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Follow Up Endoscopy After Gfd ?

PersianCeliac

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PersianCeliac Contributor
PersianCeliac
Posted

Hi Everyone,

 

My mom (49 years old) was diagnosed with celiac 1 year and 4 months ago, she didnt have symptoms but since my aunt was diagnosed she had the test too and turned out she had celiac and endoscopy showed marsh 3b. She has been on a gluten free diet since then. Her repeat blood work 9 months after GFD showed normal results but only ttg was borderline (down from >800 to 10) . I was wondering when she should go for a repeat endoscopy to check her intestines for healing as i have read so many people go after one year and are still not completely healed since it takes time. Has anyone here gone for a repeat endoscopy? and if so, after how long and what were your results ?

 

From what i have read i feel she shouldnt go for a repeat endoscopy unless atleast after 2 years especially because she had extensive damage and she has the highest risk genes DQ2.5 AND DQ2.2

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kareng Grand Master
kareng
Posted

They don\'t usually recommend a repeat biopsy if your blood levels fall and you are feeling well with the gluten-free diet.

 

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My antibodies haven’t returned to normal after I was diagnosed with celiac disease, should I do another scope?

If you have celiac disease and follow a gluten-free diet, then your antibody levels should decline and eventually return to normal. In fact, this is how we test compliance to the diet. It’s rare that someone with celiac disease needs another biopsy if already responding to a gluten-free diet. If your antibody levels aren’t returning to normal, work with a medical professional to determine if gluten is somehow sneaking into your diet, or explore other causes for this issue.

 

 

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Once I’ve been biopsy-diagnosed to confirm celiac disease, do I ever need to have another biopsy done?

Provided you received a clear diagnosis and aren’t experiencing issues there’s no reason to have another biopsy. Even though you may not notice any symptoms from consuming gluten, the disease is still active and can lead to severe complications over time if gluten is sneaking into your diet. Therefore, we recommend annual testing to check for elevated antibodies in your blood.

NJceliac Apprentice
NJceliac
Posted

Hi Everyone,

 

My mom (49 years old) was diagnosed with celiac 1 year and 4 months ago, she didnt have symptoms but since my aunt was diagnosed she had the test too and turned out she had celiac and endoscopy showed marsh 3b. She has been on a gluten free diet since then. Her repeat blood work 9 months after GFD showed normal results but only ttg was borderline (down from >800 to 10) . I was wondering when she should go for a repeat endoscopy to check her intestines for healing as i have read so many people go after one year and are still not completely healed since it takes time. Has anyone here gone for a repeat endoscopy? and if so, after how long and what were your results ?

 

From what i have read i feel she shouldnt go for a repeat endoscopy unless atleast after 2 years especially because she had extensive damage and she has the highest risk genes DQ2.5 AND DQ2.2

 

I think gastroenterologists feel differently about this and most do not necessarily request another scope and biopsy, especially if the antibody levels are falling or test negative.  I did get rescoped at a year (my request) and although I wasn't completely healed I went from Marsh 3-c to Marsh I-II.  I also did not get symptoms prior to diagnosis but I sure do get symptoms now when I get contaminated.

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