Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help For A Family Of New Intolerances

ndw3363

By ndw3363
in Food Intolerance & Leaky Gut

Recommended Posts

ndw3363 Contributor
ndw3363
Posted

One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


shadowicewolf Proficient
shadowicewolf
Posted

One of the guys I work with just had his 10yr old daughter tested and it turns out she is intolerant to just about everything.  Now I don't always think that the bloodtests for sensitivities are 100% accurate, but he was told they need to cut out gluten, eggs, dairy, peanuts (and other tree nuts), and most likely soy.  This leaves them with very little IMO to eat.  I'm gluten free and semi-dairy free so I'm only a little bit of help to him.  I gave him this web address as a starting off point, but right now, their heads are swimming.  He has 3 other kids and they are trying to decide if they whole family should follow some of the guidelines or just the daughter.  They are seeing a dietician soon, but thought maybe I could get some other great resources from this group - this is always my first stop for questions since you all are so super helpful all the time.  I'm really just looking for ideas on what a 10yr old can eat with all this.

 

Sidenote - he didn't say whether or not the Dr. did a celiac panel.  I told him about it (had never heard of celiac disease before) and asked that he call the Dr prior to pulling gluten out of her diet.  The sheer number of intolerances suggests to me that there is something else going on.

Meat, veggies, fruit, rice, quinoa, corn is a short list. You can do quite a bit with those.

Adalaide Mentor
Adalaide
Posted

From experience I can say that with gluten and soy together that it is pretty restrictive, nearly to the point of whole foods or ridiculously expensive crap no one can afford. Dairy adds a whole other layer to that because what isn't whey in?

 

I'm going to agree though that there is quite a lot you can do with meat, vegetables and the available grains. You can suggest coconut aminos as a substitute for soy sauce for stir fries and after that I really can't think of any reason she'll be lacking.

 

And yes, I would prod him to push for that celiac panel and follow up endoscopy quickly. We all know the test won't be accurate if she's already gluten free so there probably isn't a whole lot of time for them to mess around with that and if they can get the blood draw done immediately that would be super.

StephanieL Enthusiast
StephanieL
Posted

Intolerance testing leaves much to be desired.

 

Why did they test to begin with?

 

That diet is what we have followed with a few more. It's about cooking a lot at home but its manageable for sure.  Again, without knowing why they tested though, I would bet a few/most of them aren't an issue really.

ndw3363 Contributor
ndw3363
Posted
  • Author

She has had behavioral problems for years - at one point he said they had her on Abilify, but decided that was a bit strong for a 9 yr old.  They are coming at this from a good place - don't continue to mask the problem...get to the root of it.  She has been very tired and almost depressed for awhile, which is why they had the tests done.  They went through standard pediatrician who specializes in dietary restrictions (which is why I was surprised she didn't run a celiac panel or blood vitamin/mineral tests).  Apparently this Dr is very in demand (they had the blood draw in August and couldn't get a follow up appt to go over results until this past Friday 11/8 - crazy!!)  I of course did not discount the Dr's opinion, but I did explain to him that a lot of this information is subjective and it would be in their best interest to get the celiac panel done now before they make radical changes to her diet (that way they can have the other kids tested if it comes back positive as well).  I was trying my best to help with recipes and food ideas, but I'm allowed dairy (in small amounts) and all my good recipes contain something she can't have.  Mostly need lunch ideas to take to school - poor kid.

StephanieL Enthusiast
StephanieL
Posted

Desperate parents will try anything, I know :(  I just hate to see people restricting diets so much without a clear reason and scientific testing first to rule things out.  It's hard to get people to comply with these diets with no back up (from the patient to the families to the schools).  
 

 

Soy is going to be the big one. If they do decide to pull everything, that would be the one I would try to add back first as it will open up a lot.  Hummus with veggies, soups and stuff like that would be where I would start with for lunches.

Juliebove Rising Star
Juliebove
Posted

My daughter had all of those intolerances and more.  There is plenty to eat.  Can use coconut oil instead of butter.  Can pop pocorn in it.  Can eat sunseed butter on a rice cake, rice crackers, corn tortilla, gluten-free bread, etc.  There are all kinds of fruit.  Meat.  Now there is great dairy free and soy free cheeses.  Daiya is one such brand.  In a restaurant, safe choices would be a hamburger patty,fruit, plain baked potato, sometimes fries.  In a Mexican restaurant, beans, rice and corn tortillas are usually safe.  Often the meat is safe but you have to ask.  Have to concentrate on what can be eaten and not on what can't.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. tiffanygosci
      - tiffanygosci posted a topic in Coping with Celiac Disease
      0

      New Celiac Mama in My 30s

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After...
    2. knitty kitty
      - knitty kitty replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      On the AIP diet, all processed foods are eliminated. This includes gluten-free bread. You'll be eating meats and vegetables, mostly. Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well. Veggies should be fresh, or frozen without other ingredients like sauces or seasonings. Nightshade vegetables...
    3. Yaya
      - Yaya replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      Thank you for responding and for prayers. So sorry for your struggles, I will keep you in mine. You are so young to have so many struggles, mine are mild by comparison. I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of. Following surgery: multiple symptoms/oddities appeared including...
    4. larc
      - larc replied to Jhona's topic in Introduce Yourself / Share Stuff
      29

      Does anyone here also have Afib

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back. My cardiologist offered me a collection of pharmaceuticals at the time...
    5. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      8

      Help I’m cross contaminating myself,

      So I should not eat my gluten free bread? I will try the vitamins. Thank you all so very much for your ideas and understanding. I'm feeling better today and have gathered back my composure! Thank you kitty kitty I am going to look this diet up right away. And read the paleo diet and really see if I can make this a better situation then it currently...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,920
    • Most Online (within 30 mins)
      7,748
    Serena Rodriguez
    Newest Member
    Serena Rodriguez
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Hello all! My life in the last five years has been crazy. I got married in 2020 at the age of 27, pregnant with our first child almost two months later, gave birth in 2021. We had another baby in April of 2023 and our last baby this March of 2025. I had some issues after my second but nothing ever made me think, "I should see a doctor about this." After having my last baby this year, my body has finally started to find its new rhythm and balance...but things started to feel out of sorts. A lot of symptoms were convoluted with postpartum symptoms, and, to top it all off, my cycle came back about 4m postpartum. I was having reoccurring migraines, nausea, joint pain, numbness in my right arm, hand and fingers, tummy problems, hives. I finally went to my PCP in August just for a wellness check and I brought up my ailments. I'm so thankful for a doctor that listens and is thorough. He ended up running a food allergy panel, an environmental respiratory panel, and a celiac panel. I found out I was allergic to wheat, allergic to about every plant and dust mites, and I did have celiac. I had an endoscopy done on October 3 and my results confirmed celiac in the early stages! I am truly blessed to have an answer to my issues. When I eat gluten, my brain feels like it's on fire and like someone is squeezing it. I can't think straight and I zone out easily. My eyes can't focus. I get a super bad migraine and nausea. I get so tired and irritable and anxious. My body hurts sometimes and my gut gets bloated, gassy, constipated, and ends with bowel movements. All this time I thought I was just having mom brain or feeling the effects of postpartum, sleep deprivation, and the like (which I probably was having and the celiac disease just ramped it up!) I have yet to see a dietician but I've already been eating and shopping gluten-free. My husband and I have been working on turning our kitchen 100% gluten-free (we didn't think this would be so expensive but he assured me that my health is worth all the money in the world). There are still a few things to replace and clean. I'm already getting tired of reading labels. I even replaced some of my personal hygiene care for myself and the kids because they were either made with oats or not labeled gluten-free. I have already started feeling better but have made some mistakes along the way or have gotten contamination thrown into the mix. It's been hard! Today I joked that I got diagnosed at the worst time of the year with all the holidays coming up. I will just need to bring my own food to have and to share. It will be okay but different after years of eating "normally". Today I ordered in person at Chipotle and was trying not to feel self-conscious as the line got long because they were following food-allergy protocols. It's all worth it to be the healthiest version of myself for me and my family. I would be lying if I said I wasn't a little overwhelmed and a little overloaded!  I am thankful for this community and I look forward to learning more from you all. I need the help, that's for sure!
    • knitty kitty
      Help I’m cross contaminating myself,

      By knitty kitty · Posted

      On the AIP diet, all processed foods are eliminated.  This includes gluten-free bread.  You'll be eating meats and vegetables, mostly.  Meats that are processed, like sausages, sandwich meats, bacons, chicken nuggets, etc., are eliminated as well.  Veggies should be fresh, or frozen without other ingredients like sauces or seasonings.  Nightshade vegetables (eggplant, potatoes, tomatoes, peppers) are excluded.  They contain alkaloids that promote a leaky gut and inflammation.  Dairy and eggs are also eliminated.   I know it sounds really stark, but eating this way really improved my health.  The AIP diet can be low in nutrients, and, with malabsorption, it's important to supplement vitamins and minerals.  
    • Yaya
      Does anyone here also have Afib

      By Yaya · Posted

      Thank you for responding and for prayers.  So sorry for your struggles, I will keep you in mine.  You are so young to have so many struggles, mine are mild by comparison.  I didn't have Celiac Disease (celiac disease) until I had my gallbladder removed 13 years ago; at least nothing I was aware of.  Following surgery: multiple symptoms/oddities appeared including ridges on fingernails, eczema, hair falling out in patches, dry eyes, upset stomach constantly and other weird symptoms that I don't really remember.  Gastro did tests and endoscopy and verified celiac disease. Re heart: I was born with Mitral Valve Prolapse (MVP) and an irregular heartbeat, yet heart was extremely strong.  It was difficult to pick up the irregular heartbeat on the EKG per cardiologist.  I had Covid at 77, recovered in 10 days and 2 weeks later developed long Covid. What the doctors and nurses called the "kickoff to long Covid, was A-fib.  I didn't know what was going on with my heart and had ignored early symptoms as some kind of passing aftereffect stemming from Covid.  I was right about where it came from, but wrong on it being "passing".  I have A-fib as my permanent reminder of Covid and take Flecainide every morning and night and will for the rest of my life to stabilize my heartbeat.   
    • larc
      Does anyone here also have Afib

      By larc · Posted

      When I accidentally consume gluten it compromises the well-being of my heart and arteries. Last time I had a significant exposure, about six months ago, I had AFib for about ten days. It came on every day around dinner time. After the ten days or so it went away and hasn't come back.  My cardiologist offered me a collection of pharmaceuticals at the time.  But I passed on them. 
    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      So I should not eat my gluten free bread?  I will try the vitamins.  Thank you all so very much for your ideas and understanding.  I'm feeling better today and have gathered back my composure! Thank you kitty kitty   I am going to look this diet up right away.  And read the paleo diet and really see if I can make this a better situation then it currently is.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.