Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Adjusting The Changes In Socializing


Wheatie NOT

Recommended Posts

Wheatie NOT Newbie

Hello,

 

I was just diagnosed with celiac.  Does anyone have suggestions about how to cope with dinner invitations or requests to dine out?  People will tell me that a given resteraunt advertises a gluten free menu, but should I trust that?  How do I know it is really gluten free?

 

Also, how do you handle dinner invitations to somebody's house?  I started to say "thank you, I will be happy to come and share a beverage, but please don't be offended if I don't eat anything, as I was just diagnosed with celiac and can't have wheat."  As I also have another rare allergic condition, my diet is pretty darned restricted and I find that I feel "left out" at parties or work functions where everybody else is sitting there eating and there is nothing for me to eat.  It makes me feel really "different" like I don't fit in anymore.

 

Any advice on how to cope with that uncomfortable situation?

 

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Marilyn R Community Regular

It is uncomfortable at first, and that's exactly when you need to really be on top of your food game, because you're trying to heal.  Here's a couple of thing's I've done for dinner parties, probably from advice on the forum. 

 

You can ask if you can bring a salad.  Package your own portion separately, toss it on a plate and eat while everybody is eating.

 

Eat ahead of time and say you aren't hungry, or bring a portion of something you can eat so that you can join everybody at the dinner table.  I usually take a little cooler I can carry over my shoulder and slip into the kitchen to make my own plate.

 

Bring your own food and if anybody questions it, just mention that you have dietary restrictions or severe food allergies, then change the subject if you're uncomfortable discussing it.  I think the hostess is more uncomfortable if you don't eat at all, it generally works out better to eat something while everybody is eating.  Everybody makes a bigger deal out of it if you don't eat. 

 

I personally have had bad experiences with supposed gluten-free restaurant menus with the exception of one seafood restaurant, one Cuban restaurant and an Indian restaurant.  I generally decline on invitations to go out to eat, because the whole drill just exhausts me, and I don't like being the grand inquisitor at dinner.  You can call ahead of time, but you still need to rely on the wait & kitchen staff not to poison you.

gilligan Enthusiast

I'm new at this also, but I think I'm going to find out what they are serving and bring my own.  You can always transfer it to one of their plates.

NoGlutenCooties Contributor

I'm new at the gluten free diet too - just passed the one month mark.  I went out to a restaurant for the first time since my diagnosis this last Friday night - it was a Halloween party and they had a buffet.  The wait staff could not have been nicer.  I spoke to one of the waitresses on the side, told her I was gluten intolerant (people seem to be more familiar with that than Celiac Disease - and assume they're the same thing) - anyhow... she actually knew what that was and quizzed the chef about what had been thickened with flour, etc.  She even brought me out the jar of BBQ sauce they had put on the ribs so I could read the label and make sure I could eat it.  I had gone prepared with some of my own food in case there wasn't anything there that I could eat but my point in all of this is that it IS possible to have a decent experience at a restaurant.

 

As far as social occasions at friends' houses, so far my friends have been very supportive.  If they weren't... I probably wouldn't consider them to be real friends.  But I agee with the other suggestions - take some food with you - eat what they have that you know is safe and add your own food to it.  If you're sensitive to cross-contamination, then only eat your own food.  Don't feel self-conscious about it - you're doing the right thing for you and your health.  I have found that most people wish they had the will-power to eat as healthy as I do.

GF Lover Rising Star

I won't go within 50 feet of a buffet...just sayin. 

 

Colleen 

Marilyn R Community Regular

I won't go within 50 feet of a buffet...just sayin. 

 

Colleen 

I concur...just sayin.

M

Wheatie NOT Newbie

Thanks so much everybody, I really appreciate your input.  Actually, two of my friends also have celiac or gluten intolerance, and luckily, they are the one's who give the most dinner parties!

 

Ironically, there are only four people at my worksite that have it, and three of them are in my workgroup.  So when I bring cookies to meetings or things for holidays, all the "no wheaties" get a little bag from me.

 

Might as well have fun with it I say!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carebear Apprentice

I'm new at the gluten free diet too - just passed the one month mark.  I went out to a restaurant for the first time since my diagnosis this last Friday night - it was a Halloween party and they had a buffet.  The wait staff could not have been nicer.  I spoke to one of the waitresses on the side, told her I was gluten intolerant (people seem to be more familiar with that than Celiac Disease - and assume they're the same thing) - anyhow... she actually knew what that was and quizzed the chef about what had been thickened with flour, etc.  She even brought me out the jar of BBQ sauce they had put on the ribs so I could read the label and make sure I could eat it.  I had gone prepared with some of my own food in case there wasn't anything there that I could eat but my point in all of this is that it IS possible to have a decent experience at a restaurant.

 

 

 

 

A friendly warning - when I was at the one month mark, I could handle all kinds of CC and gluten traces.  As my diet became cleaner, however, I became much more sensitive.  Please be careful!

NoGlutenCooties Contributor

 

A friendly warning - when I was at the one month mark, I could handle all kinds of CC and gluten traces.  As my diet became cleaner, however, I became much more sensitive.  Please be careful!

 

 

I hear you.  I really do.  My uncle is extremely sensitive to cross-contamination issues, so I know exactly what you're talking about.  I'm taking it one step at a time.  I know I don't get any gluten at all at home - I live alone and cook for myself.  Very few, if any processed foods, etc.  I only eat out a couple times a month.  So while I'm being very careful not to eat anything with purposeful gluten in it, I have not had to be too concerned with the accidental CC issues.  At least not yet.  I know it can - and often - happens (meaning getting worse over time).  I'll cross that bridge when I get there.

 

I also go back in about 5 months to get my bloodwork checked again - the doc. says that will also be an indication as to whether or not I need to worry about CC issues.

 

All that said... I do appreciate the head's up and the reminder.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.