Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Vitamins And Supplements

gilligan

Recommended Posts

gilligan Enthusiast
gilligan
Posted

Frustration hit an all time high yesterday!  My visit to the dietician resulted in advising me to get a good gluten free multi-vitamin.  I asked about taking a probiotic and a digestive enzyme, she thought it might help.  My husband and I started at GNC.  The young man working had never heard of Celiac before.  We walked out with only a papaya digestive enzyme.  Not sure if this is really what I needed.  We tried two pharmacies - CVS pharmacist had never heard of celiac, so we quickly left.  Seriously??? The other pharmacy had heard of it, but didn't know of any gluten free multi-vitamins and suggested I buy Lactaid as a dig. enzyme.  Can someone help me?  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I have had good luck at GNC when I have asked for gluten free. Many GNC's are franchises, so I guess some are better than others. Whole Foods and other places like that have a lot of gluten-free options and people who know something about the products. Vitamin Cottage/ Natural Grocers (?) is another good place.

Nature Made vitamins say gluten-free on them and are at Target & Walmart.

Lock Newbie
Lock
Posted

I have a bottle of Dr. Mercola Complete Probiotics and it says it is gluten free, also free from dairy, corn, soy, yeast and eggs.

 

Dr. Mercola's Whole Food Multivitamin Plus is a wonderful, complete vitamin, but does NOT say gluten free on my bottle. However, I thought I read somewhere on his website that it is gluten free, it just doesn't have the official label yet, but I am not sure.

 

I am having a lot of frustration with supplements too. At first, I read a book that said the preservative magnesium stearate is bad for you, and it seems to be in every supplement. That's why I went to the Mercola brand, he doesn't use magnesium stearate.

 

Also his Digestive Enzymes list only gelatin, cellulose and silica as ingredients besides the enzymes, but the bottle doesn't say gluten free so I don't know. I am taking all these though and they seem to be helping.

 

I have a bottle of Nature's Way multivitamin, and it says that it contains no "wheat grain" but does not say no gluten. Also, it does contain wheat grass but I have read that the grass is not the part with gluten. So is there cross contamination there? I don't know.

 

I just bought a Rainbow Light brand calcium supplement. It says it contains no gluten, but it does have magnesium stearate.

 

I am so completely lost with the supplements, and so frustrated. I can't keep much of anything on my stomach and I just got my bone scan results, not good. I gotta do something.

 

Oh.... here is something to investigate.... Open Original Shared Link

 

Again, I can't find on that page where it says gluten free, but one of their other ones does. That liquid, if gluten free, might be the best choice, it may be easier to absorb and not have the preservatives.

bartfull Rising Star
bartfull
Posted

Dr. Mercola whole food vitamins are NOT gluten-free!! I found that out when IH pointed it out to me after I had been taking them for quite a while. :lol: They have "sprouted barley juice (whole plant)" and "wheat grass juice (whole plant)". The writing is so tiny I never even noticed.

Lock Newbie
Lock
Posted

Dr. Mercola whole food vitamins are NOT gluten-free!! I found that out when IH pointed it out to me after I had been taking them for quite a while. :lol: They have "sprouted barley juice (whole plant)" and "wheat grass juice (whole plant)". The writing is so tiny I never even noticed.

 

Wow you are right, I see it now!!!  DARN... I've been taking them. No wonder my stomach is still all screwed up. (Plus I haven't been able to scrub out my cabinets yet, or go through all my lotions and toothpastes and whatnot. I have a whole large box of supplements I'm going to have to probably throw out.)

bartfull Rising Star
bartfull
Posted

Give them away rather than throwing them out. I think I have fed half of my town! :lol:

1desperateladysaved Proficient
1desperateladysaved
Posted

I use my unused supplements as compost in the pile.  I happen to really like Nature's Way vitamins.  As a brand, I think they are carefully made and independently tested.  I currently take their B-100.  I am not familiar with their multi-vitamin.  I personally would not take anything with wheat grass, but I might actually have an allergy.

 

D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ItchyAbby Enthusiast
ItchyAbby
Posted

I am not taking a multi currently (you can see below that I am taking individualized supplements) but when I did I really liked Rainbow brand - it's food based, very gentle on the stomach and contains digestive enzymes. You can usually get it at Whole Foods or similar store. You can also find it online at Vitacost. It says: (Free of) "Gluten, yeast, milk, eggs, soy, nuts, fish/shellfish, artificial colors, flavors, sweeteners, preservatives and other objectionable additives often found in vitamin products. Contains no sugar or lactose."

 

I buy a lot of my supplements on Vitacost or Amazon. Vitacost's own brands say they are free of Milk, Eggs, Peanuts, Tree Nuts, Shellfish, Fish, Soy, Gluten, Titanium dioxide. I get their B-100 complex and Calcium/Magnesium/Vit D.

 

For Probiotics I use HLC Synbiotic in the sachets. It has been really good for me. It's not cheap, however. I also take Foliplex and L-theanine by Integrative Therapeutics and Magnesium and Evening Primrose Oil both by Vital Nutrients.  I purchase all of these on Amazon.These are all brand and supplements recommended by my naturopath. When I can stop being low iodine (I have DH) I will switch out the EPO for Nordic Naturals Arcti-D Cod Liver Oil.

 

So, I guess what has worked for me is working with a knowledgeable naturopath. My Primary care doc has also been helpful in figuring out what supplements I need, but I started seeing her after the naturopath so it was more like she confirmed that I was on the right path. Do you feel like your primary doctor could be helpful? If possible, you might want to see a naturopath - I found the dietician to be less helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.