Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Worst Glutening


Brandiwine

Recommended Posts

Brandiwine Contributor

Hello everyone! You haven't seen me on here in a while, I hope everyone is doing well. Recovery was going great for me, all my symptoms had completely disappeared for a month! I was doing great! Then I got careless, stupid me. Wednesday before last my best friend and I got together for dinner, it was the third anniversary of the passing of our closet friend. We went to the only restaurant close to me that I would eat at. Marco, has the best salads! I got the same salad I had in the past and garlic fries which I have had also. Since I never go out I had forgot that they serve bread with the salad and they brought it out with two slices of french bread sitting on top of my salad. I should have politely sent it back and asked for a new salad.... did I do that?... NO! My friend ate my bread and I ate my salad which had been contaminated! I felt like poo shortly after and worse the next day, but it was mild compared to the reactions I have had in the past, I was managing it. That Friday (not this past Friday but the one before) My little brother (who I never see) came to visit me on his only day off. I felt special, we hung out for a couple hours (in spite of me still feeling like poo from the CC two nights before). He was hungry and wanted to take me out, we had the convo about my diet, he suggested Quixote (new restaurant in our town) that was supposed to be all gluten free. I agreed to go but explained that I probably wouldn't eat anything. I talked to the owner of this place and he said with confidence that everything but three menu items were gluten-free. I ordered guacamole and chips ( I didn't want to take chances and in my mind that was still a chance) he brought me out carrot soup that I didn't order and said it was on the house... I probed with questions about what was in it, what kind of stock they use, what kind of thickener? He assured me it was safe.... I have felt like my insides are on fire ever since! My back, ribs, stomach, abdomen, hips, legs all are giving me so much pain! This is the sixth day and I still hurt. I'm bloated, nauseous, constipated. The pain is so much worse than I have had from gluten in the past, hands down! I wanted to go to the ER yesterday, I started thinking this can't be from gluten, my organs are rupturing or something horrible of that nature!!! I swear I WILL NEVER EAT OUT AGAIN!!! I doesn't matter how many Q's you ask, no one understands how much CC matters unless you are Celiac or GS. My dad is still under the impression that "a little won't hurt ya!" I wish I knew when this would pass! Before it was a week for me, but it's never been this bad (except when I first found out)and it's over a week already! Pray for me guys....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I'm so sorry to hear this! Maybe you SHOULD go to the ER. It sounds like you might have appendicitis. If this is so much worse than gluten makes you feel it could well be something else. Please, go get checked out and let us know. ((((HUGS))))

1desperateladysaved Proficient

Uff da. 

 

D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,976
    • Most Online (within 30 mins)
      7,748

    Mel R
    Newest Member
    Mel R
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.