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ryo

Would Love Your Help Reading Test Results

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hi,

my daughter has been diagnosed with celiac (blood test and biopsy).  we are now having our family tested.  i went through directlabs and just got my results back.  i would love it if the experts in this group could take a peak and confirm that i am in the clear (as much as one can be).

 

a little background...

the only reason i was tested is because of my daughter.  once we cut back on gluten i started having more energy, lost so weight, and felt better all around.  i am guessing this was a result of just eating healthy. i have also been "gluten light" for the past 6 weeks.  i consumed one serving of gluten everyday (with my daughter as she prepared for her biopsy).  i know you must eat gluten in order to test positive but i guess i am just throwing this in incase someone feels that "gluten light" could have caused the low results.

 

thank you so much for being my sounding board and offering your expertise!

 

 

Deamidated Gliadin Abs, IgA    3    

Negative 0 - 19

Weak Positive 20 - 30 

Moderate to Strong Positive >30    

 

Deamidated Gliadin Abs, IgG    2    

Negative 0-19

Weak Positive 20-30
Moderate to Strong Positive  >30

 

t-Transglutaminase (tTG) IgA    <2  

Negative 0 - 3

Weak Positive 4 - 10

Positive >10 

 

 

t-Transglutaminase (tTG) IgG   2

Negative 0 - 5

Weak Positive 6 - 9

Positive >9 

 

Endomysial Antibody IgA   Negative

Immunoglobulin A, Qn, Serum   168 

 

 

 

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It looks like your results are negative, but since you've been "gluten light," I would say it's possible that your results may not be accurate. That's judging from information that I've learned on this board--I'm not sure if that's entirely accurate. That being said, it's also possible that you don't have celiac, but that you are gluten intolerant. Either way, you know you feel better without gluten! I think it's really cool of you to change your diet with your daughter. My mom flat out refuses to try eating gluten free, despite having symptoms. 

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The immunglobulin A test is just a test for total IgA, not a celiac test, in case you wondered.  All the others are celiac tests. Good you got all of them.

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It looks negative to me too. the fact that you had cut back to "gluten light" prior to testing could have affected the results, but I would guess that if you were a celiac, they results would have been a bit higher rather than the low-end of normal.  Was you Immunoglobulin A within the normal range? For most labs it would be, but if you are low on IgA it could affect your IgA based celiac test results... I would guess it was fine though.

 

If you noticed such an improvement on the gluten-free diet, you should consider the possiblity that you have non-celiac gluten intolerance (NCGI) which is found in close to 1/10 people. those with NCGI will have the same range of symptoms as a celiac minus the intestinal villi atrophy (which is what those celiac tests look for signs of). I am a celiac but two of my kids apparently have NCGI because they tested negative for celiac disease - they are doing much better on the gluten-free diet.

 

Good luck in whatever you decide to do.

 

p.s. I lose weight when gluten-free too, even when not cutting calories...

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thank you for all of your feedback. 

 

nvsmom:

the lab didn't actually list a "normal" for the Immunoglobulin A but I assumed that the Endomysial Antibody IgA   Negative   was related to that?

 

 

bellev:

thank you for your kind words.  my daughter is really young and we want to support her however we can while also letting her grow up understanding and owning her health.  our house will be gluten-free so we can minimize her chances for cross contamination.  i will eat gluten-free with her at home or out of the home so i can understand her needs/challenges as much as possible.  

 

it is an overwhelming world we have walked into but i am so happy to have found the support of this group!

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The EMA IgA is actually a separate celiac test. It tends to be positive in most advanced cases of villi damage. The Immunoglobulin A (IgA)  is just a control test. About 5% of celiacs are low in it which would affect your other (IgA based) test results. The usual range is often somewhere around 100-400.

 

This board has a tonne of info, and many people with a lot of experience. I hope we can be of some help.  :)

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