Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Other Food Intolerances / Allergies?


JosieToo

Recommended Posts

JosieToo Explorer

Hi all,

 

I've recently been diagnosed with Celiac and am basically a sponge for knowledge at the moment! Sorry for yet another question!

 

I keep reading about other food intolerances and allergies in people with Celiac disease. Are these issues that were present before Celiac or because of Celiac? In other words, is there a higher likelihood of developing some new, additional issues with food that I've never had before?

 

Also, how do you know if you have a food intolerance or allergy? I know I'm allergic to shellfish because I have had reactions in the past and had a test at the allergist. But how would I know what to get a test for, if I don't have any reactions to other foods?

 

If there is a higher likelihood of other food issues with Celiac, is there anything I can do to prevent them or reduce my chances of developing these issues?

 

My Celiac seems to be largely "silent" aside from acid reflux controlled by medication - so I really don't know when I'm having a reaction.

 

Help! Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

An allergy is more along the lines of hives/swelling and the like. An intolerance can sometimes cause stomach issues, joint pain, headaches, and so on.

 

There really isn't anything you can do to prevent them. For example, i am intolerant to sweet potatoes and onions. I am allergic to tomatoes and possibly green beans.

bartfull Rising Star

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

Salax Contributor

The things we are MOST likely to be intolerant to are soy, oats (even gluten-free oats), corn, and nightshades. Some of us also have trouble with eggs and nuts.

 

I don't know if avoiding these things while you are healing might prevent problems or not, but you could be our guinea pig! :lol: (sorry).

 

I discovered my corn intolerance quite soon after going gluten-free when I made a big batch of gluten-free cornbread. I have often wondered, if I hadn't done that would the intolerance never have reared its ugly head? I don't know.

 

The thing is, there is no reliable testing available for intolerances. The only way to really tell is to keep a food and symptom diary. If you are already eating all of these things without symptoms, I wouldn't worry about it. LOTS of celiacs never develop other intolerances. But if you DO find yourself having symptoms of something being wrong, you could drop all of these foods until you feel better, then add back one a week until you find the one that's hurting you.

And to add to this dairy.....evil dairy....lol :P

bartfull Rising Star

I knew I was forgetting something. :huh:

Salax Contributor

Shoot, I do that all the time :D (so many intolerances, so little time...and memory to remember all of them..lol)

 

I knew I was forgetting something. :huh:

  • 1 month later...
fergusminto Apprentice

I have been questioning celiac disease treatment for some time as I was diagnosed with an antibody count of over 800. I think 10 is supposed to be high? Maybe someone can confirm that.

 

Since going onto the prescribed treatment of 100% gluten-free I have encountered a multitude of food intolerences - oats, all dairy, eggs, soya, pears, grapes etc. I have to ask why? I do not believe in coincidences of this magnitude but I cannot find any evidence of any research into celiac disease "treatment" - only a plethora of celiac disease "Diagnosis" research projects.

 

I am interested in hearing from any celiac disease sufferer if they have encoutered similar intolerences.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
stef-the-kicking-cuty Enthusiast

I went glutenfree in 2004 and about two years ago I started to get kidney pain every once in a while. Just last month during the course of an important audition I frantically tried to get rid of the bags under my eyes with make up, which didn't work. I suck at makeup. So I came to conclusion, that it must be some kind of allergy. I went entirely dairy free about a month ago and today I drank a hot cocoa and ate a Nutella bread, and wouldn't you think... brain fog, extreme fatigue, and kidney pain a few minutes after eating it. :(

stef-the-kicking-cuty Enthusiast

Oh, and another symptom I forgot about until it hit me right now. It's not really asthma, but more like a "one-single-lung-cramp-every-20-minutes-or-so"-thing. It's really annoying.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,335
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.