't notice any difference...oh boy!! somebody told about cross reactivity and seems that is what was happening...I could do a party, a novel wouldn't be as good as the felling I have now after a week of normal poo...I appreciate very much all your advices and support, seriously!!! now the 2 of us are completely off of any form of coconut...love you guys!!!

cyclinglady Grand Master

That's great news!

w8in4dave Community Regular

OMGosh!! So very happy to hear this news!! It is truly a blessing!! Thanks for letting us know how she is doing!! I know it is hard specially when it is our children!! We hate to see our children suffering!! Bless you both!! :) 

jepacar Newbie

OMGosh!! So very happy to hear this news!! It is truly a blessing!! Thanks for letting us know how she is doing!! I know it is hard specially when it is our children!! We hate to see our children suffering!! Bless you both!! :)

Thanks a lot...we suffered sooooo much and it was so hard to figure this out...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748

    kyle68j
    Newest Member
    kyle68j
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...